Patient advocates #pwME #pwLC (who are not lawyers) this could be a great opportunity to explore systemic reforms needed for our communities 👇

Rachel Lopez@rlopez.bsky.social · 3w ago

What if legal scholarship were built with—not just about—the people most affected by legal injustice? Apply to join legal scholars & experiential co-authors at the 2027 Participatory Law Scholarship Convening, March 12 in Philadelphia. Due Dec. 4: forms.gle/2Fpv25Ryvg9v...

Travel funds are available for experiential co-authors without institutional support, and you don't need a collaborator yet to apply. Please share, especially with people with lived experience who may not see academic calls. Learn more: participatorylawscholarship.com

What if legal scholarship were built with—not just about—the people most affected by legal injustice? Apply to join legal scholars & experiential co-authors at the 2027 Participatory Law Scholarship Convening, March 12 in Philadelphia. Due Dec. 4: forms.gle/2Fpv25Ryvg9v...

One of the downsides to socialized medicine is that the state REALLY wants to skimp on medical care, and the media is in their pockets.

Scuzzy Mortspider 🕷️ 🎃@jussienorthside.bsky.social · last mo.

Janice Turner has no background or training in medicine, neuroscience, psychology or psychiatry.

The financial incentive in the UK is to do as little diagnosis and treatment as possible, especially if/when a disease or disorder will not be cured/is lifelong.

Just listened to this full interview & it’s fantastic. @georgemonbiot.bsky.social doesn’t mince words, reminding us the #GreatestMEdicalScandal of the century is not just about neglect, it’s abuse by the medical system & complicity from all of society. Full interview (9 mins): youtu.be/H2rRf_f2hJs

Adam@abrokenbattery.bsky.social · last mo.

Symptoms are “horrible” and severe cases are a “living nightmare.” @georgemonbiot.bsky.social speaks to @natashadevon.bsky.social on LBC about ME/CFS, its long history of being dismissed and psychologised, and the role of governments and insurers.

Isn't it nice when there's something we can ALL agree on? #ReleaseTheUnredactedEPSTEIN-Files

The end of citizens united.

W.E.D.em Boyz@leftistwonk.bsky.social · last mo.

Trump's net approval is -22.4%. He's twice as unpopular as he was at this point in his first term, making him the least popular president at this stage in the history of presidential polling. What more would it take for Dems and liberal institutions to stop being accomodationists?

I was diagnosed with CFS, renamed ME, wait for it… in 1983, after a very severe non-mononucleosis EBV infection, that fully incapacitated me. The EBV laid dormant, but reared its ugly head during my infection w Lyme/Babesia complicating a full recovery. TY for this story @georgemonbiot.bsky.social

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

I've emailed this brilliant article to the board of directors & the council of governors at & my local 🏥 Chelsea & Westminster. They offer great care in other areas of medicine but where #ME is concerned they fail abysmally & they have a responsibility to change that. #pwME

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

“Many said they are still being treated as if they have a psychological illness, and still being pushed into GET and CBT.” 😡

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

George will be coming on my show this weekend to discuss this very important article.

George Monbiot@georgemonbiot.bsky.social · last mo.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

If folks need an impression of how dismal things are wrt treatment of ME and LC in the NHS, you just need to look at the services stocktake that was done in January 2025. There was "no data" for ME/CFS clinic referrals.

Lucibee@lucibee.bsky.social · last yr.

The ME Association have managed to acquire (via FOIA request) the report of the NHS stocktake of ME/CFS and Long Covid services that was completed at the end of January 2025. As expected, it is utterly inadequate. meassociation.org.uk/2025/05/nhs-...

#GreatestMEdicalScandal

George Monbiot@georgemonbiot.bsky.social · last mo.

With great thanks to the hundreds of people who gave me their testimonies. If I hadn't said "stop" after a few hours, it might have been thousands. The sheer scale of this scandal is hard to get your head around. 2/2

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

theguardian.com

The entire thing exists solely to paint marginalized people and those who mask as hysterical weirdos. There is absolutely no reason whatsoever for a national publication to be covering a teeny tiny local community scuffle.

Hey so uhhhhh that Boston Globe story about the lesbian bar relaxing its covid rules is an *absolute fucking hit piece* targeting the disabled, chronically ill, and covid-conscious and it would be great if folks sharing and joking about it could recognize that framing.

Can y’all PLEASE start recognizing how hard you’re being propagandized against disabled people & maybe stop contributing to the hate?

Erin Biba@erinbiba.bsky.social · last mo.

Hey so uhhhhh that Boston Globe story about the lesbian bar relaxing its covid rules is an *absolute fucking hit piece* targeting the disabled, chronically ill, and covid-conscious and it would be great if folks sharing and joking about it could recognize that framing.

Five cops in Indianapolis were just criminally charged with abusing Flock to spy on their ex-wives, their wives' ex-partners and women they met on duty. Audit was triggered by us at the @washingtonpost.com, the prosecutor said. From last month: wapo.st/4yfNHng

This could have been me but I turned into a raging bitch instead & for better or worse it saved my life

Kelly@broadwaybabyto.bsky.social · last mo.

Statistics show men are far more likely to leave their wives when they become disabled than the other way around. This man didn’t leave his wife, he just belittled and berated her “obsession” with being sick She felt trapped in a broken body & then her partner disrespected her. Now she’s gone:

Brings up why NINDS is the lead here. Neurological disorders are the leading cause of chronic disease, with 1/3 people having a disease considered neuro (1/3 of chronic illnesses? maybe that's what she meant.) Talks about clinical translational efforts that might not have 'commercial appeal' at NIH

While there are horror stories from many countries, the Netherlands and Sweden really stand out. They might be very "civilised" in some respects, but on ME/CFS they seem to be in the Dark Ages.

Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS

George Monbiot@georgemonbiot.bsky.social · last mo.

Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.

How is this not illegal?

Matt Lazell-Fairman@mfairma.bsky.social · last mo.

Yale’s Covid clinic recommended CHOP to me a couple years ago as highly effective for ME. They also pushed it again earlier this year in regard to severe weakness episodes I’ve been having. Here‘s my tweet after the fact.

The billions of dollars we send to a foreign military to drop bombs on somebody else should have been spent to build schools, housing, and to provide healthcare HERE.

Oh, that’s just Stephen Speilberg in a respirator at the Lucas Museum opening during a Covid surge, like a BOSS.

This is *pretty* good info, but if you’re going to send your kid back without serial testing to make sure they’re covid neg, or if they still have any symptoms of any infection, you should be sending them back in a mask if they’re old enough to handle wearing one.

Ian Weissman, DO@drianweissman.bsky.social · last mo.

"Sending your child to school when they are sick can spread illnesses to classmates and school staff, and these infections can have serious consequences for people who have underlying health conditions that raise their risk of complications." theconversation.com/does-my-kid-...

Another good reason to where an N95 mask when traveling.

Kathleen Bachynski@bachynski.bsky.social · last mo.

“The exposure occurred in Terminals B and F, and in areas connecting to Terminals C, D, and E, on Sunday, Sept. 13, from 7:25 p.m., to Monday at 12:05 a.m. A person with measles was traveling through Philadelphia and didn’t leave the airport, according to the health department”

You can submit a comment here by tomorrow/Friday: forms.cloud.microsoft/Pages/Respon... Info on the reorganization: www.niaid.nih.gov/about/niaid-... Comment template from SolveME:

#MEAction Network@meactnet.bsky.social · last mo.

NIH UPDATE: NIAID has released a proposal to eliminate its Division of Clinical Research (DCR) & move the division’s programs and responsibilities into other parts of the Institute. #MEAction has sent a detailed letter to NIAID by email in response to the proposal. www.meaction.net/post/nationa...