📢 Participants needed for Long COVID research I'm helping an MSc student recruit adults living with Long COVID for an important study exploring experiences of rehabilitation and recovery. 🔗 app.onlinesurveys.jisc.ac.uk/s/lboro/long...

Factors Influencing Experiences of Rehabilitation Among Adults with Long COVID: An Explanatory Sequential Mixed-Methods Study - Online Surveys | Online surveys

Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

Why aren’t people with Long COVID simply going back to work? Because for many, the problem is not motivation. It is a condition where even small physical or cognitive effort can trigger a delayed crash. Ignoring this reality has a cost human and economic. longcovidjourney.com/the-economic...

Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, & moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise. Learn about the different types of PEM, how to navigate a crash, and interventions for reducing PEM. Sign up here: ow.ly/nAvg50ZtEb8

“He has difficulty with chewing and swallowing… it’s a struggle to make sure that we’re getting the right nutrition, the right hydration into him… basically to be keeping him alive.” @karenlhargrave.bsky.social on caring for her husband James, who developed very severe ME following COVID. #MECFS

Great to have this research with such a useful control group: Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest www.nature.com/articles/s41... #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE

Rob Wüst, corresponding author of the new paper: "Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest" www.nature.com/articles/s41... Link to his full post www.linkedin.com/posts/rob-w%... #MEcfs #LongCovid

Our review covering the major Neuroinflammatory events in Long Covid is finally online and open access here! www.nature.com/articles/s41... #NeuroCovid #LongCovid 🤓🧠

UK people with Long Covid or ME/CFS: please consider helping the HERITAGE project. They need to recruit 1,000 people who have not accessed an NHS specialist service within the last 3 years. heritage.leeds.ac.uk/join/

What is the take home summary of this research? 🔍 Despite the benefits of web-based survey study designs, the risk of fraudulent responses threatens the integrity of online research.

Just published in @jmirpub.bsky.social 🔔 “Battling the Bots and Defending Against Fraudulent Responses in an International Community-Engaged Web-Based Survey With People Living With Long COVID: Methodological Study” www.jmir.org/2026/1/e88838 @kellyobrien25.bsky.social

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024) www.frontiersin.org/journals/imm... #MEcfs #CFS #PwME #SevereME #SevereMECFS #SevereCFS #VerySevereME

Energy Points Chart ltcovh.prod.acquia-sites.com/sites/defaul... Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities. #MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie

🚨1 in 3 people are Clinically Vulnerable. Five years after Freedom Day, the right to take part in public life safely has not been protected. Have concerns about wearing a mask Attending a protest? Accessing public spaces? Tell us in our new IMPORTANT survey ⬇️

🚨TODAY, the UK removed people aged 75–79 from routine Covid vaccine eligibility. While countries like Canada continue offering vaccines to higher-risk groups, the UK keeps narrowing access. Policy choices have consequences! #ClinicallyVulnerableAwarenessDay <19th July>

The latest NHS England GP Patient Survey data is now available - and our team have started having a look through it. The numbers show us that an average of 3.53% of people aged 16 and over have Long Covid in England. Follow us for more stats as we process the data. #LongCovid #StillHere

An interesting new paediatric Long COVID study found more microclots, more neutrophil trap formation and more vessel-lining injury. In lab work, COVID spike bound to antibodies helped trigger that injury. Let's break it down.

Excellent letter from Dr Mark Harper and the Cambridge ME and Long Covid Support group & co-sigs. It is a response to the RCPsych letter to our open letter signed by 58 orgs. It primarily deals with their claim as experts in the BPS model & well worth a read.

cbme-mark.bsky.social@cbme-mark.bsky.social · 3w ago

Three ME support groups have written an open letter to the Royal College of Psychiatrists challenging its defence of last month’s Congress session on ME and Long Covid. A vague “biopsychosocial” framework cannot rescue treatments the evidence has already rejected.

LONG COVID PROJECT ECHO CPET and Metabolic Dysfunction @batemanhornecenter.bsky.social partnered with the @uofuhealth.bsky.social to conduct a #LongCOVID and Post-Infectious Syndromes ECHO WATCH HERE www.youtube.com/watch?v=fazA... Share with your health care provider. @sunsopeningband.bsky.social

Cardiopulmonary Exercise Test (CPET) & Metabolic Dysfunction with Long COVID - April 7, 2026

YouTube video by Bateman Horne Center

youtube.com

15 years after the Pace trial, CBT enthusiast still shoe no interest in a proper clinical trial. Even with the usual fatal flaws, only one of five primary outcomes sneaks into statistical significance. With correct corrections for multiple comparisons, which the authors fail apply, none do. A bust.

ME/CFS Science@mecfsscience.org · 3w ago

1) 🇩🇪 There's a new randomised trial of cognitive behavioural therapy (CBT) for Long Covid, from the Johannes Gutenberg University Mainz in Germany. It claims that CBT lowered fatigue but it has the usual fatal limitations that make the results unreliable.

🔥 £10 BILLION wasted 🔥 Yet a mere £1.5bn would have put clean air filtration in every classroom, ward and clinic in the country. 💙 Save lives 💜 Cut sickness absences 💗 Reduce NHS pressure We MUST invest in safer air today to protect every child, patient & worker tomorrow.

The lack of adequate PPE for key workers & care users was one of the most glaring failures of the pandemic. Key findings here from the first chapter of the Covid-19 Inquiry’s Module 5 report - which was published this week & covered emergency procurement & distribution 🧵1/

🚨🩺 Covid 'VIP' PPE scandal cost healthcare worker lives UNISON is calling for an open and transparent system for awarding contracts to avoid costly mistakes if there's another pandemic. Read more ⬇️ unison.org.uk/press/2026/0...

Find out more thedoctor.bma.org.uk/articles/hea...

Doctors unprotected against COVID-19

Inquiry finds government preparation for pandemic left NHS workers and patients in danger

thedoctor.bma.org.uk

The “omnishambles” in procurement, supply and distribution of PPE during the pandemic left people dangerously unprotected and wasted £10bn. Yet, six years on, we are still unprepared for the next crisis. We need to act now.

2/ Swipe to read a summary of the Inquiry’s recommendations 👉

1/ This week, the Chair of the UK Covid-19 Inquiry, Baroness Heather Hallett, published her fifth report. Baroness Hallett is calling for the prompt and thorough implementation of 11 key recommendations.

🧠 What if #LongCovid is, in part, a disorder of dopamine? Our new commentary explores how disrupted dopamine signaling may help explain fatigue, brain fog, and autonomic dysfunction, and what this could mean for future therapies. Open access link: shorturl.at/vLAfU

Chantzy@chantzy.bsky.social · 4w ago

"Our findings provide compelling evidence that long COVID involves the loss of dopamine-releasing neurons," says Dr. Jeffrey Meyer, senior scientist at the Brain Health Imaging Center, Canada Research Chair medicalxpress.com/news/2026-07...

Interesting preliminary study shows that people with #LongCOVID have actual damage to the vagus nerve fibers that normally control the stomach. When they looked at stomach biopsies, they found far fewer nerve fibers, especially the cholinergic (vagal) ones, compared to HC.

Vagal cholinergic denervation of the gastric mucosa in Long-COVID-19: in vivo evidence of structural autonomic dysfunction

Since the end of 2019, a coronavirus pandemic (SARS-CoV-2), responsible for severe acute respiratory syndrome, has spread worldwide. This pandemic, due to the spread of SARS-CoV-2, is similar to two p...

ijidonline.com

In this Project ECHO Long Covid Webinar Series, PLRC co-lead @loscharlos.bsky.social talks to Dr. Alba Azola about the evidence suggesting some #LongCovid patients may have undiagnosed vascular compression. Dr. Azola estimates about 15% of LC patients may have some form of vascular compression.

PLRC co-lead @leticiasaurus.bsky.social recently presented on the state of #LongCovid clinical trials — and shared that findings from many trials remain inconclusive due to limitations in study design, most notably the widespread failure to account for post-exertional malaise (PEM).