Meet Sammie McFarland, Founder and Chief Executive Officer of Long Covid Kids, a supporter of "The Air We Share." Thank you for helping make this film possible. Join in: https://www.documentaries.org/films/the-air-we-share/
Amy 🌤️
@cloudsandsunshine.bsky.social
#CovidisAirborne #LongCovidKids #pwLC #pwME A life long reader, a sometimes baker and a community gardener. Views are my own.
Thank you GBH for the coverage - "A win by Paz - an educator, activist and former Waltham City Councilor - would be a seismic event in the House..." We agree, a shift towards having a Democratic Party that stands for peace and stands with the working class - not the donor class! ✌🏽
Thank you to the youth editors. Lucinda Eden Savannah Bethan. #LongCovidKids #LongCovid #YouthVoice #YouthAdvocacy
Honestly one of the things that makes me most angry is our failure to protect children Many kids will have had several COVID infections before they can even speak Many will have long COVID before they even enter school We are disabling entire generations And it will come back to haunt us
Estimated 6 million children potentially suffer from long Covid / yet initial misinformation was Covid did not negatively affect children. Schools were a source of ongoing infection. jamanetwork.com/journals/jam...
Long COVID in Young Children, School-Aged Children, and Teens
This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.
jamanetwork.com
RFK: "You are saying nonsense." Bash: "I am not saying nonsense, excuse me?…This is not productive. " RFK: "You're talking nonsense…You were scaring people." Bash: "Why are you saying that?" RFK: "Because that was the job of CNN." Bash: "Okay, stop."
Our daughter went from being entirely housebound and mostly bedridden to being 80-90% functional within 3 weeks of starting Acetazolamid for her IIH. #LongCovid and #MECFS must be psychosomatic! 🤪
Plus, the long-term impact on children: "Research studies show that Long Covid can affect around 7 to 20 in every 100 children and young people." www.longcovidkids.org/what-is-long...
WHAT IS LONG COVID | Long Covid Kids
What is Long Covid? How does Covid-19 affect children? What are the symptoms of Long Covid in kids? Long Covid is also known as Post-Covid Syndrome, & PACS in the USA.
longcovidkids.org
Long COVID in children is particulary tough, due to the young age of those affected and the fact that, as there is no cure yet, its effects may potentially be life-long. Perhaps experts like @binitakane.bsky.social and activists like @longcovidkids.bsky.social and @longcovidfam.bsky.social can help
“The biggest problem is that the conclusion doesn't match the data.” Allen said. “If you look strictly at the data, the conclusion is a small HEPA filter that's turned off doesn't work.” www.cidrap.umn.edu/covid-19/can...
Can air purifiers prevent flu and COVID-19 in nursing homes? Only if they’re used properly
cidrap.umn.edu
For years, Ralph de la Torre and Cerberus Capital Management bled MA hospitals dry. While they flew on private jets and made millions, workers went unpaid, patients died, and hospitals were forced to close. Massachusetts deserves accountability, and Ralph de la Torre deserves to be in jail.
I'm very glad the Massachusetts Legislature finally passed the PROTECT Act which will, among other things, limit ICE's ability to operate in courthouses. But it remains infuriating that our state has not canceled its lone existing 287(g) contract. www.bostonglobe.com/2026/07/29/m...
Did you know Long COVID can affect children? If your child has experienced new or ongoing symptoms after having COVID-19, talk to your doctor about the possibility of Long COVID. Learn more about Long COVID: www.cdc.gov/long-covid/a...
Details of the new compromises on the PROTECT act that may actually get signed by Maura Healey this week or next. Some good stuff and some frustrating stuff (it doesn't end the current 287(g) partnership between ICE and the state Department of Corrections, but it prohibits any new ones)
Immigrant protection accord includes state, local enforcement rules for Mass.
Beacon Hill negotiators on Wednesday unveiled a compromise on the closely watched bill that would broaden protections against federal immigration enforcement in Mass., while preserving one key area of...
wbur.org
“A school nurse, teacher and/or principal are good places to start the conversation about which accommodations may be necessary to support your student in an academic setting.” We experienced hostility from our school district. Documenting everything in writing is prudent. #LongCovidKids
"What Parents Need to Know About Long COVID in Kids" “Surprisingly, we see a lot of kids coming in who have either asymptomatic COVID infection or mild COVID symptoms that wind up with Long COVID symptoms” #LongCOVIDkids
"...the researchers highlight a broader problem in diagnosing longCOVID. Previous research suggests that more than 10% of patients with acute COVID infection may go on to develop longCOVID, but electronic health records tend to indicate that less than 1% of patients receive a longCOVID diagnosis."
longcovid is not uncommon, not prevented by vaccines, and likelihood of developing it increases with every subsequent acute infection. symptoms can range from annoying to debilitating, and impact people with marginalized identities disproportionately. prevent infection. wear a mask.
A thoughtful perspective from teacher Flynn Lovelace on what they've witnessed in classrooms since the pandemic. Children deserve the opportunity to learn, participate and thrive. We're grateful to see these experiences shared. 🧡 Worth a read. thesicktimes.org/2026/07/24/t... @thesicktimes.org
The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times
We must help students by addressing Long COVID and advocating for clean air in schools.
thesicktimes.org
Kennedy Krieger Institute surveyed 58 caregivers. Over 65% said their child with Long COVID felt out of place, while 40% said others dismissed their struggles. Stigma can block medical care and school support. www.nature.com/articles/s41...
A call to educate: counteracting enacted stigma in children with long COVID - Pediatric Research
Pediatric Research - A call to educate: counteracting enacted stigma in children with long COVID
nature.com
Because Cövid really isn't okay for kids... Specifically those yet to be borne www.nature.com/articles/s41...
The association of in utero SARS-CoV-2 exposure on neurodevelopmental outcomes at 12 and 22 months - Journal of Perinatology
Journal of Perinatology - The association of in utero SARS-CoV-2 exposure on neurodevelopmental outcomes at 12 and 22 months
nature.com
LUCE and other community organizations around Massachusetts have set up this offrenda on the steps of the State House for a 24-hour vigil in memory and honor of people killed by ICE. Honor the dead - fight for the living www.lucemass.org
Great news!
Positive updates! - We are closer than ever to getting the ME/CFS Research Roadmap funded. - The Office of the Surgeon General is ready to work with us. Take action: -Leave a public comment about Medicaid. - Join our advocacy working group. - Donate More info & links: https://ow.ly/gkv150Zs2gx
I’m happy this study on mold & ME got funded! Makes sense for Nancy Klimas & co to investigate. “We hypothesize that mycotoxins induce transcriptomic reprogramming in immune cells & extracellular vesicles (EVs), leading to immune exhaustion & chronic inflammation. reporter.nih.gov/search/NmB38...
RePORT ⟩ RePORTER
reporter.nih.gov
Please join the LUCE network and community organizations for a 24-hour vigil in front of the Massachusetts State House in Boston. 12 Noon, Fri. July 24 through 12 Noon, Sat. July 25 More information here: www.lucemass.org/24hr #HonorTheDead #FightForTheLiving #Boston #MassPoli #Justice #Solidarty
Congratulations to @andyburnham.bsky.social on becoming Prime Minister. We hope the lessons of COVID-19 help shape stronger systems for children and young people—through better healthcare, joined-up education and future preparedness. Childhood doesn't wait. #ChildHealth #PandemicPreparedness
I was thinking not a lot of chatter about the study and I sure do hope we get enough responses. Half a day and 100+ responses, should've known y'all wouldn't let me down! ❤️ There's a good chance we'll have to cut participation swiftly, so if you would like to participate, I hope you will soon!
We are ready to launch the Emergency Department Survey! Thanks to all your help-- and a few grants-- we are ready to go! If you're registered with #MEAction, an email with a link to the survey should be in your inbox very soon! Also, check out our social solicitation for the survey below. 🧵
Maria Rosales is being held at Burlington. "We have to beg for water ... We've been in the same clothes for weeks ... The room is extremely hot with all those bodies in a tiny cell ... The food is inedible. Some of the girls here refuse to eat because the food is vile and they couldn't stomach it."
Woman arrested at Logan after Noah Kahan concert ordered released from Burlington ICE facility
Maria Rosales, a 32-year-old Florida resident, said she is enduring "tough" and "uncomfortable" conditions similar to those reported over the last year by other Burlington detainees, and which have dr...
wbur.org
COVID is still killing & disabling folks, esp marginalized groups. This being ignored by governments, institutions, employers, & individuals of EVERY political ilk is an issue of: - racial justice - queer & esp trans liberation - workers rights - child welfare - disability justice - & more!
Honor the Dead, Fight for the Living 🌷 Honra a los Muertos, Lucha pos los Vivos 🌻 July 24-25, 2026 | 24 y 25 de julio de 2026 24 Hour Vigil | Vigilia de 24 horas MA State House | la Casa Estatal 🔗 lucemass.org/24hr
24 Hour Vigil — LUCE Immigrant Justice Network of MA
Justice for Lorenzo, Justice for Johan, Justice for All!
lucemass.org