⭐Job opportunity for UK-based PhD student/recent grad⭐ @nisreenalwan.bsky.social @dalupton.bsky.social Nina Smyth & I are recruiting a Research Assistant for our project on improving healthcare support for Long Covid patients. To apply (deadline 19 June): portal.unitemps.com/Search/JobDe...

After introducing this research project via our past publications, we now start an ongoing thread on a key concept in our work: lay expertise. In the weeks ahead, we’ll present classics and brand-new texts we consider central and relevant – and welcome your comments and suggestions! #layexpertise

“Most People with Long COVID Are Their Own Doctors” by @sazanajayadeva.bsky.social & @dalupton.bsky.social (2025) shows vividly how self-help and self-tracking turn patients into experts for themselves while problematising medical authority. journals.sagepub.com/doi/10.1177/... #layexpertise

This is a really interesting article. Well worth reading in full. It's such a shame that GPs are so resistant to the use of self-tracking technologies, as they could so easily be used to empower their patients to manage their conditions better. Let's hope things start changing soon on this.

Sazana Jayadeva@sazanajayadeva.bsky.social · last yr.

Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'. journals.sagepub.com/doi/10.1177/... 1/2

As someone with ME/CFS who has to guard my cognitive exertion, I'm going to be reading the linked article in bits over time, but already want to share it just a little of the way in. So far, really appreciating the clarity, patient respect, and framing.

Sazana Jayadeva@sazanajayadeva.bsky.social · last yr.

Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'. journals.sagepub.com/doi/10.1177/... 1/2

"We urge practitioners to treat patient-generated data as a valuable resource. Without this shift, patients with contested illnesses like long Covid risk remaining stuck in a system where they have to be their own doctors." Dr Jayadeva www.bbc.co.uk/news/article...? #LongCovid #PatientAdvocacy

Long Covid patients gaslit by GPs, Surrey study finds - BBC News

The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.

bbc.co.uk

BBC: “Long Covid patients gaslit by GPs, study finds” “Dr. Sazana Jayadeva, a research fellow at the university, said a "shift was needed in medical culture" following the findings” www.bbc.com/news/article...

Long Covid patients gaslit by GPs, Surrey study finds

The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.

bbc.com

"Dr Jayadeva, who co-authored the study, added: 'We found that people with #longCovid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support.'"

Long Covid patients gaslit by GPs, Surrey study finds

The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.

bbc.com

#OutNow in #iCS Jayadeva and Lupton explore how individuals with Long COVID use self-tracking to understand and manage their illness. Such practices offer empowerment and validation to individuals while challenging power differentials. doi.org/10.1080/1369...

‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID

People living with Long COVID are dealing with significant challenges related to limited understanding of this novel condition, social stigma, and lack of support from medical professionals and oth...

doi.org

Study: ‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice. Published: July 20, 2025 journals.sagepub.com/doi/10.1177/...

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

"Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves." Source: www.surrey.ac.uk/news/patient...

News Release 19-Aug-2025 Patients with #LongCOVID forced to become their own doctors www.eurekalert.org/news-release... "participants ... are using data from smartwatches and symptom-tracking apps to evidence their symptoms to their medical practitioners and advocate for diagnostic tests" #PASC

'Self-tracking empowers Long COVID patients amid medical dismissal' 'Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals...' www.news-medical.net/news/2025081...

Self-tracking empowers Long COVID patients amid medical dismissal

Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...

news-medical.net

University of Surrey: 'Denied support, long COVID patients turn to self-tracking and online groups for care' 'Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals...' medicalxpress.com/news/2025-08...

Denied support, long COVID patients turn to self-tracking and online groups for care

Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...

medicalxpress.com

Someone said I'd probably like @dalupton.bsky.social's book Risk, and doing my due diligence, bumped into an interesting #longCovid piece: www.tandfonline.com/doi/full/10....

‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID

People living with Long COVID are dealing with significant challenges related to limited understanding of this novel condition, social stigma, and lack of support from medical professionals and oth...

tandfonline.com

1/ "We found that people with Long COVID are often left to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support": www.news-medical.net/news/2025081...

Self-tracking empowers Long COVID patients amid medical dismissal

Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...

news-medical.net

Many long COVID patients are using wearable devices and online communities to track symptoms, advocate for care, and navigate a healthcare system that often lacks adequate support for their condition. doi.org/g9xj8d

Denied support, long COVID patients turn to self-tracking and online groups for care

Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves.

medicalxpress.com

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice by @sazanajayadeva.bsky.social ‪& @dalupton.bsky.social journals.sagepub.com/doi/10.1177/... Screenshot from Science for ME weekly update #LongCovid #PASC

UN agency says staff fainting from hunger as starvation spreads in Gaza

UN agency says staff fainting from hunger as starvation spreads in Gaza

Israeli official says Hamas’s latest ceasefire proposal is workable as two sides prepare for talks mediated by Qatar * Middle East crisis – live updates The head of the UN agency for Palestinians has said its staff were fainting from hunger, as the starvation crisis in Gaza resulting from an Israeli blockade on most aid into the territory worsens. “People in Gaza are neither dead nor alive, they are walking corpses,” Philippe Lazzarini, the head of the United Nations Relief and Works Agency (Unrwa) said in a post on X. Continue reading...

theguardian.com

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice journals.sagepub.com/doi/10.1177/... @dalupton.bsky.social

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025

This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...

journals.sagepub.com

Brilliant new research paper by a friend of mine on the experiences of people with #LongCovid using self tracking devices and peer support in the absence of sufficient answers and help from medical professionals journals.sagepub.com/doi/10.1177/...

‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025

This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...

journals.sagepub.com

"Epistemic justice for people with Long COVID and other contested illnesses will never be fully achieved until the medical profession can develop greater epistemic humility and takes steps to redress testimonial and hermeneutical injustice": journals.sagepub.com/doi/10.1177/...

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'. journals.sagepub.com/doi/10.1177/... 1/2

Happy to share a new article, just published open access in @socresonline.bsky.social: 'Getting Back on Track: Student Migration From India to Germany as a Route to Desirable Employment'. journals.sagepub.com/doi/10.1177/...

Getting Back on Track: Student Migration From India to Germany as a Route to Desirable Employment - Sazana Jayadeva, 2025

This article examines the rising postgraduate-level student migration of Indian engineers to Germany, drawing on interviews with 42 Indians who were applying to...

journals.sagepub.com

📖📚 Have you registered for our upcoming ECR RIS reading group? 20 May 2025 3.00-4.30pm BST ✒️ register here: lnkd.in/edviAa_E @risnetwork.bsky.social @sazanajayadeva.bsky.social

Vera Spangler@ve-spa.bsky.social · last yr.

📆RIS ECR Reading Group @risnetwork.bsky.social 20 May 2025 3.00-4.30pm BTS | 10.00-11.30 CLT ✒️Register: forms.gle/2nWPwLksPp4S... 📖Sazana Jayadeva (2020), Keep calm and apply to Germany: How online communities mediate transnational student mobility from India to Germany: doi.org/10.1080/1369...

‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID Image is from latest Science for ME weekly update www.tandfonline.com/doi/abs/10.1... #LongCovid #PASC

Registration is now open for our @srhe.bsky.social webinar on international student mobility from and to India! There will be 3 panels, 9 papers, and lots of Q&A! When: 16 May, 10 am - 1.05 pm (UK time) For more details & registration: srhe.ac.uk/civicrm/?civ... Please repost!

📢New article: 'Paradoxical Parenting Practices and Australian Higher Education', in @sociologyjnl.bsky.social, with @drdanwoodman.bsky.social & @juliacook.bsky.social #parenting #HE #intensiveparenting journals.sagepub.com/doi/epub/10.... 🧵

📚 RIS ECR Reading Group 🗓️ February 4th, 3:00-4:30pm (UK time) ☕ Please join us, and sign up here: forms.gle/YK935MfnaSgi... We'll be focusing on language and ISM, discussing Zhang, Lütge & Zou (2021): www.tandfonline.com/doi/full/10....

Investigating international students’ attitudes toward local teachers’ L1 use and learning practices in English-medium instruction in Germany: a Chinese case study

Although there is a body of research on the teacher first language (L1) use in English-medium-instruction (EMI) classrooms, very little research has probed into how international students perceive ...

tandfonline.com

Coming (very) soon: 22nd of Jan, 12:30, online, Pascal Angerhausen from the Universität Hildesheim is talking about the inclusion and exclusion of students with disability in German HE as part of our @edreslancaster.bsky.social seminar series. Details/sign-up: www.lancaster.ac.uk/educational-...