Just published in @jmirpub.bsky.social 🔔 “Battling the Bots and Defending Against Fraudulent Responses in an International Community-Engaged Web-Based Survey With People Living With Long COVID: Methodological Study” www.jmir.org/2026/1/e88838 @kellyobrien25.bsky.social
Kelly O'Brien
@kellyobrien25.bsky.social
Physical Therapist and Researcher, Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation University of Toronto https://www.physicaltherapy.utoronto.ca/kelly-obrien
🔔 New in PLOS ONE today journals.plos.org/plosone/arti... Our world-first research shows the Episodic Disability Questionnaire (EDQ) is a valid and reliable patient-reported outcome measure (PROM) among women living with HIV, and disability is widely experienced. 🧵1/14
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @kellyobrien25.bsky.social @drjillcameron.bsky.social
3 key points from #COVIDForum Keynote speaker Rob Wüst ⬇️
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @kellyobrien25.bsky.social @drjillcameron.bsky.social
Jill Cameron moderates our panel discussion: Caregiving for Persons Living with Long COVID with Sammie McFarland, Tracy Rutledge, Chris Trussell, Kelly Kaup, Fran Wolfe #COVIDrehab
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @kellyobrien25.bsky.social @drjillcameron.bsky.social
Shlomit Rotenberg’s #KeyMessages from the #COVIDRehab forum:
@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @kellyobrien25.bsky.social @drjillcameron.bsky.social
Tim Rhodes shares research on How Young People’s Social Worlds Alter With Long Covid. #COVIDrehab
Tim Rhodes shares research on How Young People’s Social Worlds Alter With Long Covid. #COVIDrehab
Last in the session, Hannah Cowan discusses Navigating fragmented care: How young people with Long Covid build and maintain alternative networks of care. #COVIDrehab
Monica Busse-Morris at the #COVIDRehab forum: � We must integrate equity from inception through dissemination;it must be foundational to how we design,conduct and interpret rehabilitation research for conditions that disproportionately affect marginalized communities @uoftcovidrehab.bsky.social
Monica Busse-Morris shares research on Delivering the LISTEN trial of self-management support across the UK: Methodological challenges and lessons for the future. #COVIDrehab
Key messages: 📌 Gaps in knowledge translation appear to exist with respect to Long COVID and infection association chronic conditions across all three rehabilitation professions (PT, OT, and SLP).
Meera Premnazeer from the #COVIDRehab forum talking about how BrooksCleator et al. (2018)’s model of cultural safety should guide the development of rehabilitation interventions for Indigenous adults with #LongCOVID @uoftcovidrehab.bsky.social
Really enjoyed listening to Prof Wust @UofTCOVIDRehab Forum. Thought I'd share some of the key messages 🧵 #LongCovid #PwME #MECFS #PEM #SafeRehab #TeamClots
Meera Premnazeer shares findings from Exploring the Cultural Safety of Rehabilitation Interventions for Indigenous Peoples living with Chronic Conditions: A Scoping Review. #COVIDrehab
Lisa Caldana opens up Research Evidence Session 2: Rehabilitation across COVID Care Contexts. She's speaking about her work on Long COVID and Infection-Associated Chronic Conditions Curricula within Entry-to-Practice Rehabilitation (OT, PT, SLP) Programs in Canada: An Environmental Scan
Competencies need to be developed around infection-associated chronic conditions content to help guide consistent curriculum
@uoftmedicine @RSIUofT @UofT_PT @osot_UofT
Lisa Caldana from the #COVIDRehab forum talking about gaps in knowledge translation appear to exist with respect to #LongCOVID and infection-association chronic conditions across all three rehabilitation professions (PT, OT, and SLP) @uoftcovidrehab.bsky.social
@uoftmedicine @RSIUofT @UofT_PT @osot_UofT
Lisa Caldana from the #COVIDRehab forum talking about gaps in knowledge translation appear to exist with respect to #LongCOVID and infection-association chronic conditions across all three rehabilitation professions (PT, OT, and SLP) @uoftcovidrehab.bsky.social
First up, we hear from #COVIDrehab Keynote Speaker, Rob Wüst, on skeletal muscle alterations and post-exertional malaise in patients with Long COVID
RobWust speaking at the #COVIDForum � Exercise intolerance and post-exertional malaise in #longCOVID and ME/CFS reflect intrinsic biological dysfunction, not simple deconditioning. � Skeletal muscle and autonomic dysfunction are central drivers of PEM @uoftcovidrehab.bsky.social
📌 There is a shared, multi-system pathophysiology with clear implications for patient management.
📌 Skeletal muscle and autonomic dysfunction are central drivers of post-exertional malaise.
An insightful panel "Caregiving for Persons Living with #LongCOVID" at #COVIDRehab �Caregiving is a journey that changes over time �There is a partnership between person with LC and their families and a good partnership is key � The caregiver also needs to be supported @uoftcovidrehab.bsky.social
Jill Cameron moderates our panel discussion: Caregiving for Persons Living with Long COVID with Sammie McFarland, Tracy Rutledge, Chris Trussell, Kelly Kaup, Fran Wolfe #COVIDrehab
Thank you to the panelists for sharing their experiences. Key messages: 📌 Caregiving is a journey that changes over time. 📌 There is a partnership between the person with Long COVID and their families and a good partnership is key. 📌 The caregiver also needs to be supported.
@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @breathewellphysio.bsky.social
Don't miss your chance to learn about the latest in COVID rehabilitation research. Last day to register for in-person attendance at the 2026 International Forum on COVID Rehabilitation Research is Tuesday April 14, 2026! Visit this link to register - tinyurl.com/2s3ubuuf.
On #LongCovidAwarenessDay, here’s the video I did recently when I reached 6 years of debilitating, disabling and life-changing #LongCovid illness. Millions of people worldwide facing systemic neglect. #LongCovidHeartbeats #LongCovidAwareness
Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts