📢 Participants needed for Long COVID research I'm helping an MSc student recruit adults living with Long COVID for an important study exploring experiences of rehabilitation and recovery. 🔗 app.onlinesurveys.jisc.ac.uk/s/lboro/long...

Factors Influencing Experiences of Rehabilitation Among Adults with Long COVID: An Explanatory Sequential Mixed-Methods Study - Online Surveys | Online surveys

Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

Our new paper is here: Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID www.nature.com/articles/s43...

Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID - Communications Medicine

Faghy et al., review the current literature on Long COVID pathophysiology, linking immune dysregulation, viral persistence, and vascular injury to enduring symptoms. They highlight evidence to guide f...

nature.com

We’re really happy to be sharing our work at the @longcovidweb.bsky.social symposia in the wonderful city of St John’s, Newfoundland 🇨🇦 If you’re attending the event either online or in person, please come and say hello!!

Sorry for the silence: The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.

So good to have you join us for the day!! Lots of great discussions and ideas.. now to find ways to implement them!

Binita Kane@binitakane.bsky.social · last yr.

So good to spend the day with @profmarkfaghy.bsky.social and his incredible team at the University of Derby plotting #LongCovid research. So much we could do if only we had the funding….

And just like that we have completed ERASE in Derby A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid Thanks to everyone, especially the participants who gave so much to this work.

Exercise-induced Changes in Microclotting and Cytokine Levels Point to Vascular Injury and Inflammation in People with #LongCOVID. Important preprint work from our Team Clots: @profmarkfaghy.bsky.social and @resiapretorius.bsky.social 👏👏 www.researchsquare.com/article/rs-6...

Our global effort to raise the urgency of research into Long Covid in children published in The ERJ ⬇️ Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this. #longcovidkids @longcovidkids.bsky.social publications.ersnet.org/content/erj/...

We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch. Please share with your network! www.derby.ac.uk/jobs/current...

54 Patients.. 270 infusion days.. A whole lot of tea and biscuits.. @derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today! Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.

Delphi consensus paper on #LongCovid link.springer.com/article/10.1...

Long COVID clinical evaluation, research and impact on society: a global expert consensus - Annals of Clinical Microbiology and Antimicrobials

Background Long COVID is a complex, heterogeneous syndrome affecting over four hundred million people globally. There are few recommendations, and no formal training exists for medical professionals t...

link.springer.com

University of Derby: 'University embarks on ground-breaking long Covid research project' 'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...' www.marketingderby.co.uk/news/univers...

University embarks on ground-breaking long Covid research project - Marketing Derby

A ground-breaking research project led by the University of Derby, which aims to find a treatment for symptoms of long Covid, is underway...

marketingderby.co.uk

#LongCovid @profmarkfaghy.bsky.social @lindsayskipper.bsky.social @sarahbarleymc.bsky.social @longcovidadvoc.com @mikster-derby.bsky.social @michaeltikus.bsky.social

Billy Hanlon@bhanlon15.bsky.social · last yr.

University of Derby: 'University embarks on ground-breaking long Covid research project' 'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...' www.marketingderby.co.uk/news/univers...

Access has been a “postcode lottery”, says @profmarkfaghy.bsky.social, an associate professor in respiratory physiology at @derbyuni.bsky.social and policy advisor for @longcovidkids.bsky.social He adds that children and young people are at a “disadvantage from the outset”.

An insight into our #LongCovid #research at the @DerbyUni www.youtube.com/watch?v=pSwH...

Understanding long Covid: How University research contributes to a global problem

YouTube video by University of Derby

youtube.com

Thank you @profmarkfaghy.bsky.social and your brilliant team 🙌 You might be interested in this, @jonathandaviesmp.bsky.social #LongCovid #Derbyshire

Mark Faghy@profmarkfaghy.bsky.social · last yr.

More media coverage of our #LongCovid research.. Thanks to Ryan for his time and energy in helping with this piece! www.bbc.co.uk/news/article...

More media coverage of our #LongCovid research.. Thanks to Ryan for his time and energy in helping with this piece! www.bbc.co.uk/news/article...

'I've had long Covid for years, but I'm hopeful again' - BBC News

Ryan Cawley, who was diagnosed in 2021, has taken part in an anti-viral drug study.

bbc.co.uk

Please if you haven't already consider signing this petition to urge important investment in paediatric research in #longcovid Without research, we cannot progress the mechanistic knowledge needed to develop diagnostic tests and treatments! you.38degrees.org.uk/petitions/in...

Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW

• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discha...

you.38degrees.org.uk

Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid “It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social t.co/kfLzV0B0fy

Ondine was a big voice and a strong advocate for #Longcovid and will be sorely missed by everyone. I shared many lovely moments with Ondine as part of our involvement in the @covidinquiryuk I am gutted and lost for words! We will continue to advocate with Ondine looking down!

Long Covid SOS@longcovidsos.bsky.social · last yr.

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood

Here is our piece that was featured on @itvnews.bsky.social yesterday, which talks about #longcovid research. www.itv.com/news/2025-03...

What a fine piece of academic literature this is from Amy Proal @resiapretorius.bsky.social and others: www.thelancet.com/journals/lan... Science overload that paves the way for the development of future diagnostic investigations and potential treatments for LC!

Targeting the SARS-CoV-2 reservoir in long COVID

There are no approved treatments for post-COVID-19 condition (also known as long COVID), a debilitating disease state following SARS-CoV-2 infection that is estimated to affect tens of millions of peo...

thelancet.com

Decided to get back on the socials after a short break due to personal issues where my time and attention was needed elsewhere.. we've still been working hard but just not public facing but I'm back and we have some important updates and information to share over the course of the next few weeks!

#12waysofERASE Day 12 We have and continue to have knockbacks as a team… funding refusals, paper rejections and many more! But we are trying to research a condition which some of the world is trying to pretend does not exist and in a life where infections are still spreading in great volumes.

#12waysofERASE Kindness and compassion underpin our #LongCOVID research but this should underpin ALL research. Participants are not numbers. They are people who carry scars which reach beyond those caused by COVID-19.

#12waysofERASE Do no harm. Whether it is the words you choose; the protocol you develop; the treatment you administer; or the infection prevention and control measures you select, the aim should always be ‘do no harm’. Sounds pretty obvious, right?

#12waysofERASE Words Matter Everything we say can have downstream consequences. Using the wrong words can have lasting effects for years on a personal and wider level. The #LongCOVID community have shared experiences where others simply haven’t understood this.

Mark Faghy@profmarkfaghy.bsky.social · 2y ago

#12waysofERASE Day 8 Enable PPIE to fully contribute, there is no room for tokenism. If you want to meaningfully engage with people who have lived experience, you need to enable them to participate. Ask them what they need in order to be able to participate fully.

#12waysofERASE Day 8 Enable PPIE to fully contribute, there is no room for tokenism. If you want to meaningfully engage with people who have lived experience, you need to enable them to participate. Ask them what they need in order to be able to participate fully.

#12waysofERASE If there isn’t an appropriate way to do something, create a different way. #LongCOVID brings a very real risk of provoking PEM/PESE. Whilst we want to understand what is going on physiologically, we know that conducting full/traditional CPETs carries an inherent risk.

Mark Faghy@profmarkfaghy.bsky.social · 2y ago

#12waysofERASE Masking Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks. It turns out it just isn’t that simple… The system is against..

#12waysofERASE Masking Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks. It turns out it just isn’t that simple… The system is against..

Mark Faghy@profmarkfaghy.bsky.social · 2y ago

#12waysofERASE Day 5 Infection prevention and control is more than hand washing. Wherever you stand on the ‘COVID-19 is airborne’ debate, preventing infection with anything is essential in our research. Hand washing and standing 2 metres away is not enough.