4 years ago today I had a haemorrhagic stroke. Today, I am a stroke researcher, advocate and lived experience volunteer at the rehabilitation facility where I was a patient, getting invited to Parliament to celebrate the 30th anniversary of the Australian Stroke Foundation.

I’ve been invited to speak at the American Heart Association’s International Stroke Conference in February 2027 & I need your help to get me there. I’ll advocate for better, longer-term rehabilitation for stroke survivors. Please donate if you can, or share this post. gofund.me/25052b9fa

Donate to Bring stroke survivors' voices to an international audience., organized by Matthew Berryman

I have been invited to speak at the American Heart Associatio… Matthew Berryman needs your support for Bring stroke survivors' voices to an international audience.

gofund.me

I’ve been invited to speak at the American Heart Association’s International Stroke Conference in February 2027 & I need your help to get me there. I’ll advocate for better, longer-term rehabilitation for stroke survivors. Please donate if you can, or share this post. gofund.me/25052b9fa

Donate to Bring stroke survivors' voices to an international audience., organized by Matthew Berryman

I have been invited to speak at the American Heart Associatio… Matthew Berryman needs your support for Bring stroke survivors' voices to an international audience.

gofund.me

If you’ve been told you won’t make any more progress after your #stroke, you may have been sold a lie. I explain why and give you practical tips so you can continue to make progress at home regardless of how long it’s been since your stroke! youtu.be/H3FJe6VKkos

“You Won’t Improve Any More After Stroke” (Why It’s Not True)

YouTube video by Post Stroke

youtu.be

Up to 90% of strokes can be prevented by managing risk factors like high blood pressure. Simple checking tools can help protect millions of people from lasting health issues. This #WorldBrainDay, let's advocate for #AccessForAll. 🧠 #Stroke #StrokePrevention #Hypertension

#DisabilityPride: Me being able to use my right hand again, albeit with some fine motor issues still, to get my beard beads in before my volunteer work with stroke survivors and other people with disability on the rehabilitation ward at Flinders Medical Centre.

KCL research: after decades of decline, #stroke incidence is rising again, driven by higher rates in some ethnic minority and socioeconomically disadvantaged groups. www.kcl.ac.uk/news/researc...

Research presented at ESOC 2026 suggests rising stroke rates due to widening ethnic and socioeconomic inequalities | King's College London

New research presented at the European Stroke Organisation Conference (ESOC) 2026 shows that after decades of decline, stroke incidence is rising again, driven by higher rates in some ethnic minority ...

kcl.ac.uk

Calling all people in Australia with post- #stroke aphasia! I'm interested in hearing from you regarding AI. Please see flyer for details.

Delighted to share the final paper from my PhD about #aphasiaawareness - a blueprint for a co-designed, unified international aphasia awareness campaign. doi.org/10.1111/hex....

Co‐Design of a Unified, International Aphasia Awareness Campaign

Introduction Poor aphasia awareness is an international problem. Previous aphasia awareness campaigns have lacked coordination across countries and have not routinely involved people with the divers...

doi.org

Optical clearing & time-lapse fluorescent imaging of Live mouse Brain (up to 800 μm of depth)🤯 An acute olfactory bulb slice(P11) loaded with GCaMP6f (Ca2+ sensor) was imaged with #2PM at a depth of 150 μm during clearing with SeeDB-Live👹 #NatMethods 2026 www.nature.com/articles/s41...

Stroke rehab research WHO CAN PARTICIPATE? 👤Stroke survivors & their family/friend 🧑‍⚕️Stroke rehab staff 🏥Healthcare leaders 🧑‍💼ICB staff 📊Stroke rehab researchers 💷Funders of stroke rehab research WHAT'S INVOLVED? 📄Online survey 💬Online interview 👥Online group discussions   🔗 stroke-rehab.org

Write up of some of the #stroke rehabilitation technology I've been working on lately. strokefoundation.org.au/media-centre...

Using Technology to Change Stroke Recovery - Because I’ve Lived It

strokefoundation.org.au

Pleased to share this review by our talented trainee, Geena! Check it out for the latest on #ferroptosis as a treatment target following #stroke 🧠

Pedro Pimentel-Coelho@ppimentel-coelho.bsky.social · 8mo ago

Ironing out mechanisms of ferroptotic death to tailor new stroke therapies Geena FM Capps et al. 🧪 journals.sagepub.com/doi/10.1177/...

Plus aphasia and other speech disabilities on top of accents and general speech-to-text inaccuracies and AI is a recipe for disaster.

Tech and Disability@news.tad.angrybeanie.com.ap.brid.gy · 8mo ago

The Ada Lovelace Institute in the UK has released a new report looking into the use of AI transcription and note taking services in social care. The report is based on interviews they conducted with a cohort of social workers from 17 different English and Scottish Local Authorities as well as […]

Here is my cartoon about Mr Jon Kudelka www.theguardian.com/commentisfre...

My friend Jon has died | First Dog on the Moon

Jon Kudelka loved his beautiful family and was fiercely intolerant of greed and hypocrisy

theguardian.com

New #EsoBlog: Brain health is a determinant of stroke risk and long-term neurological outcomes. 🔗 https://ow.ly/FbfL50Y9fEK Regular physical exercise can attenuate neurodegeneration. Adequate sleep is equally important. #Stroke #StrokeResearch #StrokeScience #Neurology

Pleased to share our new publication in STROKE: @americanheart.bsky.social Scientific Statement on Early Recognition and Intervention for Poststroke Spasticity. We support advances in research, training and implementation toward earlier diagnosis and timely, innovative spasticity treatments.

Australia too.

Stroke Alliance for Europe (SAFE)@strokeeurope.bsky.social · 9mo ago

Stroke care inequality across Europe is costing lives. The updated #StrokeActionPlan from @esostroke.bsky.social and SAFE calls for urgent national strategies. Read more 🔗 linkly.link/2YfiT #StrokeActionPlan #EUHealth #LifeAfterStroke #HealthEquity

? Do you know the symptoms of atrial fibrillation? AF is a type of irregular heartbeat that can increase your risk of stroke and other serious complications if left untreated. If you notice any symptoms, don’t ignore them—speak to your GP. #SymptomsSunday

Some reflections on research trials in rehabilitation.... doi.org/10.1177/0269...

Randomised controlled trials (RCTs) in rehabilitation: Looking backwards, looking forwards - Avril Drummond, 2026

doi.org

1st time for 2026 volunteering at the rehab facility & it was a powerful reminder of why I volunteer, talking with patients about the challenges of life after #stroke but also celebrating the wins, whether it was the hearing how they spent Xmas with their families or seeing them walking again.

How it started (image) / how it’s going: strokefoundation.org.au/news-and-eve...

Thrilled to announce the publication of my first first-author paper in the Journal of Neuroscience Methods : "Long term direct visualization of the photothrombotic cortical infarction through the intact skull of anesthetized mice" 🧠✨ doi.org/10.1016/j.jn... #Neuroskyence #Stroke #Neuroimaging

So sad and worrying to see. Another #Robodebt scandal in the making.

The Saturday Paper@thesaturdaypaper.com.au · 9mo ago

Rick Morton on the government's increasing use of automation for disability assessments, and the NDIA’s cuts to plans as reforms accelerate: satpa.pe/HnLHT85

Qualitative and quantitative research:

The Phantom Tollbooth Quotes@phantomtollbot.bsky.social · 9mo ago

After days of careful consideration in which all the evidence was weighed and the witnesses heard, they made their decision: Words and numbers are of equal value, for, in the cloak of knowledge, one is warp and the other woof. It is no more important to count the sands than it is to name the stars.

🧠 Calling all stroke health professionals & researchers! I’m recruiting for my thesis study on how anosognosia after stroke is conceptualised and assessed in clinical practice and research. Interested? 👉 Scan the QR code, email GW537@exeter.ac.uk, or sign up here: exe.qualtrics.com/jfe/form/SV_...

With a few bug fixes and quite a bit of customisation work, I got some software to run in my Meta Quest 3 VR head set, to explore the potential of mixed reality software for anomia, or word finding difficulties, common after stroke. www.youtube.com/watch?v=N9Va...

Exploring the use of mixed reality in my Meta Quest headset for anomia.

YouTube video by Across the Cloud

youtube.com

Bledhen nowydh da!

Nadelik Lowen!

Very happy to be a Chief Investigator on this NHMRC funded project: Designed with end users, Prof. Kambanaros will work at Adelaide Uni to build an immersive virtual interactive platform to treat anomia or word finding difficulties patients experience after stroke. www.nhmrc.gov.au/about-us/new...