Professor Jonathan Koffman
@jonathankoffman.bsky.social
Interested in equity and equality in end of life care, ethnicity and culture, advance care planning, big data. Works at Wolfson Palliative Care Research Centre, Hull York Medical School
With thanks to the team: @jonathankoffman.bsky.social, Helene Elliott-Button, Emeka Chukwusa, @jamillahussain1.bsky.social, @sbajwah.bsky.social, @joannamdavies.bsky.social, @felicitydewhurst.bsky.social, @gemma-clarke.bsky.social, Zoebia Islam, @lizdzeng.bsky.social, Rashmi Kumar
Read the paper and 13 consensus-based principles for better research now in Palliative Medicine: journals.sagepub.com/doi/10.1177/...
Principles for developing, undertaking, and reporting research with minority ethnic populations in palliative and end of life care: A modified Delphi study - Helene Elliott-Button, Emeka Chukwusa, Jam...
Background: Minority ethnic populations face persistent inequities in end-of-life care, yet research often fails to capture these disparities due to methodologi...
journals.sagepub.com
NEW PAPER People from minority ethnic groups face inequities in palliative and end-of-life care, yet research methods often fail to capture them. We worked with patients, carers, clinicians, and researchers to develop 13 principles for better research on ethnicity in palliative care. #palliativecare
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford @sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
Our new study in The British Journal of Cancer shows ethnic inequalities in opioid prescribing for cancer pain at the end of life. www.nature.com/articles/s41...
With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford @sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social
@wolfsonpallcare.bsky.social Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss
Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study - BMC Palliative Care
Background Bereaved parents are at higher risk of poor mental and physical health outcomes than people bereaved under other circumstances. These challenges are exacerbated by the continued effects on ...
bmcpalliatcare.biomedcentral.com
It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done I summarise the key findings here MPs must not take the silencing of these groups as reassurance #AssistedDying @katiewhitemp.bsky.social
Tom Lawton@lawtontri.bsky.social · last yr.A colleague has written this, which I think nicely sums up some of the reasons I have mixed feelings about the #AssistedDying bill. No simple right answers here; just tradeoffs - but hopefully we can recognise and help those who are at risk. www.politicshome.com/opinion/arti...
Community nursing colleagues in the UK - please could you help with our short survey. We have 1300 participants and keen to reach 1400 if we can Please share too! Survey: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social
When you were considering being offended at being called a nerd last week ……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺 …..& realise its true 🤓😆 #NerdsAreCool 😎
Well done Tara 👏👏👏 Presenting her #PhD #Research - with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups With supervisor @jonathankoffman.bsky.social Team @wolfsonpallcare.bsky.social 🙌 #Ethnicity #Inequalities
Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮 We’re all friendly, come by & say hello ☺️ #PalliativeCare #Hpc #hapc #Research @jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social
Really looking forward to this!
@eapcvzw.bsky.social · last yr.📢 You're Invited! Join us for the Launch of the EAPC European Atlas of Palliative Care 2025 at the upcoming EAPC World Congress in Helsinki! 🗓 Date: Thursday, 29th May 2025 🕐 Time: 13:00 – 14:00 CET 📍 Location: Hall 1, Helsinki (EAPC Congress Venue) More info: eapccongress.eu/2025/...
🎉 Delighted to see Fuse Senior Investigator @profbambra.bsky.social elected as a Fellow @acmedsci.bsky.social! A prestigious and well-deserved recognition of her outstanding contribution to public health research understanding and reducing health inequalities, both in the North East and beyond. 👏
Clare Bambra@profbambra.bsky.social · last yr.I am delighted to have been elected as a Fellow of The Academy of Medical Sciences @acmedsci.bsky.social www.ncl.ac.uk/press/articl...
Family/friend caregivers are an important source of support- but who cares for the #carers? We #CoProduced a family diary to support carers in making their voices heard when someone is dying We report the process over the past few years here #PalliativeCare journals.sagepub.com/doi/10.1177/...
How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivat...
Background: Family caregivers play a vital role in supporting patients at the end of life, a role that can impact their own well-being. Healthcare professionals...
journals.sagepub.com
📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓 “How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
One of the (many) take home messages being that people struggle to communicate about death and dying - even healthcare professionals As a society we need to normalise talking about dying (since we all will) #PalliativeCare #EndOfLifeCare #HaPC #HPC #MedSky
Donna Wakefield@donnawakefield.bsky.social · last yr.📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓 “How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC
Are you a community nurse in the UK? Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled. Share your input below: cambridge.eu.qualtrics.com/jfe/form/SV_... #CommunityNursing #EndOfLifeCare
Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social “Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”
Our EAPC webinar on Family Caregiving in Palliative Care is now available and FREE to view. Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions. www.youtube.com/watch?v=GuSu...
EAPC Webinar: Family caregiver research in palliative care
YouTube video by European Association for Palliative Care EAPCvzw
youtube.com
Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...
First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request! onlinelibrary.wiley.com/doi/abs/10.1...
The Janus Face of Person‐Centred Care
Click on the article title to read more.
onlinelibrary.wiley.com
How do you say "I don't know" whilst maintaining trust? Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out. Register here: www.mariecurie.org.uk/research-and... #MCResearch2025
Research Conference 2025
We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.
mariecurie.org.uk
Terminal illness is already characterised by uncertainty about the future trajectory. Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social www.bmj.com/content/388/...
Citing the correct evidence in relation to the assisted dying discussion is critical. Letter in the @thetimes.com yesterday
Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.
I see #PhD training is similar to medical training 👩🏼⚕️Remember those patients, that say something *completely* different when the consultant arrives? 👩🏼💻Now I have #Stata code that tells me it won’t run, but then suddenly works when @joannamdavies.bsky.social is watching 👀 🤣🤣🤣 #MedSky #AcademicSky
📣 Published today in BMJ Supportive & #PalliativeCare The prevalence of cancer is 4x higher for people experiencing #homelessness - yet they face #inequalities in accessing care This case highlights challenges faced & how they were addressed to provide holistic care spcare.bmj.com/content/earl...
Equitable care for patients with cancer experiencing homelessness
Abstract People experiencing homelessness are at increased risk of cancer and have worse outcomes than the housed population. They face multiple health inequalities, including delayed cancer treatme...
spcare.bmj.com
