Eb

@ebthen.bsky.social

That Eb. Accessibility. Alt text. Autistic. ADHD. ND. (More). Disability Justice. A-spec. Filipino-USian. They/Them. Esme and Bella live here. Justice before civility. Didn't say that thing you probably heard I said. https://linktr.ee/ebthen

🚨BREAKING: Missouri voters defeated a GOP bid to limit their ability to amend the state constitution. The measure was the GOP's attempt to diminish the power of voters who’ve used citizen initiatives to expand Medicaid and protect abortion access.

Missouri voters reject ballot measure limiting their power to amend state constitution

Notably, the proposed amendment would not have affected constitutional amendments that the legislature put on the ballot. State lawmakers only wanted to make it harder to pass a voter-led measure,…

democracydocket.com

All day I've meant to talk about the Doctor Who audio story that's a take on "There Will Come Soft Rains". Mainly just to say that it exists.

And it's okay if you don't have the "right" automatic internal response! You can start with doing the right thing, even when you don't automatically feel it.

I'm not saying this to brag about how I'm such a good person and so successful at decency. I'm saying this to show that being a decent person doesn't always come easy or instinctively. And sometimes you have to walk away and not say the first thing that comes to mind.

UBI is a great idea but if it doesn't recognize that we don't all get the same 24 hours or have the same expenses, then it risks being used as cover to cut the few programs we have that do recognize it, thus actually increasing some forms of inequality even as it does good things like raising the /

"But Falco," you may say, "so many of those are things that everyone needs." Well yeah, but there's A: far more disabled people than society wants to admit, and B: a bit of difference between it being PLEASANT to have, and NECESSARY for long term wellbeing.

CripTax covers SO many angles. Shower stools. More soap and TP because you work from home. More pads for people with endometriosis or PCOS. Bus fare and the TIME it takes when you don't drive. OTC meds. Even having to replace things more often because you've got the constanr dropsies.

Eb@ebthen.bsky.social · 21h ago

I like the concept of sufficiency being added here because it does open the door for a discussion of CripTax. CripTax is, basically, when it costs a Disabled person more to live at the same or equitable level of comfort as a non-Disabled person.

thread. I remember being really thrown off when I found out some countries give you extra paid time off (4 hours every 2 weeks I think, but I may be misremembering) each month if you have a condition like celiac that means you spend at least that much more time shopping/reading labels/etc

Eb@ebthen.bsky.social · 21h ago

I like the concept of sufficiency being added here because it does open the door for a discussion of CripTax. CripTax is, basically, when it costs a Disabled person more to live at the same or equitable level of comfort as a non-Disabled person.

Yeah, there's also a lot of things that ppl think Medicaid/Medicare covers that they don't that add added expense. OTC supplements that might be necessary, special diets, certain aides, etc. Ntm the cost of making your environment accessible. There's a lot of invisible expense.

i'm currently on 5 meds. i have already dialed back my doctor visits to the absolute lowest frequency it is legally allowed. my insurance refuses to cover _any_ of it, so i currently spend 900 BRL monthly ONLY on meds and med-relevant appts lol

Eb@ebthen.bsky.social · 21h ago

I like the concept of sufficiency being added here because it does open the door for a discussion of CripTax. CripTax is, basically, when it costs a Disabled person more to live at the same or equitable level of comfort as a non-Disabled person.