Congrats to James Frith MP, newly appointed as the Minister for Health Innovation, with responsibility for ME. I’ve written to him on ME emphasising that given the numbers, and the length and extent of suffering, ME represents a significant burden at personal level, to society and to our economy.

The Reality of Invisible Burden: Cailleach and Brân the Blessed This is the third of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. humanisticsystems.com/2026/08/12/t...

Free Long Covid / ME/CFS Trackers Simple daily Excel diaries to help identify long term patterns (activity, exertion, functional capacity, recovery, PEM) on phone/PC. ⌚Garmin - wp.me/a3KgVs-3WS ⌚Apple Watch - wp.me/a3KgVs-3WR 📱Generic - wp.me/a3KgVs-3WQ

Last 3 hours before the 66 mile, 24 hour run starts. £117 to go to reach our goal of £5000 for ME Research UK, a Scottish charity that funds high quality biomedical research into myalgic encephalomylitis 💙 www.justgiving.com/page/gary-sh...

Gary Shorrock’s Bob Graham Round for ME/CFS: 66 Miles for Research and Hope

Help Steven Shorrock raise money to support ME Research UK

justgiving.com

We’ve just passed £4600 for ME Research UK. My brother is running 66 miles in 24 hours, climbing 27,000 feet. If you can spare the price of a coffee, we and people with ME would appreciate the support for biomedical research. Thank you 💙 www.justgiving.com/page/gary-sh...

Gary Shorrock’s Bob Graham Round for ME/CFS: 66 Miles for Research and Hope

Help Steven Shorrock raise money to support ME Research UK

justgiving.com

The Reality of Calculating Exposure and Energy: Geasa and Tynged This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. humanisticsystems.com/2026/06/03/t...

The Reality of Calculating Exposure and Energy: Geasa and Tynged

This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore.Many chr…

humanisticsystems.com

My crankiest old man take is that referring to all art/entertainment/journalism/criticism/comedy/advertising as “content” helped pave the way for broad-ish acceptance of AI slop.

The Reality of Calculating Exposure and Energy: Geasa and Tynged This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. humanisticsystems.com/2026/06/03/t...

The Reality of Calculating Exposure and Energy: Geasa and Tynged

This is the second of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore.Many chr…

humanisticsystems.com

About a decade ago I spent a merry 24 hours trying to work out what Farage’s cultural interests were. It was fascinating because it turned out he had none. Literally none. Someone who knows him very well later confirmed to me that he was completely uninterested in music "apart from military bands"

The reality of fluctuation and unpredictability: Aos Sí and Awen The 1st of 7 realities in a series on living with chronic conditions and dynamic disability, explored through Celtic folklore. humanisticsystems.com/2026/05/31/t... With a nod to @blindboyboatclub.bsky.social

The reality of fluctuation and unpredictability: Aos Sí and Awen

This is the first of seven realities in this series on living with chronic conditions and dynamic disability, explored through language, concepts and images from Celtic folklore. With chronic condi…

humanisticsystems.com

Invisible Worlds: Celtic Folklore for Living with Chronic Conditions and Dynamic Disability A new series of nine posts. Intro: humanisticsystems.com/2026/05/30/i... #MECFS #LongCovid #Autism #PTSD

Invisible Worlds: Celtic Folklore for Living with Chronic Conditions and Dynamic Disability

Newington Cemetery, Edinburgh, Scotland, once known as Newington Necropolis or Echobank Cemetery, now partially rewilded.Image: Steven Shorrock (2026) CC BY-NC-ND 4.0 They live among you. They appe…

humanisticsystems.com

My brother is taking on one of Britain’s most demanding endurance challenges for @meresearchuk.bsky.social ME/CFS can leave people unable to work, study, socialise, or manage ordinary daily activities. ME Research UK commissions and funds high-quality biomedical research into ME/CFS. Thank you🙏🏻

#ME/CFS is the neuro-immuno-metabolic illness that takes away your whole body’s ability to function and live. And the more you push through your energy envelope, the more it takes away and disables you. It is also still the most misunderstood, mischaracterized, neglected and underfunded disease.

Seems ludicrous now a couple of years ago I’d not realised the reason why overdoing things on the day after I appeared to have gotten away with overdoing it the day before; wasn’t just doubling the impact of the delayed PEM but creating a situation of rolling PEM 🤦🏻‍♀️

Steven Shorrock@stevenshorrock.bsky.social · 3mo ago

I Crash: Texts from M.E. This post uses my own text messages to give a first-person documentary account of an experience of Long Covid and ME/CFS. humanisticsystems.com/2026/05/17/i...

“The fatigue of ME/CFS is so unlike the ordinary use of the term, that it feels like far too small a word.” Yes! Excellent post. I have mild #longcovid. I can work and live a paced life. Many others cannot. It is cruel. Quality of life plummets. Your life changes. You adapt. You have no choice.

Steven Shorrock@stevenshorrock.bsky.social · 3mo ago

I Crash: Texts from M.E. This post uses my own text messages to give a first-person documentary account of an experience of Long Covid and ME/CFS. humanisticsystems.com/2026/05/17/i...

I Crash: Texts from M.E. This post uses my own text messages to give a first-person documentary account of an experience of Long Covid and ME/CFS. humanisticsystems.com/2026/05/17/i...

I Crash: Texts from M.E.

Low-energy summary This post uses my own text messages to give a first-person documentary account of an experience of Long Covid and ME/CFS. I use private messages, sent at different times to diffe…

humanisticsystems.com

My brother is taking on one of Britain’s most demanding endurance challenges for @meresearchuk.bsky.social ME/CFS can leave people unable to work, study, socialise, or manage ordinary daily activities. ME Research UK commissions and funds high-quality biomedical research into ME/CFS. Thank you🙏🏻

It could be me

A short film about living with chronic conditions and dynamic disability. About devastation and grief. About unpredictability and risk. About music and art and people and passion and hope. Thanks @wearejames.bsky.social for the music to end the day www.threads.com/@stevenshorr...

Steven Shorrock (@stevenshorrock) on Threads

A short film about living with chronic conditions and dynamic disability. About devastation and grief. About unpredictability and risk. About music and art and people and passion and hope.

threads.com

I've listed tickets for James at Glasgow OVO Hydro on 8 April (standing). The fair fan to fan marketplace seetickets.com/rd/event/james… via @seetickets #SeeFan2Fan

“Rather than medicalising normal autistic experience, an autism diagnosis can provide an explanatory and legitimising framework for autistic people and for parents, teachers, and others”

Steven Shorrock@stevenshorrock.bsky.social · 5mo ago

Uta Frith is right to call for rigour in autism research and diagnosis. But some of her recent public claims about the spectrum, later diagnosis, and masking risk overlooking current evidence and autistic people's lived realities. My response: humanisticsystems.com/2026/03/13/r... #Autism

Uta Frith is right to call for rigour in autism research and diagnosis. But some of her recent public claims about the spectrum, later diagnosis, and masking risk overlooking current evidence and autistic people's lived realities. My response: humanisticsystems.com/2026/03/13/r... #Autism

Reflections on the Autistic Spectrum: A Critical Response to Uta Frith’s Views

Professor Uta Frith’s recent TES interview has prompted intense debate about autism, diagnosis, and the meaning of the spectrum. This response considers some of her central claims in light of curre…

humanisticsystems.com

Uta Frith is right to call for rigour in autism research and diagnosis. But some of her recent public claims about the spectrum, later diagnosis, and masking risk overlooking current evidence and autistic people's lived realities. My response: humanisticsystems.com/2026/03/13/r... #Autism

Reflections on the Autistic Spectrum: A Critical Response to Uta Frith’s Views

Professor Uta Frith’s recent TES interview has prompted intense debate about autism, diagnosis, and the meaning of the spectrum. This response considers some of her central claims in light of curre…

humanisticsystems.com

The catastrophic impact to local health where the air is poisoned, as well as to our global ecosystem as they literally set the planet on fire and fill the atmosphere with pollutants

Leila Molana-Allen@leilama.bsky.social · 6mo ago

North Tehran’s Aqdasiyeh oil depot is ablaze tonight after it was targeted by multiple US-Israeli airstrikes. Apocalyptic scenes filmed by Iranians driving on the nearby highway. Local reporters saying firefighters can’t put it out. This depot is critical energy infrastructure for Iran.

My hunch is that non-autistic people do not spend months/years reading books about autism, following accounts of autistic people, paying for assessments, or feel the need for a formal process. And if you pass the test…you have a label that non-autistic people would not want.

The school system we have is designed to produce professors, not the vast majority of life paths that people go on to take and the skills they need. Little about the planned secondary school experience, in particular, prepares children for what they are about to encounter on leaving education.

Frith has joined Peterson and Mate on the end career hot take podium. #autism

So, they’re going after autistic people. Next it’ll be people with ME/CFS. Wait…they already did those.

Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

Adam@abrokenbattery.bsky.social · 6mo ago

Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness. The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.

16y/o: I think it’s classist that my journalism course isn’t counted as a Scottish Higher, nor the course on creative thinking.