Some of you all have never found lists or feeds have you? Here are some things you should consider Pinning to make your life easier here on Bluesky (a thread): First, my #BB28 Feed, it shows any NEW post with #BB28 or BB28, but not all replies & I filter out the spammers: bsky.app/profile/bbgo...
melinda_is_done 🐝
@melindaiscomplex.bsky.social
My body has given up but I haven't... Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland. Orioles/Ravens/Caps fan. She/her
Well Kamu... #BB28
Sorry To Ruin Your Plans Janelle Pierzina
Alt: Janelle Pierzina in the BB diary room saying Sorry To Ruin Your Plans
static.klipy.com
Kamu still can't wrap his mind around Lala picking Jason for veto after he told her his plan. "Why would she go against..." Because fuck you and fuck your plan that's why! #BB28
Oops 😂 #BB28
Angela (W2): Here fast action meets passion & willpower. This is bold problem solving energy that can easily become reckless if not kept in check. The challenge is to think it through before taking action. It may be hard for her to be patient this week. #BB28
One week until May 12th - #MEAwarenessDay & #MillionsMissing. The week is May 9- 16. Your story matters! Resources & prompts in our toolkit: https://bit.ly/MM2026toolkit We will soon be sharing sample posts created by volunteers to help get us all started! #FrailAndFurious #pwME
This poem speaks to the immense losses and grief of ME and Long COVID, that all but snuff out last embers of dreams. And to dreams still faintly burning. #MECFS #LongCovid #pwME #poetry #disabledpoet #millionsmissing #bedbound
Press Alert: #ME/CFS and #LongCOVID communities are gathering at HHS on May 12th to urge policymakers to exempt our communities from Medicaid work requirements. Read the press release: 4a6ff496-ce8b-4c52-93d2-15f9b79bd151.usrfiles.com/ugd/4a6ff4_5... #FreakinFrail #ProtectMedicaid #Medicaid
I'm not joking when I say mRNA technology is more important than "AI" and it's a tragedy we're throwing billions into one while our government is aggressively defunding the other.
"Pancreatic cancer mRNA vaccine shows lasting results in an early trial: Scientists caution that more research is needed, but nearly all of the patients who responded to the personalized vaccine are still alive six years later."
21 million Americans with Long COVID are depending on YOU. Ask your Senator to sign the FY27 Dear Colleague letter by Friday and #FundLongCOVID research and care. 👉🏻👉🏽👉🏿 [Campaign URL] share.nwmd.social/s/NAZH6KG9
Sign On, Senators: #FundLongCOVID in FY27
share.nwmd.social
Today for #MECFSAdvocacyWeek: add your name to letters to State Medical Boards & Chief Medical Officers. Community sign-on: tinyurl.com/StateMedicalBoardForm Clinicians: tinyurl.com/ClinicianSignOnForm Share our posts: tinyurl.com/MECFSThursdaySocials Optional Zoom at 3 pm ET. Solve M.E. #pwME
#MECFS is not consistently recognized, diagnosed, or safely managed across healthcare settings. We're asking State Medical Boards to meet with our community & support our efforts to get ME/CFS questions on national licensing exams. Sign: https://ow.ly/vLAK50YzkCb Solve M.E. #MEAction Network
Community Letter Sign-on Form
Thank you for adding your voice to this effort. By signing on, you are joining patients, caregivers, clinicians, and allies across the country in asking State Medical Boards and State Health Leadership to recognize ME/CFS competency as a patient safety and standard-of-care issue — and to recommend that ME/CFS questions be included in national licensure exams. This form gives you the option to sign on to each of these letters: The State Medical Board Letter asks your State Medical Board to meet with clinicians and lived experience experts to discuss ME/CFS education gaps, and to recommend...
ow.ly
NEWS: Bette Midler just released a remake of Woody Guthrie’s classic protest song “All You Fascists Bound to Lose,” updated to fit the current moment and urge action ahead of the midterms. You have to listen to this.
@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: https://ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour
Tell Congress to Fund ME/CFS Research in FY27
9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...
solvecfs.quorum.us
Today for #MECFSAdvocacyWeek: make your voice heard at the federal level. Contact your reps: solvecfs.quorum.us/campaign/157943 Share our posts: tinyurl.com/MECFSFederalAdvocacyDay #MECFS #pwME #MEAwarenessHour
NO KINGS 3 VIRTUAL RALLY organized by Stand Up for Science! Saturday, March 28th, from 12:30-2pm CT, it's an accessible and inclusive rally for everyone, everywhere. #NoKings3 #NoKings #Democracy #VirtualRally #ChronicIllness #MECFS www.standupforscience.net/sufs-nk3
SUFS NoKings3 Accessible Rally — STAND UP FOR SCIENCE
NO KINGS 3 ACCESSIBLE RALLY organized by Stand Up for Science - An online and inclusive rally for everyone, everywhere, on March 28th, 12:30 - 2PM CT followed by live stream of the national flagship ...
standupforscience.net
Reported from San Antonio area news -- There's a #Measles outbreak at the #Dilley detention center where #LiamRamos was being held. #LiamConejoRamos is back home but there are still 400 other children (1200 total detainees) still at the facility. #MedSky #IDSky www.sacurrent.com/news/san-ant...
Following the violent assault of a disabled woman by ICE last week, and the many reports of abuses of people with disabilities in their concentration camps, it’s worth rereading this primer on Disability Criminalisation from the Center for Racial and Disability Justice
Disability Criminalization: A Primer
law.georgetown.edu
If you read 1 long 🧵today— Disability Criminalization: A Primer “Disability criminalization occurs when conduct connected to disability, such as: speech, crisis, movement is interpreted as disorderly, threatening, or criminal. It's not about crime, but about how law and culture misread disability.”
This entire thread is important. Exactly the movement analysis and reporting that our media will never do. Watch ICE, denounce fascism all you like - we’ll never build power if we don’t learn how. The Minnesotans aren’t simply “nice.” They are deeply organized.
With so many of us watching the tremendous mobilizations in Minneapolis, culminating in the call to action against ICE today, I wanted to share some of what I have gathered from talking to comrades in Minneapolis over the past few weeks. A few things stood out:
I know it's hard to track all the threats to democracy out there right now, but this is at the top of the list.
ICE has kidnapped another Indigenous person in Minneapolis. This is the fifth member of the Očhéthi Šakówinnto be taken this month. Statement from Standing Rock:
Voting NO on the DHS funding bill is the bare minimum. Backing Kristi Noem’s impeachment is the bare minimum. Holding law-breaking ICE agents legally accountable is the bare minimum. ICE is beyond reform. Abolish it.
No Kings mass call Tomorrow 8-9PM EST www.mobilize.us/nokings/even...
Eyes on ICE: Document and Record · No Kings
On Saturday, federal agents horrifically shot and killed 37-year-old Alex Pretti, an ICU nurse who cared for veterans, in the Eat Street neighborhood of south Minneapolis after brutally beating him in...
mobilize.us