Meera Premnazeer shares findings from Exploring the Cultural Safety of Rehabilitation Interventions for Indigenous Peoples living with Chronic Conditions: A Scoping Review. #COVIDrehab
Helen The OT
@helentheot.bsky.social
Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight 💚
Really enjoyed listening to Prof Wust @UofTCOVIDRehab Forum. Thought I'd share some of the key messages 🧵 #LongCovid #PwME #MECFS #PEM #SafeRehab #TeamClots
📌 Supporting participation in Long COVID requires attention to the quality of everyday experiences, not only activity levels or symptom reduction.
📌 The type of activity people engage in explains more variation in how activities are experienced than symptoms or environmental conditions alone.
📌 Experiences of daily activities, such as energy restoration, social connection, pleasure, interest, productivity and competence, fluctuate across the day in people with long COVID, with the greatest variability seen in energy restoration.
Shlomit Rotenberg’s #KeyMessages from the #COVIDRehab forum:
Shlomit Rotenberg shares a research update on Experiences of Everyday Activities in Individuals with Long COVID. #COVIDrehab
In our first Research Evidence Session of the day, Kara Patterson shares a research update on gait and balance in people with Long COVID #COVIDrehab
📌 There is a shared, multi-system pathophysiology with clear implications for patient management.
📌 Skeletal muscle and autonomic dysfunction are central drivers of post-exertional malaise.
📌 Exercise intolerance and post-exertional malaise in long COVID and ME/CFS reflect intrinsic biological dysfunction, not simple deconditioning.
Goodbye clopi, hello Ticagrelor. Hoping for benefits,minimal side effects & nothing scary! 🙏 #LongCovid #POTS #MCAS #Migraine #TeamClots
Yaaaay! Finally I can watch The Pitt! 🎉 Anyone else in the UK excited about this? Because of course, what does an ex healthcare worker, who spent their whole career in hospital and is now chronically ill, spending a lot of time at hospital choose to watch? A show about a hospital 😂🏥 #LongCovid
⚡️The power of medical education! 30% of clinicians thought Long Covid wasn't real. After 90 mins of @putrinolab.bsky.social class 0% thought it wasn't real! 📺️ Full video: On Medical Education 🖇️👇️ #LongCovidAwarenessDay
📺️ Fantastic interview with Dr Rupert Higham from the Institute of Education at UCL and Prof David Putrino 'On Medical Education for Long Covid, ME and IACI' It is divided into named chapters for accessibility and there is also a transcript. #LongCovidAwarenessDay youtu.be/S5amDZFaVeE?...
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⚡️Long Covid is not disappearing! We still need prevention, action and research. 📺️ Full interview with @putrinolab.bsky.social 'On Medical Education' 🖇️ 👇️ #LongCovidAwarenessDay
On #LongCovidAwarenessDay 2026, we hear directly from the people trying to help. Dr Melissa Heightman is a respiratory consultant and researcher working with people living with #LongCovid. In clinic, she sees first-hand the impact the condition has on patients’ lives.
#LONGCOVIDAWARENESSDAY Stop scrolling 1️⃣ Read our open letter 2️⃣ Use our template to write to your MP 3️⃣ Demand funding for #LongCovid research Six years after the start of the pandemic millions are still living with Long Covid. On #LCAD26 we ask UK policymakers for sustained funding for LC research
Before their Covid infection, our members were free to choose how they used each heartbeat. Now, #LongCovid limits what they can use each beat for. The change from before to after is obvious #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Every tablet in this photo tells a story about what Long Covid has taken from my life. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Before infection, our members chose how to use each heartbeat. Now #LongCovid limits what each beat can be used for. Turn your phone landscape for the best viewing experience. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
At the @longcovidphysio.bsky.social Forum in 2022, a key focus was identifying priorities for Long Covid and rehabilitation. journals.lww.com/cptj/fulltex... #LongCovid #LongCovidResearch #LongCovidRehab #Rehabilitation #OccupationalTherapy
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This memory pops up every year & it always takes my breath away. 6 years ago I was about to start my dream job in neurorehabilitation. I had an active social life, went to the gym regularly & was even looking at houses to buy. Life was great! #LongCovid #PwME #POTS #Pacing #OccupationalTherapy
In September 2024, I was invited to speak at another webinar, this time for @longcovidweb.bsky.social youtu.be/v8qf78lehpU?... #LongCovid #PwME #POTS #Pacing #OccupationalTherapy
Long COVID Web Webinar Series- Highlighting the Current Landscape of Rehabilitation in Long COVID
YouTube video by Long COVID Web
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In the Summer of 2023, I played a small role in the making of the @longcovidphysio.bsky.social Pacing episode in their video series. youtu.be/USLg5FT86TQ?... #LongCovid #PwME #POTS #Pacing #OccupationalTherapy
Pacing
YouTube video by Long COVID Physio
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In March 2023, I was honoured to speak at a webinar hosted by CAOT called “Long Covid & Episodic Disability: Considerations for Rehab” with Prof @kellyobrien25.bsky.social caot.ca/site/prac-re... #LongCovid #PwME #POTS #Pacing #OccupationalTherapy
Free Webinars - CAOT
CAOT | CAOT provides leadership in the development and promotion of the occupational therapy profession in Canada and internationally.
caot.ca
Throwing it back to September 2022 and the @longcovidphysio.bsky.social International Forum. I was part of the planning committee for this event & also had the privilege of Chairing the Daily Activities & Work workshop. youtu.be/cw0Ltg1NyPI?... #LongCovid #PwME #POTS #Pacing #OccupationalTherapy
Day 2 - Workshop: Daily Activities and Work
YouTube video by Long COVID Physio
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Orthostatic intolerance in ME/CFS & Long COVID isn’t just a heart rate issue. Jennifer Bell, FNP-C, reviews vascular volume support, venous return, heart rate management & individualized medication selection. Watch the full presentation: https://youtu.be/NcStTltuDYE @openmedf.bsky.social #MERC