Headed to our @renegaderesearch.bsky.social Innovation Inn research project in Montreal. Packing was intense, but we were able to fit everything. Our team will be sharing real-time over the next week about what we're doing and any interesting findings. Follow along with the hashtag #InnovationInn

More exciting news! @isabelrb.bsky.social & @tessfalor.bsky.social met with someone who recommended TokuKits teiko-labs.com/tokukit They need them by Monday to take to Montreal for #InnovationInn Tess reached out to @hereisramji.bsky.social & his team at Seiko Labs, they will ship them on time! 🎉

Renegade Research@renegaderesearch.bsky.social · 2w ago

We have exciting news! Two members of @immunofever.bsky.social's research group will join us at Innovation Inn next week to demo testing they use in their MAESTRO project: RightEye eye tracking, WAVi EEG, Nailfold capillaroscopy, @wearlumia.bsky.social blood flow to the brain Thanks to Mikki 🙏

We have exciting news! Two members of @immunofever.bsky.social's research group will join us at Innovation Inn next week to demo testing they use in their MAESTRO project: RightEye eye tracking, WAVi EEG, Nailfold capillaroscopy, @wearlumia.bsky.social blood flow to the brain Thanks to Mikki 🙏

1/ 🚨 Big news: @solveme.bsky.social has awarded @renegaderesearch.bsky.social a Catalyst Award to launch SIGNAL - a decentralized platform to test promising therapeutic devices for ME/CFS and Long COVID. Here's what it means for patients 🧵

We just got published! 🥳 "Brainstem dysfunction as a potential etiology of #MECFS and #LongCovid: A mechanical basis” by Jeff Wood, @thosvarley.bsky.social @hiimjakekthx.bsky.social @artasemita.bsky.social @tessfalor.bsky.social @kaufmanmd.bsky.social www.sciencedirect.com/science/arti... 1/6 🧵

Brainstem dysfunction as a potential etiology of ME/CFS and long COVID: A mechanical basis

The underlying mechanism of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains poorly understood. Given the dramatic increase in case…

sciencedirect.com

A so-called shitstorm led me to study the extensive protocols of Joshua Leisk a bit further. It will still take time until people understand how important his scientific work is. Chapter 2.2.6: Welcome to my glycogen dump 😂👇🏼. @tessfalor.bsky.social #mecfs

Join us March 13 at 1 pm ET (US) for a Research Roundtable with @resiapretorius.bsky.social of @suhealthsci.bsky.social @liverpooluni.bsky.social, @dbkell.bsky.social of @liverpooluni.bsky.social, Jordan Vaughn of MedHelp, Jill Schofield of @cuanschutz.bsky.social 🧵Registration link, research below

We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research! Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more 🧵 1/

Volunteer Info Session recording: www.youtube.com/watch?v=H40w... @tessfalor.bsky.social, @isabelrb.bsky.social, @ellybrosius.bsky.social, @katboniface.bsky.social, @mayalongcovid.bsky.social with org overview, volunteer work, current/future projects Slideshow: docs.google.com/presentation... 2/

Renegade Research Volunteer Information Session

YouTube video by Renegade Research

youtube.com

This is coming up this Saturday at noon ET. Join us to meet our awesome team and learn out how you can get involved!

Renegade Research@renegaderesearch.bsky.social · 9mo ago

We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer Register in next post 1/2

The Amatica team is doing amazing patient-led decentralized work. Can't wait to hear more on the 21st!

Renegade Research@renegaderesearch.bsky.social · 9mo ago

Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21! They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard Register in next post 1/2 #MedSky

Exciting news! The community raised enough money to cover all of the samples for David Esteban's study. We don’t have to raise the full $7k, because a lab has offered to run them for lower cost! 🙌

Total so far is $4,356 of $7,000 goal raised! Pls donate if possible - every $5 matters - more than double the impact of this PASC (Long Covid) metabolites study (lab closed that was to process the samples). This research will likely help people with ME/CFS as well and other populations. #medsky

Tess Falor, Ph.D.@tessfalor.bsky.social · last yr.

The $7k would amplify the study's impact on understanding Long COVID! Read more about the study and donate here: www.zeffy.com/en-US/fundra...

Wow! Making good progress on this fundraiser @tessfalor.bsky.social 😊 Just a little more to go folks... donations of any size will help complete this very important #longCovid study!

KimK ... one day at a time 🇨🇦@topazstudioscom.bsky.social · last yr.

The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!

The majority of the work has been completed on this #longCovid research project... just needs a little push to button-up. Read more and donate if possible as below per @tessfalor.bsky.social who is one of the participants in the study!

Tess Falor, Ph.D.@tessfalor.bsky.social · last yr.

The $7k would amplify the study's impact on understanding Long COVID! Read more about the study and donate here: www.zeffy.com/en-US/fundra...

#LongCovid

Tess Falor, Ph.D.@tessfalor.bsky.social · last yr.

The $7k would amplify the study's impact on understanding Long COVID! Read more about the study and donate here: www.zeffy.com/en-US/fundra...

Dates are set! May 13-19. #InnovationInn 5 patient-scientist team members will come to my house to run self-experiments related to Post Exertional Malaise (PEM)/Post Exertional Symptom Exacerbation (PESE) & do real-time analysis of our samples.

Tess Falor, Ph.D.@tessfalor.bsky.social · last yr.

Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples. It's happening. My house. April or May 2025. @RenegadeRes #RenegadeResearch #InnovationInn #ResearchRetreat 🔬🏡

Hey y’all—David Esteban’s @patientled.bsky.social funded Long Covid study has hit a snag just before the finish line—the cost to process samples went up. They’ve collected 43 but now can only run 20. $7000 would cover the rest! Thanks so much for giving or boosting!

Support David Esteban's study on Microbial Metabolites in Long COVID

* Heads up: Zeffy has a default "tip" of 17% that goes to them, but it's not required. When you go to donate, you can select the dropdown under "Help keep Zeffy free for Renegade Research" and put in ...

zeffy.com

3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the @patientled.bsky.social research fund). It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more. 🧵

Round Table on lactate levels in #MECFS and #LongCovid! 👇 Thank you @sunsopeningband.bsky.social @ciarawrightphd.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @katboniface.bsky.social @doc4care.bsky.social and everyone else from @renegaderesearch.bsky.social for your great efforts!

Renegade Research@renegaderesearch.bsky.social · last yr.

Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test. youtu.be/6BUZtcC1Ezc

You are invited to attend our next Renegade Research #Clinician Roundtable on April 11, 2025 ✅️ Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD + more. us06web.zoom.us/webinar/regi...

Very excited to say that @crunchme.bsky.social's first report is out and about 🙌 The Future is a Policy Choice: Addressing Infection-Associated Chronic Conditions Our goal here is to bring together the key info needed to make the case for taking action *now*! drive.google.com/file/d/17fgU...

Imagine scientist-patients getting together for a week to run an experiment. Gathering tons of data and biological samples. It's happening. My house. April or May 2025. @RenegadeRes #RenegadeResearch #InnovationInn #ResearchRetreat 🔬🏡

It's so exciting to see an #MEspine related paper published! Good timing before the #MEspine24 (or I guess now #MEspine25) research roundtable tomorrow! www.frontiersin.org/journals/neu...

Frontiers | Comorbidities and neurosurgical interventions in a cohort with connective tissue disorders

frontiersin.org

Looking forward to the part about "possible treatments in ME/CFS" Jan 24, 2025 1p Eastern US Hosts include @renegaderesearch.bsky.social @tessfalor.bsky.social @isabelrb.bsky.social @richellesepulveda.bsky.social Robert Naviaux, MD. Q. Can NextGen Metabolomics be used to help diagnose CFS? A: Yes!

Elly Brosius, MS@ellybrosius.bsky.social · 2y ago

Wow! Next Week: 1/24/25, Fri, 1p ET US. Speaker Robert Naviaux, MD, (Genetics Prof UCSD) on "Cell danger response (CDR) inhibition of salugenesis—molecular and mechanical mechanisms and possible treatments in ME/CFS" Register here us06web.zoom.us/webinar/regi...

I've been obsessed with Bob Naviaux's work for a few years now. He takes an evolutionary perspective, which I've been interested in for over a decade. Next Friday he will bring in another of my favorite topics - #MEspine (mechanical spine issues leading to #MECFS Sx) tinyurl.com/4c34kety

We had a great @remissionbiome.bsky.social primary Preliminary results meeting today! Watch the recording: youtu.be/Y4Un2rQLKTw

Let's start the new year with a few people really worth following if you're interested in #MECFS and #LongCovid: @scheibenbogen.bsky.social @putrinolab.bsky.social @sunsopeningband.bsky.social @exceedhergrasp1.bsky.social @isabelrb.bsky.social @tessfalor.bsky.social More ⬇️ go.bsky.app/42cuLif

To prep for @renegaderesearch.bsky.social @tessfalor.bsky.social talk on 1/24/2025, you might scan Dr. Naviaux and his lab's ME/CFS page. (This talk is part 3 in series exploring mechanical, brainstem, and molecular basis hypotheses of ME/CFS.) naviauxlab.ucsd.edu/science-item...