Ok folks, last chance to complete the CURVE study and help us understand more about communicating uncertain recovery in acute care. We now have over 300 responses from across the UK, can you help us get to 350 before the end of the week? cambridge.eu.qualtrics.com/jfe/form/SV_...

Thanks to the 130+ UK doctors who have taken part in the CURVE study so far! There's still time to fill out our short survey so please consider sharing your views on communicating uncertain recovery. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social

Calling all UK based doctors! Take part in our survey to improve Communication of Uncertain RecoVEry in acute care. Follow this link to take part and please share widely with colleagues. cambridge.eu.qualtrics.com/jfe/form/SV_... @rcphysicians.bsky.social @acutemedicine.bsky.social

New paper considers what we should aim for when addressing uncertainty from serious illness. Important elements are finding security together by reframing uncertainty and moving forward through parallel planning. Great work Rachel & team! link.springer.com/article/10.1...

What Should We Aim for when Addressing Uncertainty from Serious Illness? A Stakeholder Focus Group Study - Journal of General Internal Medicine

Background Uncertainty is ubiquitous in serious illness. It defines experiences of diagnosis, current illness, and future prognosis and is experienced across physical, psychological, and temporal doma...

link.springer.com

Our new review of patient centred outcome measures in #palliative care is out: link.springer.com/article/10.1... Pulling together evidence since 2013 with info on facilitators and barriers to implementation

Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers - BMC Palliative Care

Background Patient-centred outcome measures (PCOMs), when well implemented, are powerful tools facilitating patient, family and clinical communication to better respond to patient needs. Their routine...

link.springer.com

Just out in @palliativemedj.bsky.social: Our practice review brings together the latest evidence on managing gastric outflow obstruction in palliative care Available open access here: journals.sagepub.com/doi/full/10....

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

I'm honoured to be speaking at the @stclarehospice.bsky.social Hospice Palliative Care Conference on Friday 10th October. This year's theme is 'The future of end of life care' & I'll be talking about how we can deliver more equitable #EndOfLifeCare by changing our approach to future uncertainties

Bella Madden, our public research partner, shares a heartfelt poem on anticipatory injectable medications in end-of-life care. The poem accompanies a new research paper exploring family carers experiences with these practices. youtu.be/fHoAaiPG6C8 Read more: doi.org/10.1177/1744...

Bella Madden's poem on anticipatory injectable medications in end-of-life care

YouTube video by Primary Care Unit, University of Cambridge

youtu.be

This personal piece by Robbie puts his writings on attachment theory in context of his life n parenting. It is heartbreakingly matter of fact about what he's been through. But the analytic upshot is that attachment theory has clear implications in this more extreme situation too. A pleasure to read.

‘Attachment research gave some indication where we could start in trying to parent our seriously unwell daughter’ | BPS

Robbie Duschinsky (University of Cambridge) reflects on parenting a profoundly unwell and disabled child whilst undertaking research and writing about attachment.

bps.org.uk

Anna Alexandrova@annaalexandrova.bsky.social · last yr.

Robbie Duschinsky has written an #openaccess book on #attachment research in developmental psychology. How it started, how it changed, and how differently labs measure it. Overall thesis: attachment theory is not one unified paradigm. Check out this work of deep expertise.

‘This presents a difficult dilemma for clinicians: should they always provide explicit information, even when it may go against patients’ or families’ wishes?’ This week’s #EAPCblog explores this complex topic eapcnet.wordpress.com/2025/07/15/p...

Page not found | EAPC Blog

The blog of the European Association for Palliative Care

eapcnet.wordpress.com

Our prognostic uncertainty communication study is out, see here for details! Please share with colleagues who may find this useful @rcphysicians.bsky.social apmposts.bsky.social @acutemedicine.bsky.social @gerisoc.bsky.social

Primary Care Unit, University of Cambridge@pcucambridge.bsky.social · last yr.

New guidance helps clinicians talk about uncertain prognoses with older adults facing complex health needs. Co-designed by researchers & patients, the recommendations aim to improve care of people in uncertain health circumstances. Read more below: www.phpc.cam.ac.uk/news/cambrid...

Stephanie Meddick-Dyson (@drstephmeddickd.bsky.social) is inviting people to share their experiences of care in the Intensive Care Unit through focus groups or interviews. Please see the flyer or get in touch with Stephanie for more details

What does good look like in situations of uncertainty from serious illness? Rachel Chen presenting her framework of desired outcomes #EAPC2025 Finding security in uncertainty together is the key

Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social

Multimorbidity drives outpatient service use and is every specialties' business. We need more realistic conversations and better communication. Great presentation @spbowers.bsky.social #EAPC2025. Any data on acute care use?

New and extended roles in end of life care: @drbenbowers.bsky.social presenting his study of UK community nurses post-pandemic experiences @arceastofengland.bsky.social @pcucambridge.bsky.social #EAPC2025

#EAPC2025 kicks off with a plenary on #ILD. #Opioids good for #cough, potentially for exertional dyspnoea and use at the very end-of-life - but not for chronic breathlessness. @eapcvzw.bsky.social

We've co-designed practice recommendations for communicating prognostic uncertainties in advanced multimorbidity. See here for the paper: rdcu.be/enwFr @pcucambridge.bsky.social @rcphysicians.bsky.social @gerisoc.bsky.social @apmposts.bsky.social @arceastofengland.bsky.social

Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...

Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.

Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social

It's #DyingMattersWeek We're all going to do it. Shouldn't we get our minds around what to expect? Here's a 3 min guide. If you like it, please share it. bit.ly/TheosDFB

Dying for Beginners | Dr Kathryn Mannix

In modern British society, death is out of sight and behind closed doors. Many of us lack direct exposure to the dying process - with all sorts of potential emotional and spiritual consequences for how we grieve our loved ones, as well as how we prepare for our own deaths. What does the dying process actually look like? A short animation by Emily Downe, and voiced by Dr Kathryn Mannix which guides you gently on a step by step journey through the process of dying. Acclaimed author, speaker and former palliative care physician Dr Kathryn Mannix has spent her medical career working with people who have incurable, advanced illnesses. The author of two Sunday Times Bestsellers – With The End in Mind and Listen, Dr Mannix is on a mission to reclaim the public’s understanding of dying. CREDITS Written and voiced by Dr Kathryn Mannix Directed and designed by Emily Downe Animated by Martha Halliday Music and sound by Jan Willem de With Produced by Theos with thanks to The Fetzer institute Find out more about Theos' work in the area of death, dying and the afterlife here: https://www.theosthinktank.co.uk/dying-for-beginners-theos-work-on-death-dying-and-the-afterlife ***** Like what you see? Be sure to sign up to the Theos monthly newsletter to stay up-to-date with all our content, research and events: https://confirmsubscription.com/h/d/E9E17CAB71AC7464 CONNECT WITH THEOS Twitter: https://twitter.com/Theosthinktank Facebook: https://www.facebook.com/theosthinktank LinkedIn: https://www.linkedin.com/company/theos---the-think-tank/ Website: https://www.theosthinktank.co.uk/ CHECK OUT OUR PODCASTS The Sacred: https://podcasts.apple.com/gb/podcast/the-sacred/id1326888108 Reading Our Times: https://podcasts.apple.com/gb/podcast/reading-our-times/id1530952185

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Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social

Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social www.sciencedirect.com/science/arti...

Yup, this is why we need to respond to Sir Chris Whittys survey request about medical training for the future. We must plan for a workforce who can deliver healthcare aligned to needs of patients, the majority of which have MLTC. Similar, of course, for nursing/AHP @gerisoc.bsky.social

Esther Clift@estherclift.bsky.social · last yr.

A glorious challenge to embrace from @gerisoc.bsky.social @peterhanlon.bsky.social !

🚨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social Pls Share. Our paper: bjgp.org/content/earl... @theqicn.bsky.social @crystaloldman.bsky.social

How do GPs’ new ways of working affect community nurses? A qualitative study

Background A growing literature examines the way two changes in primary care – the shift towards remote working, and the diversification of practice teams to incorporate, for instance, physician assoc...

bjgp.org

Primary Care Unit, University of Cambridge@pcucambridge.bsky.social · last yr.

Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification. Read more: www.phpc.cam.ac.uk/news/how-do-...

Researchers from the University of Cambridge have found that community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue and workforce diversification. Read more: www.phpc.cam.ac.uk/news/how-do-...

Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇

Well done to @katieflanagan.bsky.social for presenting a great paper in the @mariecurieuk.bsky.social Hospice Liverpool journal club about the role of #VirtualReality in palliative care for hospice patients. #hapc #palliativecare #medsky #vr @nicolawhite.bsky.social @sarah-stan.bsky.social

Terminal illness is already characterised by uncertainty about the future trajectory. Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social www.bmj.com/content/388/...