🎨 Could your design be our next Long Covid Kids T-shirt? Our design competition is open to anyone aged 21 & under. Create something inspired by hope, belonging, courage, community — or something completely different. 👇 www.longcovidkids.org/post/design-... #LongCovidKids #LongCovid #Summer

🧡 On #SevereMEDay we stand alongside everyone living with severe and very severe ME, their families and carers, and remember those whose lives have been lost. Absence is not absence of need. #SevereME #LongCovid

We started looking at this with this paper but I guess we need to do more: bsky.app/profile/long...

Long Covid Kids@longcovidkids.bsky.social · last wk.

disabling, health problems following SARS-CoV-2 infection. Those are two different conversations. Given your role as a journalist, you may find this paper of interest: A critical analysis of UK media characterisations of Long Covid in children and young people. pmc.ncbi.nlm.nih.gov/articles/PMC...

Recommendations for journalists to counter epistemic injustice in reporting Long Covid and similar conditions. pmc.ncbi.nlm.nih.gov/articles/PMC... #Journalists #LongCovid #Children #Childhood

Summer newsletter take over by the youth editing team 👌 longcovidkids.org/so/aaP_rkGNW #editor #summer #writers

Welcome to the second issue of The Long Covid Chronic-Ill, the newsletter specifically made for children and young adults with Long Covid and overlapping illnesses. This is a safe space for everyone. ...

But first, meet the editors!

longcovidkids.org

Five years on. Children and young people are still living with Long Covid. As Samir says at the end of this report: "That we're still here." Thank you to everyone who shared their story, and to Ruth Liptrot and @channel5news.bsky.social . 🎥⬇️ youtu.be/FZp32EIppZ8 #LongCovidKids #ChildHealth

Five Years On: Children and Young People Still Living with Long Covid | Channel 5 News

YouTube video by Long Covid Kids

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There has been a summer newsletter takeover ..... Sign up to get it in you inbox tomorrow morning 8am #Newsletter #Summer #LongCovidKids #Editor www.longcovidkids.org/join-our-new...

Five years on. Children and young people are still living with Long Covid. As Samir says at the end of this report: "That we're still here." Thank you to everyone who shared their story, and to Ruth Liptrot and @channel5news.bsky.social . 🎥⬇️ youtu.be/FZp32EIppZ8 #LongCovidKids #ChildHealth

Five Years On: Children and Young People Still Living with Long Covid | Channel 5 News

YouTube video by Long Covid Kids

youtu.be

🧡 Keep an eye out between 5 and 6pm this evening! Some of our members and our Chair of Trustees will be featured on Channel 5 News. We're advised this is when the report is expected to air. If you can, please help us spread the word by liking, commenting on posts. 🙏 for your support.

If you're aged 18+ and living with Long COVID, your experiences could help shape future rehabilitation pathways and improve support for others facing similar challenges. 📝 Complete the survey here: app.onlinesurveys.jisc.ac.uk/s/lboro/long...

Factors Influencing Experiences of Rehabilitation Among Adults with Long COVID: An Explanatory Sequential Mixed-Methods Study - Online Surveys | Online surveys

Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

A thoughtful perspective from teacher Flynn Lovelace on what they've witnessed in classrooms since the pandemic. Children deserve the opportunity to learn, participate and thrive. We're grateful to see these experiences shared. 🧡 Worth a read. thesicktimes.org/2026/07/24/t... @thesicktimes.org

The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times

We must help students by addressing Long COVID and advocating for clean air in schools.

thesicktimes.org

Plans to broaden educational opportunity are welcome. But opportunity begins long before #employment, meaningful participation in #education cannot be taken for granted. Our blog explores why participation is the foundation of opportunity for every child. www.longcovidkids.org/post/opportu...

Participation is the bridge between education and opportunity.

Meaningful participation in education is the foundation of opportunity for children living with Long Covid and other overlapping prolonged, fluctuating and energy-limiting illnesses.

longcovidkids.org

She smashed it! Congratulations Jana 🙌 🥇 There is still time to donate and help Jana hit her target. 🎯 Shes so close. www.justgiving.com/page/jana-sp... #LondonT100

Long Covid Kids@longcovidkids.bsky.social · 2w ago

🌟 Jana has started her triathlon 🌟 She would love to hit her target 🎯. www.justgiving.com/page/jana-sp... #LondonT100 #T100Triathlon #T100 #SwimBikeRun #LongCovidKids

🌟 Jana has started her triathlon 🌟 She would love to hit her target 🎯. www.justgiving.com/page/jana-sp... #LondonT100 #T100Triathlon #T100 #SwimBikeRun #LongCovidKids

Long Covid Kids@longcovidkids.bsky.social · 3w ago

"I'm running this because Samir can't. "Every stroke, every pedal, and every step is for him and for every child this illness has stolen too much from. "This is my way of giving something back while helping ensure children like Samir are seen and supported." www.dorsetecho.co.uk/news/2629384...

"I'm running this because Samir can't. "Every stroke, every pedal, and every step is for him and for every child this illness has stolen too much from. "This is my way of giving something back while helping ensure children like Samir are seen and supported." www.dorsetecho.co.uk/news/2629384...

Dorset charity backs mum taking on London T100 Sprint Triathlon for housebound son

Dorset-founded charity backs Barking mum taking on London T100 Sprint Triathlon for housebound son.

dorsetecho.co.uk

Congratulations to @andyburnham.bsky.social on becoming Prime Minister. We hope the lessons of COVID-19 help shape stronger systems for children and young people—through better healthcare, joined-up education and future preparedness. Childhood doesn't wait. #ChildHealth #PandemicPreparedness

This week the DfE published the first part of its updated statutory guidance on supporting pupils with medical conditions, focusing on allergy safety. There are several encouraging developments 🧵⬇️ #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth

One of the biggest lessons I've learnt over the last 6 yrs is that #LivedExperience doesn't simply strengthen research, clinical expertise and policy; it transforms them. www.dorsetecho.co.uk/news/2624849... (photos of behind the scenes moment from the APPG 😊) #LongCovidKids #YouthVoice

We're gathering case studies about education from children, young people and families living with #LongCovid and overlapping illnesses. Barriers, good practice and what needs to change. 📧:info@longcovidkids.org #LongCovidKids #MECFS #SEND #Education

“Participants set three goals they wanted to attain, such as being able to remain focused on watching an entire film or concentrating on a book. Therapists then helped participants to implement strategies to achieve their goals.” www.independent.co.uk/news/health/... #LongCovid

‘Long Covid left me with extreme fatigue and struggling to run my business’

Long Covid affects approximately two million people in the UK causing brain fog, fatigue and anxiety

independent.co.uk

Farewell but definitely not goodbye to the wonderful @helen-goss.bsky.social. A superb advocate and amazing human. Look forward to hearing what’s next.

Long Covid Kids@longcovidkids.bsky.social · last mo.

Today we want to say thank you to @helen-goss.bsky.social Roles may change, but friendships & shared purpose endure. 🙏, Helen, for your humour, courage and unwavering commitment to children, young people and families. You'll always be part of the LCK family. www.longcovidkids.org/post/thank-y...

A difficult but important read - @thetimes.com Sadly, many families in our community will recognise the challenges described here. As we shared at the recent APPG on Long Covid, childhood doesn't pause while a child waits to recover. www.thetimes.com/article/0072... #SEND #LongCovid

I was pushed to home school my sons — now I have no support

Our Send agony aunt offers advice to a mother whose two children are too ill to go to school, leaving her to spend thousands of pounds on home education

thetimes.com

Today we want to say thank you to @helen-goss.bsky.social Roles may change, but friendships & shared purpose endure. 🙏, Helen, for your humour, courage and unwavering commitment to children, young people and families. You'll always be part of the LCK family. www.longcovidkids.org/post/thank-y...

Thank you Helen, From The Long Covid Kids Community

For many people living with Long Covid, decisions like this are never easy. Balancing a commitment to others with the realities of a fluctuating health condition takes immense courage. Across our comm...

longcovidkids.org

📚 Have you explored the Long Covid Kids Resource Library? We've brought together free guidance, practical tools and trusted information for children, young people, families, educators & healthcare professionals. 🔗https://www.longcovidkids.org/download-resources #LongCovid #LongCovidKids #Resource

With the summer months fully here & huge heatwaves across many countries right now we just wanted to share some ways to keep cool: ☀️Stay out of the sun at hottest time(s) of the day (typically 11-3). 🧊Sip water from a water bottle with an ice core or a #heat #heatwave #Longcovidkids #summer

📢 Help us make sure children’s voices are heard in Parliament alongside @longcovidkids.bsky.social On 24 June, the APPG on Long Covid will hear evidence from children, young people and families affected by Long Covid. We need MPs to attend and hear directly about the impact Long Covid has. 1/

👀 ‘You're not imagining it.' 🗓️ Wednesday 22nd July 2026 We are pleased to support this hopeful and practical online conversation hosted by Asma Yunus, with Dr @binitakane.bsky.social & Dr Sanjay Gupta, as part of #SouthAsianHeritageMonth @sahm-uk.bsky.social www.eventbrite.co.uk/e/youre-not-...

You're Not Imagining It — Long COVID, ME & other invisible illnesses

Free online event bringing leading clinicians for a practical and hopeful conversation about Long COVID and other invisible illnesses

eventbrite.co.uk

✅ done. #Dorset

Have you sent a letter yet? Please help us make the most of this opportunity, for children affected now, and in the future. Send our template letter today and let us know the name of your MP / elected representative 🙏 #LongCovid #LongCovidKids #ChildrensRights

Long Covid Kids@longcovidkids.bsky.social · 2mo ago

Send our template letter to your elected representative today and ask them to attend the APPG on #LongCovid on the 24th June. Paediatric focus. They will hear directly from a young person with Long Covid, a presentation from LCK and NHS colleagues. www.longcovidkids.org/post/all-par...

Are you working in education and trying to improve attendance and attainment? This new resource is for you. #CleanAir #Attendance #Education #Resource www.twinkl.co.uk/resource/lea...

Leading With Becky Dawson and Kat Oakes on Clean Air in Classrooms

Practical strategies for clean air in classrooms. Created by experts for a supportive learning environment.

twinkl.co.uk