It's our seven year anniversary 🎉🎊💪 We reflect on the last twelve months and offer a sneak peak of what's coming next in our newest blog post www.physiosforme.com/post/physios...

Physios for ME celebrate our seventh anniversary

It is seven years since the formation of Physios for ME, and at what has now become an annual event, this weekend all four of us got together in person to reflect on our progress so far, catch up on a...

physiosforme.com

Great to see this in UK Chartered Society of Physiotherapy's magazine "Frontline"👏 @physiosforme.bsky.social "How can physiotherapists provide effective therapies while ensuring [ME] patients with this debilitating condition feel safe & supported?" www.csp.org.uk/frontline/ar... #MEcfs #PhysioEd

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) www.csp.org.uk/frontline/ar...

Do no harm: supporting people with ME/CFS

csp.org.uk

Last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @physiosforme.bsky.social www.physiosforme.com/post/new-sur...

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk

Update on our vagus nerve stimulation trial

ME Association@meassociation.org.uk · 6mo ago

Vagus nerve stimulation trial: update  A feasibility trial looking at “transcutaneous auricular vagus nerve stimulation” (taVNS) in people with ME/CFS has now completed data collection.  Read the full progress report: https://meassociation.org.uk/g1i9 #MECFS #VagusNerve #MyalgicEncephalomyelitis

Quick catch up today to plan a new project 🙌😁

This AI generated infographic below summarises our @physiosforme.bsky.social feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5

Two weeks and we've nearly hit 100 respondents. It would be great to reach this target. Please share widely @physiosforme.bsky.social @meassociation.org.uk @longcovidphysio.bsky.social www.physiosforme.com/post/new-sur...

New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to www.physiosforme.com/o2survey

A weekend team catch-up is a great way to touch base, find out all the projects we've been involved with individually, and set up our new team endeavour: watch this space 👀

We've just published a pre-Christmas update on our work over the last few months. Wishing everyone a peaceful break and see you all again in the new year 💜 www.physiosforme.com/post/a-chris...

111 responses in one week. Thank you all. Responses from over 20 professions. A few professions not reached yet - Dentist, Chiropodist/podiatrist, Hearing aid practitioner, Orthoptist, Paramedic, Radiographer. Please share widely thx @physiosforme.bsky.social www.physiosforme.com/hcpwithmesur...

theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social

Red Leaves and Messages of Hope @ Chester Cathedral

By Jo and Nick Greer

theredtreeandme.substack.com

🚨New survey alert 🚨 The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME All information can be found on the landing page here. www.physiosforme.com/hcpwithmesur...

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me

Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social

youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)

YouTube video by Norges ME-forening - Rogaland Fylkeslag

youtu.be

It's our six year anniversary! To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like. You can read a whole recap of our year in our latest blog post here www.physiosforme.com/post/we-cele...

We celebrate our six year anniversary

It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...

physiosforme.com

Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME

Dr Nicola Clague-Baker@claguenjc36.bsky.social · last yr.

Pleased to have 3 abstracts accepted for the Chartered Society of Physiotherapy conference in Nov. Thanks @thecsp.bsky.social @physiosforme.bsky.social

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

Putrino Lab@putrinolab.bsky.social · last yr.

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has www.bmj.com/content/389/... 1/

You might need to try this link instead www.physiosforme.com/onesheetprin...

Physios For ME@physiosforme.bsky.social · last yr.

Here is a one page handout to help identify areas of any practice that might need to be adapted to work safely with people with ME physiosforme.com/onesheetprinto… #MEAwarenessDay

. @meactionuk.bsky.social @actionforme.bsky.social @longcovidkids.bsky.social @physiosforme.bsky.social @longcovidadvoc.com @longcovidphysio.bsky.social @longcovidsupport.bsky.social

ME Association@meassociation.org.uk · last yr.

Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government. @joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social Read the joint statement: meassociation.org.uk/nsts #WorldMEDay #MEAwarenessWeek2025

Today is #MEAwarenessDay We've published a blog with some updates of our recent activities. www.physiosforme.com/post/world-m...

World ME Day 2025

Today is World ME Day. Physios for ME continue to strive for improved awareness, education and care for people with ME, and we've had a busy few months.We are proud to support the There for ME campaig...

physiosforme.com

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

Total pleasure to be part of the presenting line up @meforeningen.bsky.social conference in Stavanger

Brian Hughes@bmhughes.bsky.social · last yr.

Excited to be here in Stavanger, Norway, to speak at @meforeningen.bsky.social conference on ME/CFS and Long Covid Fascinating programme planned, lots of interesting presenters #MECFS #LongCovid #pwME

We welcome your thoughts and input.

Dr Nicola Clague-Baker@claguenjc36.bsky.social · last yr.

We are planning another study which will potentially include blood tests for #pwme and #pwlc. What blood tests would you want and why? Thanks @physiosforme.bsky.social @longcovidphysio.bsky.social

📣 1/5. The UK Government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with #LongCovid and #MECFS. We've launched a survey to gather your insight. ⬇️