Janice Cowden
@janicetnbcmets.bsky.social
🌍 Avid Traveler | Proud Nana of 3 | #MetastaticBreastCancer #PatientAdvocate / Knowledge Seeker | Retired Nurse | Dx #mTNBC 2016, “Dancing w NED” since 11/2016 | 🚫politics | @METAvivor @The_Right_Dose @OncoAlert #bcsm
THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...
Time to Reconsider MRI to Detect Asymptomatic Brain Mets in Breast Cancer?
Initial MRI showed asymptomatic brain lesions in 14% of patients, increasing to 25% at 6 months
medpagetoday.com
Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!
Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...
Empowering Patients: ASCO’s Inclusive Approach to Clinical Trials
ASCO's CDK4/6 Inhibitor Dosing Knowledge (CDK) Study prioritizes patient advocacy and engagement to improve outcomes and quality of life for individuals with cancer.
connection.asco.org
www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky
Finding the Magic, Just in Time
Clare Cory was 59 years old and had been single almost her whole life. She thought her love story was over. Then everything changed.
nytimes.com
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session! #bcsm #PatientAdvocate
So excited to begin my #Medsky journey by presenting with my amazing clinic mentor @dr-rshatsky.bsky.social at #TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
Especially important for our #oncosky community due to weakened immunity to infections. Please read this excellent educational public health tgread by @tmprowell.bsky.social
#MedSky #IDSky #PublicHealth There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1
Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore
Our friend Lori Carrey has journeyed on. I’m not sure if the details but saw a post on x from her friend. #cansky Our community will not be the same without her.
Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research! #bcsm donate.metavivor.org/event/2025-g...
Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025! Thankful for the #bcsm community! #HappyHolidays #Gratitude
It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL
Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis. In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC??? pubmed.ncbi.nlm.nih.gov/39567687/
Normal breast tissues harbour rare populations of aneuploid epithelial cells - PubMed
Aneuploid epithelial cells are common in breast cancer<sup>1,2</sup>; however, their presence in normal breast tissues is not well understood. To address this question, we applied single-cell DNA sequ...
pubmed.ncbi.nlm.nih.gov
Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts. #metastaticbreastcancer #AdvancedBC #bcsm @sabcs.bsky.social @mbcalliance @ABCGlobalAll
View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social
✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social See you soon @sabcs.bsky.social!! #bcsm @oncoalert.bsky.social #SABCS24
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty #Cansky #SuppOnc #hpm #SurvOnc
Two weeks until the #MASCC25 Conference Scholarship deadline on December 18! All other abstracts (including other award/scholarship applications) are due by January 8, 2025. mascc.org/annualmeetin... #SuppOnc #SurvOnc #GlobOnc #PallOnc #Oncology @oncoalert.bsky.social
This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBS
Can men get breast cancer? 10 things to know
Breast cancer is often thought of as a woman’s disease. But men can get breast cancer, too. Breast medical oncologist Sharon Giordano, M.D., shares insights about male breast cancer.
mdanderson.org
Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳 All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients) #Oncosky #Cansky #bcsm #metastaticbreastcancer
Cancer cells feed on oxygen, so cancer patients should minimize their oxygen intake. … … … … … … … … … This is what goes thru my head whenever the muggles talk about sugar. #cansky #oncosky #oncsky
@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too. Any other ideas? #oncosky
The breast cancer community on Twitter was historically strong & proactive. @janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials Would you participate & what topics interest you? (continued)
The Patient Centered Dosing Initiative does incredibly important work!
@therightdose.bsky.social look who’s arrived on #BlueSky ~ PCDI (Patient Centered Dosing Initiative)! 💊 *Follow us here* @itsnotpink.bsky.social @amybeumer.bsky.social @marthacarlson.bsky.social @stage4kelly.bsky.social @faceofstage4.bsky.social @jolynn2019mbc.bsky.social
Does anyone know if there’s a setting on post sharing that only allows those you follow to share your posts? Is it under post interaction settings?
Wish that I could be at ISLB!! Visionary liquid biopsy expert @christianrolfo.bsky.social gives master class lectures on translational potential for innovative LB technologies & approaches 💯💯 @osucccjames.bsky.social @osuwexmed.bsky.social
Brilliant presentation by @christianrolfo.bsky.social from OSUCCC on ctDNA fragmentation in solid tumors! 🔑 message ctDNA fragmentation is emerging as a new tool to better understand and use LB in the management of cancer patients! @umbertomalapelle1 @stoverlab.bsky.social
Does anyone have the 🦋 version of this list?? @tmprowell.bsky.social @erikahamilton9.bsky.social @drsgraff.bsky.social @maryamlustberg.bsky.social @drteplinsky.bsky.social @ptarantinomd.bsky.social
Strong showing by #OhioState #BreastMedOnc for 100 top oncoinfluencers @stoverlab.bsky.social @quirogad.bsky.social Dr Arya Roy. Honored to be included and looking forward to this list for 🦋 next year! oncodaily.com/positive/bre...
Between now & the end of #GivingTuesday, I’ll mostly be posting about Healthcare Workers vs. Hunger #HCWvsHunger. Please support our multidisciplinary oncology team #DiagnoseAndTreats by donating to a food bank or hunger org this holiday season & logging for our team! /1