Great to see this in UK Chartered Society of Physiotherapy's magazine "Frontline"👏 @physiosforme.bsky.social "How can physiotherapists provide effective therapies while ensuring [ME] patients with this debilitating condition feel safe & supported?" www.csp.org.uk/frontline/ar... #MEcfs #PhysioEd

Do you work with older people but wouldn’t describe yourself as a “frailty specialist”. If so, this is for you! Frailty doesn’t always present neatly. It might look like a fall. New confusion. A sudden change in mobility. A carer saying: “they’re just not themselves.” 1/9

Really proud of getting this article published. We set this as an aim when we first got together so am really pleased 🥳 Thank you to @thecsp.bsky.social for supporting this important message

Physios For ME@physiosforme.bsky.social · 5mo ago

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) www.csp.org.uk/frontline/ar...

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk

Today I had the pleasure of speaking with a knowledgeable patient group about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management. In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5

Update on our latest publication @physiosforme.bsky.social @claguenjc36.bsky.social @sunsopeningband.bsky.social

Physios For ME@physiosforme.bsky.social · 11mo ago

We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....

Went to Manchester for the #hsjpatientsafety awards - so proud to have won the education and training category with our amazing Frailty Academy #frailty

Taking some time to find my way round @bsky.app Anyone got any top tips for me as I am still trying to work out how to get the best from being here! Thank you

a small white dog wearing a pink tutu is standing on a gravel road

ALT: a small white dog wearing a pink tutu is standing on a gravel road

media.tenor.com

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me

Proud to be part of the RoyalSurrey frailty team heading for @rcphysicians.bsky.social awards this evening- finalists in two categories for the #EPCA2025 awards

A fab weekend spent with like minded colleagues who I well and truly count as friends!

Physios For ME@physiosforme.bsky.social · last yr.

It's our six year anniversary! To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like. You can read a whole recap of our year in our latest blog post here www.physiosforme.com/post/we-cele...

youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)

YouTube video by Norges ME-forening - Rogaland Fylkeslag

youtu.be

Proud to stand alongside colleagues in supporting the need for evidence based science to improve care for people living with #ME and or #LongCovid There is no place for the outdated nonsense in recent BMJ article

Putrino Lab@putrinolab.bsky.social · last yr.

Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

bmj.com

Great response from @naomidharvey.bsky.social www.bmj.com/content/383/...

Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis

bmj.com

DrMichelleBull💙@michelleb4.bsky.social · last yr.

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

Putrino Lab@putrinolab.bsky.social · last yr.

Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has www.bmj.com/content/389/... 1/

Tomorrow the 3rd International ME/CFS Research Conference of Charité will take place in Berlin. You can still register for free. Thank you Cort Johnson for the announcement. www.healthrising.org/blog/2025/05...

The 2025 Berlin International ME/CFS Research Conference is Almost Here! - Health Rising

For the third year in a row, Dr. Carmen Scheibenbogen and the Charité Fatigue Center (CFC) at Charité —Universitätsmedizin (a good German tongue twister :)) in Berlin are bringing us an ME/CFS and lon...

healthrising.org

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

What a great letter. Thank you

Tessa Munt MP 🔶@tessamunt.bsky.social · last yr.

So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay

@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social I'm an ally for people with ME - they deserve better from us as health professionals #FundThePlan

Physios For ME@physiosforme.bsky.social · 2y ago

Dear @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social We are Physios for ME and we urge you to #FundThePlan Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below www.facebook.com/watch/?v=166... @thereforme.bsky.social

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM) Please share widely - all info on our website here www.physiosforme.com/athletessurvey

🚨 We're recruiting 🚨 If you're looking for a role in NHS ops as part of a great team, take a look! As the national focus shifts to community based services, you’ll be at the forefront, leading the delivery of outstanding care for older adults #frailty www.royalsurrey.nhs.uk/current-vaca...

40% of ED attendances are over 65yrs. Average wait for admission in>75yrs =12 hours. 10% attendances from care homes. Waiting is especially bad for older -risk of delirium, deconditioning, acute kidney injury/LOS. But much could be done to avoid these probs @gerisoc.bsky.social @rcem.bsky.social

Great opportunity to talk on BBC Breakfast today about the amazing work of our frailty teams across the four nations. Thank you to everyone working in these services today in the snow!! @gerisoc.bsky.social

Adam Gordon MBE@adamgordon1978.bsky.social · 2y ago

Fantastic to see @jkdhesi.bsky.social, President of @gerisoc.bsky.social speaking on @bbcbreakfast.bsky.social about the difference we can make through acute frailty units to deliver better care to older people who present with emergencies.

We know considered, timely (soon!) social care reform is essential to deliver quality healthcare for older (&younger) people &to reduce daily crisis management in NHS. A consistent message from patients, carers, @gerisoc.bsky.social & our partner organisations. Let’s build on what we already know

Sunday morning #CPD (on a Saturday - have had some days off & no idea what day of the week it is really!) A great article from @otskiff.bsky.social & Ciara Brean journals.lww.com/cptj/fulltex... Lots of learning about cognitive dysfunction in #LongCovid & #MECFS @physiosforme.bsky.social

More than “Brain Fog”: Cognitive Dysfunction and the Role... : Cardiopulmonary Physical Therapy Journal

e activity is considered when working with people with long COVID, particularly when identifying triggers of post exertional symptom exacerbation. There are many potential mechanisms that could be dri...

journals.lww.com

I’d like to crowdsource a poem, if you all are willing: If you have #LongCovid, please name your worst 3-5 symptoms. I’m gonna track responses and make a word cloud. The more the better so please share!

The increased alanine and BCAA levels in females, in particular, suggested, for the first time I can remember, a metabolic reason why more women may have ME/CFS. It turns out that women, more so than men, rely on a process called anaplerosis to replenish their www.healthrising.org/blog/2024/12...

Why Do More Women Get ME/CFS? Study Suggests it May be the Mitochondria... - Health Rising

Major chronic fatigue syndrome metabolomic finds problems with energy production and lipid metabolism in ME/CFS.

healthrising.org

We promised that the #LCPForum was research generating … … so here it is 💙📰 Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum #LongCOVID journals.lww.com/cptj/fulltex...

Priorities for Research, Education, Clinical Practice, and... : Cardiopulmonary Physical Therapy Journal

litation. Methods: We conducted an international consultation on priorities for long COVID and rehabilitation with people living with long COVID, clinicians, researchers, and other key interest-hol...

journals.lww.com