Just published in @jmirpub.bsky.social 🔔 “Battling the Bots and Defending Against Fraudulent Responses in an International Community-Engaged Web-Based Survey With People Living With Long COVID: Methodological Study” www.jmir.org/2026/1/e88838 @kellyobrien25.bsky.social

🔔 New in PLOS ONE today journals.plos.org/plosone/arti... Our world-first research shows the Episodic Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (PROM) among women living with HIV, and disability is widely experienced. 🧵1/14

New publication from CIHRRC member @darrenabrown.bsky.social in PLOS One today evaluating the psychometric properties of the EDQ among women living with HIV in the UK! See Darren's post on LinkedIn for more details: linkedin.com/posts/darren...

Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: A self-reported repeated measure study | Darren Brown OBE

🔔 New in PLOS ONE today Our world-first research shows the Episodic #Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (#PROM) among women living with #HIV, and ...

linkedin.com

#HIV #Disability #PublicHealth

Darren Brown OBE@darrenabrown.bsky.social · 3mo ago

🔔 New in PLOS ONE today journals.plos.org/plosone/arti... Our world-first research shows the Episodic Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (PROM) among women living with HIV, and disability is widely experienced. 🧵1/14

🔔 New in PLOS ONE today journals.plos.org/plosone/arti... Our world-first research shows the Episodic Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (PROM) among women living with HIV, and disability is widely experienced. 🧵1/14

Really important webinar by @who.int and International Disability Alliance to highlight effective approaches for disability-inclusive HIV responses www.who.int/news-room/ev...

Breaking barriers: advancing health equity for persons with disabilities in HIV care and treatment

The International Disability Alliance and World Health Organization invite you to join the webinar "Breaking barriers: Advancing health equity for persons with disabilities in HIV care and treatment" ...

who.int

Pre-Print available during peer-review “Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study” www.medrxiv.org/content/10.1... @bhiva.bsky.social @sophiaforum.bsky.social

Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: a self-reported repeated measure study

Background Disability is an increasingly common health outcome as women age with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic natur...

medrxiv.org

Today is #WorldPTDay and the theme for 2025 is healthy ageing Want to learn more about how Physiotherapy prevents falls and frailty? Today is the day. Take a look at the images, or say hello to your friendly physio 💙 Happy World Physiotherapy Day 🌍🌎🌏 @worldphysio1951.bsky.social

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States doi.org/10.1186/s129... @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @longcovidphysio.bsky.social

Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health

Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

doi.org

New publication: Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study doi.org/10.1111/hex.... @longcovidsupport.bsky.social @lcaireland.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social

Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i...

doi.org

Great to see this qualitative study: "Conclusion Pacing is a challenging and complex strategy used to mitigate symptoms of Long COVID. Healthcare providers should work collaboratively with patients to further refine and implement this strategy, when appropriate."

Darren Brown OBE@darrenabrown.bsky.social · 12mo ago

Another new publication out today 📣 Experiences of #pacing to reduce symptoms among adults living with #LongCOVID in Canada, Ireland, the UK and the US @kellyobrien25.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social @longcovidsupport.bsky.social link.springer.com/article/10.1...

Another new publication out today 📣 Experiences of #pacing to reduce symptoms among adults living with #LongCOVID in Canada, Ireland, the UK and the US @kellyobrien25.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social @longcovidsupport.bsky.social link.springer.com/article/10.1...

Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health

Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

link.springer.com

Published today 📣 Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...

Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i.....

onlinelibrary.wiley.com

Just out! Our peer-reviewed critique of the Cass Review has been published by BMC Medical Research Methodology. Please read and share. We show that the Cass Review is fatally flawed and should not be the basis for policy or practice in transgender healthcare. link.springer.com/article/10.1...

“Skeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest” Objective science debunking deconditioning theories! 💥 🎤 @patientled.bsky.social www.medrxiv.org/content/10.1...

This could be your chance to be part of World Physiotherapy congress programme committee and help develop the programme for World Physiotherapy Congress 2027 in Guadalajara, Mexico, in May 2027. Find out more and apply: world.physio/news/call-be-par...

Published today in @plosone.org “Episodic disability framework in the context of #LongCOVID: Findings from a community-engaged international qualitative study” @kellyobrien25.bsky.social @longcovidsupport.bsky.social @patientled.bsky.social journals.plos.org/plosone/arti...

@darrenabrown.bsky.social Darren Brown you are deserving! Thank you for being authentic, a visionary and a leader in our noble profession of physiotherapy! The Order of the British Empire!!! Continued blessings!!!!

What an honour to meet #kingcharlesiii at #buckinghampalace yesterday and share a laugh together #obe #investiture #royalfamily

Many Congratulations to our founding Chair @darrenabrown on this marvellous recognition for his outstanding work in the HIV and LongCovid fields. Very well deserved. Thank you for all that you have done for our LC community 🙏🎖️

Darren Brown OBE@darrenabrown.bsky.social · last yr.

Yesterday was the most incredible experience, receiving my #OBE from the #King #royalfamily at #buckinghampalace with my loved ones. The day was spectacular and full of lifetime memories.

Yesterday was the most incredible experience, receiving my #OBE from the #King #royalfamily at #buckinghampalace with my loved ones. The day was spectacular and full of lifetime memories.

Here we go people … after many years of hard work by so many people the #LongCOVID Video Series translations has its first fully complete series in French 🎉🎉🎉 Huge thanks to @apresj20.bsky.social Myléne 🇫🇷 Annie-Claude 🇨🇦 @fisiocamera.bsky.social

Long COVID Physio@longcovidphysio.bsky.social · 2y ago

🔔 Nouveau aujourd'hui 🔔 Le complet Série de Vidéos sur le COVID Long en français #LongCOVID @apresj20.bsky.social @fisiocamera.bsky.social Les nouveaux épisodes sortis aujourd'hui ont des vidéos, des audios et des transcriptions écrites 👇 longcovid.physio/french-video...

It’s #NewYearsEve so what better time to share #NewYear new #Headshots #newprofilepic Happy New Year 🎉💙🥳

I am so very proud to see this published The Long COVID Physio International Forum #LCPForum was a huge undertaking by so many and this is the final output 🎉 Congrats to all involved #LongCOVID #GlobalPT

Long COVID Physio@longcovidphysio.bsky.social · 2y ago

We promised that the #LCPForum was research generating … … so here it is 💙📰 Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum #LongCOVID journals.lww.com/cptj/fulltex...

🚨New pre-print🚨 “It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with #LongCOVID – Results from an international community-engaged qualitative research study www.medrxiv.org/content/10.1...

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study

Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from...

medrxiv.org

Today is International Day of Persons with Disabilities. This year's theme is transformative solutions for inclusive development. Learn more: ow.ly/ENqS30sI559

Great to see this release by the Chartered Society of Physiotherapy “Professional Guidance on Treating Transgender Patients” www.csp.org.uk/news/2024-11...

CSP releases professional guidance on treating transgender patients

The CSP has published professional guidance for members on treating transgender patients to ensure fair and appropriate treatment

csp.org.uk

Hello #Bluesky 🦋 Im new here and loving the opportunity to interact and engage in a new and familiar way By way of introduction, i’m Darren 👋 A Physio working in industry. Always focused on #HIV, #Disability Inclusion and #Rehabilitation. Been less on socials lately. But happy to be here 💙