Long Covid Advocacy Ireland-LCAI

@lcaireland.bsky.social

The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients. https://longcovidadvocacyireland.com

🚨1/5. Cutting PIP will:   ⚠️ Push people further away from work   ⚠️ Increase poverty   ⚠️ Drive decline in health & independence   See what people said below ⬇️   📧 Contact your MP today & ask them to oppose the proposed welfare changes!!   #LongCovid #TakingThePIP

Image of a dark wall and floor and in the lower half is an empty white office chair at a wooden desk that has a notepad and pen and a white lamp on top of it. In the top half of the image is a quote in yellow text saying “Any reduction in benefits will lessen chances of recovery and return to productive life and work”. Below the quote it says hashtag Taking The PIP in black text on a yellow backgound. In the bottom right corner is the Long Covid Support logo and website address www.longcovid.org. Across the very bottom it says Long Covid Support is a registered charity in England and Wales 1198938.
Long Covid Support@longcovidsupport.bsky.social · last yr.

1/4. ❌ PIP cuts will be devastating for people with #LongCovid and #ME. Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health. We’re calling on MPs to oppose the cuts - help us flood their inboxes! Link to briefing & how to act below ⬇️

Blue background with white writing: PIP cuts will be devastating for people with Long Covid & ME. Read the briefing & take action. 4 logos: Long Covid Support, Action for ME, MELN, #ThereForME

JAMA Pediatrics published a patient info page about Long COVID in children… “Long COVID is common, affecting up to 10 to 20 per cent of children with a history of COVID-19. … this is higher than the number of children with asthma…” TY @blakemurdoch.bsky.social ! edmontonjournal.com/opinion/colu...

Opinion: UCP's COVID vaccine cuts put children at serious risk

A policy of ending pediatric COVID vaccination will disable, hospitalize and even kill Albertan children, leaving blood on Smith’s hands.

edmontonjournal.com

Long COVID is Now the Number One Chronic Illness in Children. "So many children are getting Long COVID because COVID causes Long COVID, and children are not “immune” to COVID, they are not becoming healthier with each infection, and the adults around them are doing nothing to mitigate the virus."

Long COVID is Now the Number One Chronic Illness in Children

Repeatedly mass infecting kids with COVID is not a public health strategy. It's a fast pass to declining population health

thegauntlet.news

🔔REMINDER - TONIGHT🔔 Join us tonight at 7pm for our monthly online support meeting for spouses/partners & parents. Those on our mailing list will have received the link or you can email us to request it at longcovidadvocacyireland@gmail.com #LongCovid #pwLC #SpeirGorm #SpéirGorm #LongCovidSupport

a cartoon of three penguins hugging each other with the words group hug written on the bottom

ALT: a cartoon of three penguins hugging each other with the words group hug written on the bottom

media.tenor.com

If you can’t afford a respirator, look for a local mask bloc. These are volunteer organizations committed to helping people access the best protection they can. If you CAN afford it, consider donating to them as well! maskbloc.org

Worldwide Mask Bloc Directory – Find your local Mask Bloc

MaskBloc.org lists active Mask Blocs around the world. Free high-quality masks, COVID-19 tests and other equipment for your community. Mutual Aid & We Keep Us Safe.

maskbloc.org

"We have the tools to reduce the number of infections in schools, but we are simply not using them properly, or at all." We have issued this press release in response to the "highly alarming" school absence figures (from 2022-23) released yesterday by the Minister for Education.

Page one of the press release reads as follows:

PRESS RELEASE - FOR IMMEDIATE RELEASE
ISSUED 19/5/2025
by CLEAN AIR ADVOCACY IRELAND
~ BEGINS ~
Clean Air in Schools could boost Attendance
● Illness is the leading cause of School Absence in Ireland
● Fall in Attendance Shows Need for Urgent Action on Clean Air in
Schools
The recent School Attendance report from Tusla shows a dramatic increase in school
absence, and is an urgent warning sign which should not be ignored by the Department of
Education. The high level of absenteeism is being driven by illness, and this should trigger
immediate action to improve indoor air quality in schools to reduce the spread of common
airborne infections such as flu, RSV, and Covid-19.
Illness consistently accounts for around 60% of absences in schools, and that remains the
case in the latest report for the 2022/23 school year, with illness accounting for 61% of
known absences from Primary Schools and 59% of known absences from Secondary
Schools.
In the 2022/23 school year, absences from Primary Schools were 46% higher than the
18-year average from 2003 to 2019. Absences of longer than 20 days are 128% higher than
the same 18-year average in Primary Schools, and 43% higher in Post-Primary Schools.
Clean Air Advocacy Ireland is calling on the Department of Education to implement
guidelines for schools to manage the air quality in indoor spaces such as classrooms,
canteens, staff rooms, and toilets. Improving indoor air quality through monitoring, ventilation
and filtration has been shown to effectively reduce the transmission of common airbornePage 2 of the press release reads as follows:

...illnesses. We have the tools to minimise airborne pathogens and reduce the number of
infections, through mechanical ventilation and air filtration, but we are simply not using them
properly, or at all.
There is also existing legislation in Ireland which governs indoor air quality in workplaces,
and schools are places of work for teachers, assistants, and other support staff. Employers,
including school boards, have a legal obligation to monitor indoor air quality and to
implement changes where the air quality is below acceptable levels.
Kieran Ryan, a member of Clean Air Advocacy Ireland, says the Tusla school attendance
report indicates that something is going badly wrong in terms of sickness levels in Irish
schools.
“If we’re talking about increased absences in schools then we need to address the elephant
in the room, which is an overall increase in illness at a population level. As well as common
illnesses such as RSV and seasonal flu, Covid-19 has now added to the burden of illness
faced by students, parents, and teachers.”
“We know that many of these illnesses are spread via airborne transmission, so when
children are packed into poorly-ventilated classrooms sickness spreads like wildfire. Infected
children then bring the illness back to their own homes, and this seeds the further spread of
illness within the community. If we can reduce transmission in schools, then we can reduce
the overall burden of disease within our communities. It’s a win-win.”
“It is not the duty of school principals or teachers to be their own public health experts or
ventilation engineers: They must be given effective guidance & resources by the Department
of Education to ensure that the indoor air quality in schools is safe. The Department is failing
school employees and students by not issuing such guidance or resources.”
~ ENDS ~

An incredibly poor "opinion piece" that should not have been published by @bmj.com. Repackaging CBT and GET again as treatment is harmful and detrimental to ME/CFS patients. @paulgarnerwoof.bsky.social propagating his dubious beliefs does nothing but undermine the ME/CFS and Long Covid community.

Patients with severe ME/CFS need hope and expert multidisciplinary care

Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...

bmj.com