“Look beyond absence. See the child living with Long Covid.” We’re really pleased to share that Long Covid Kids & Friends is featured by the National Attendance Portal. longcovidfeature.netlify.app #LongCovidKids #LongCovid #SchoolAttendance #InclusiveEducation #ChildHealth #MedicalNeeds

For those too unwell to read the full paper or thread, here is short animation to show what happened in the ERASE-LC trial which tested the drug Remdesivir with people who have long Covid bsky.app/profile/prof...

Mark Faghy@profmarkfaghy.bsky.social · 7d ago

Our short animation to descirbe the results and findings.

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed. @georgemonbiot.bsky.social www.theguardian.com/commentisfre... #ME #LongCovid

Great to see this out.

Mark Faghy@profmarkfaghy.bsky.social · 7d ago

Our short animation to descirbe the results and findings.

Standing together against stigma and disbelief. Long Covid Kids has joined fellow members of the Overlapping Illness Alliance in writing to The Telegraph about “How having a disability became cool.” Complex illness deserves evidence and curiosity, not suspicion. 🧡 #LongCovid #Disability

3/7 Long Covid was associated with substantially worsened grades. Age 6–11: 18% vs 7% Age 12–17: 29% vs 11% Children with Long Covid were more than twice as likely to be reported as having substantially worsened grades.

.🧵 1/7 When Long Covid affects a child’s education, attendance is only part of the story. As a new school year begins, new research looks beyond whether children are present in school, to learning, attention and friendships. #Education #InclusiveEducation #Attendance

1/4 🎒 How will school know what my child needs when their health changes day to day? For children with Long Covid and other prolonged, fluctuating and energy-limiting illnesses, the support they need at school may change too. An Individual Healthcare Plan can help. 🧵 #BackToSchool #LongCovidKids

“It is particularly important to me that our voices are heard by those who have the power to influence change.” Bethan, diagnosed at 16, now 21, reflects on the APPG on #LongCovid & why young people’s voices need to be heard. Read her account 👇 www.longcovidkids.org/post/paediat... #LongCovidKids

@lewiscapaldioffice.bsky.social I don't know if you will read this. Probably not But I'd like you to know that my daughter and her friend loved your gig in Belfast last night. They were in the ♿ viewing area. Here's the thing... The world is full of barriers. Not everyone can slip through...

Cute Dog Squeezes Through Gate

Alt: Cute Dog Squeezes Through Gate

static.klipy.com

📢 We’re delighted that Long Covid Kids and Friends has been awarded £5,000 from the St James’s Place Charitable Foundation to explore the impact of #LongCovid on #children in Charnwood. Children and young people will help shape the work throughout. 🔗 bit.ly/4zK5a8D #LongCovidKids #Leicestershire

St. James’s Place awards £5,000 to support Long Covid Kids and Friends project in Charnwood

Together, we will explore the prevalence and impact of Long Covid and associated symptoms among children and young people, with a particular focus on communities experiencing social and economic disad...

longcovidkids.org

Summer rain. ☔️ #rain

‘Air pollution can stunt the growth of young children's lungs leaving them at an increased risk of asthma, heart disease, diabetes and even premature death.’ www.bbc.co.uk/news/article... #CleanAir

Children's stunted lungs show recovery in ultra low emission zone

Children's lung capacity caught up with their peers in less polluted areas once a clean air zone came in, a study shows.

bbc.co.uk

A little #summer inspiration. Looking for something to read, create or do? We’ve got three new blogs. We hope you find a little inspiration to enjoy at your own pace, and remember to stay cool, keep hydrated and stay sun safe in the summer heat. longcovidkids.org/so/feP--mUXm

What's New

Hello Friends, A little summer inspiration. Looking for something to read, create or do this summer? We’ve got three new blogs from the Long Covid Kids community to explore. We hope you find a little ...

longcovidkids.org

Wonderful to read Katrina's story. #Volunteering can give purpose, community and reduce isolation. blog.parkrun.com/uk/2026/08/1... #ParkRun #LongCovid

My parkrun day wasn’t over | parkrun UK Blog

Have you ever considered volunteering with parkrun?   The answer was ‘no’ for Katrina before she developed multiple health complications after COVID. She once thought her parkrun days were over, but v...

blog.parkrun.com

We’ve launched a T-shirt design #competition for anyone aged 21 and under — and we’re looking for something creative, meaningful and contemporary that you’d be proud to wear yourself. There’s no set theme, but you might be inspired by: 🌱 Growth 🧡 Belonging 💪 Courage 🎨 Creativity ✨ Hope 🤝 Community

🎨 Could your design be our next Long Covid Kids T-shirt? Our design competition is open to anyone aged 21 & under. Create something inspired by hope, belonging, courage, community — or something completely different. 👇 www.longcovidkids.org/post/design-... #LongCovidKids #LongCovid #Summer

🧡 On #SevereMEDay we stand alongside everyone living with severe and very severe ME, their families and carers, and remember those whose lives have been lost. Absence is not absence of need. #SevereME #LongCovid

Could it be that children are unwell +/or have unmet needs? that they are masking / pushing through / people pleasing for as long as they can. … & are simply exhausted / too symptomatic by #Friday ? ‘Fridays are "becoming a particular weak spot for #attendance" www.bbc.co.uk/news/article...

#LongCovid is not a ‘subject’ to dispute. It’s a health condition that changes people’s lives. Definitions can evolve & that’s not an excuse to dismiss the illness itself. Diagnostic criteria for diabetes have repeatedly changed over time but no one takes u seriously if you say diabetes in disputed!

Lewis Goodall@lewisgoodall.com · 2mo ago

Long covid is a disputed subject, at best.

Summer newsletter take over by the youth editing team 👌 longcovidkids.org/so/aaP_rkGNW #editor #summer #writers

Welcome to the second issue of The Long Covid Chronic-Ill, the newsletter specifically made for children and young adults with Long Covid and overlapping illnesses. This is a safe space for everyone. ...

But first, meet the editors!

longcovidkids.org

Recommendations for journalists to counter epistemic injustice in reporting Long Covid and similar conditions. pmc.ncbi.nlm.nih.gov/articles/PMC... #Journalists #LongCovid #Children #Childhood

Hey @lewisgoodall.com here is our Lancet article on Long COVID. Happy to chat. www.thelancet.com/action/showP...

The editors have done a great job! Sign up: www.longcovidkids.org/join-our-new... #Newsletter #Summer #LongCovidKids #YouthVoice #Editor

Interesting opinion. You disagree with NIHR funded research, NIH funded research, WHO definition and the growing body of evidence?

Five years on. We're making progress, but we're not there yet. Children and young people living with Long Covid deserve timely care, support and the opportunity to participate fully in childhood. #LongCovid #ChildHealth #LongCovidKids @channel5news.bsky.social

Long Covid Kids@longcovidkids.bsky.social · 2mo ago

Five years on. Children and young people are still living with Long Covid. As Samir says at the end of this report: "That we're still here." Thank you to everyone who shared their story, and to Ruth Liptrot and @channel5news.bsky.social . 🎥⬇️ youtu.be/FZp32EIppZ8 #LongCovidKids #ChildHealth

🧡 Keep an eye out between 5 and 6pm this evening! Some of our members and our Chair of Trustees will be featured on Channel 5 News. We're advised this is when the report is expected to air. If you can, please help us spread the word by liking, commenting on posts. 🙏 for your support.

If you're aged 18+ and living with Long COVID, your experiences could help shape future rehabilitation pathways and improve support for others facing similar challenges. 📝 Complete the survey here: app.onlinesurveys.jisc.ac.uk/s/lboro/long...

Factors Influencing Experiences of Rehabilitation Among Adults with Long COVID: An Explanatory Sequential Mixed-Methods Study - Online Surveys | Online surveys

Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

"Participation is the bridge between education and opportunity" @sammiemc.bsky.social, Founder & CEO, LCK Read the full blog: www.longcovidkids.org/post/opportu... #InclusiveEducation #LongCovid #Education #SEND

If you shop online please consider supporting a small charity like @longcovidkids.bsky.social You buy your usual stuff @easyfundraising.bsky.social collects the donation from the store. Every little helps. join.easyfundraising.org.uk/long-covid-k...

You spend, brands donate to Long Covid Kids and Friends.

Help us when you shop with 7,000+ brands. Join now.

join.easyfundraising.org.uk