"She did not stand alone, but what stood behind her, the most potent moral force in her life, was the love of her father." -Harper Lee Love you and miss you Dad 🤍 Thinking of you on your birthday.
KimK ... one day at a time 🇨🇦
@topazstudioscom.bsky.social
Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
6 Butter Brands to Skip and 4 that are Actually Real #Butter in Canada youtube.com/watch?v=HDIG... #carnivore #keto
6 Butter Brands To Skip And 4 That Are Actually Real Butter in Canada
YouTube video by Canada Insight
youtube.com
The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...
"Pernio-like lesions ( #COVID19 toes) and associated #limb #ischemia are also diagnosed in COVID-19." #amputation
"COVID-19 Associated Nephropathy has been proposed to describe renal involvement in #COVID19 which according to American Society of Nephrology ranges btwn 15% to 40%. Acute #kidney injury, proteinuria & progression of chronic renal disease reported as manife..." pmc.ncbi.nlm.nih.gov/articles/PMC...
Vascular Alterations Following COVID-19 Infection: A Comprehensive Literature Review
SARS-CoV-2, the causative agent of the ongoing COVID-19 pandemic, has revealed a broader impact beyond the respiratory system, predominantly affecting the vascular system with various adverse manifest...
pmc.ncbi.nlm.nih.gov
My lecture, "What to Know About Long Covid" has been posted by the University of Pittsburgh's Supercourse on YouTube! Just the basics! What to know about Long Covid youtu.be/DHTns4qMQj8?... via @YouTube
What to know about Long Covid
YouTube video by Evgeniy Shubnikov
youtu.be
Covid-19 early 2020 followed by #longCovid, End-Stage Kidney Disease, IgGdeficiency, 75+ symptoms... and as of last month an #amputee due to blood vessel damage. ♿️ Please show your support for research by donating any amount to @RenegadeResearch.bsky.social at www.renegade-research.org/donate 💙
1. Have you seen our New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social Links in comment
Don’t miss our next clinician’s roundtable where our medical director, John Haughton, MD, and Joshua Leisk from the Born Free protocol will discuss biochemical dysfunction and clinical approaches in MECFS and Long Covid. Registration link: us06web.zoom.us/webinar/regi...
Welcome! You are invited to join a webinar: Biochemical Pathways & Clinical Applications for ME/CFS with Joshua Leisk & John Haughton, MD. After registering, you will receive a confirmation email abou...
A Renegade Research Clinical Roundtable with Joshua Leisk Theoretical Biochemist, Independent Sydney, Australia Known for The Born Free Protocol https://bornfree.life/2024/ John Haughton, MD, is the...
us06web.zoom.us
✅️ Accelerate Research + Care! 🔬 #MECFS #longCOVID Our work impacts the lives of many! Patients + caregivers are listened to and empowered. (campaign link below)
Here's one stat to sit with today. "Prevalence studies have found that 65–70 percent of youth in the justice system meet the criteria for a disability, a rate that is more than three times higher than that of the general population." www.ndrn.org/wp-content/u...
ndrn.org
Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. Many people with #EDS or #HSD also have a type of #dysautonomia. There are different types of dysautonomia with different symptoms. www.ehlers-danlos.com/dysautonomia/
Dysautonomia - The Ehlers Danlos Society
ehlers-danlos.com
Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research “at no additional cost to you” by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. 💙 Thank you! 🔗 amzn.to/3DKgOaX
Today's Deals
amzn.to
✅️ Weekends are a great time to catch up on #Clinician and #Research Roundtables! 🔗 Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch
Edinburgh Study Links ME/CFS to “Blood-Based Biomarkers” By David Tuller @davetuller1.bsky.social virology.ws/2025/06/21/t... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
If 4.9 million kids with asthma is a national health priority, what does it mean when 5.8 million have Long Covid? Why is the #1 chronic condition in children being ignored?
Too Much Exertion Produces Autonomic Nervous System Hit in #LongCOVID, #MECFS, and #Fibromyalgia www.healthrising.org/blog/2025/04...
Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia - Health Rising
Geoff’s Narrations The GIST The Blog A trip to Seattle to see Dr. Ruhoy held up the blogs a bit but they’re back! Exercise physiologist Rob Wust’s “Wearable heart rate variability monitoring identif...
healthrising.org
'Largest study to date assesses long-term impact of COVID-19 on kidneys' 'A new study of more than 13 million people in England has found no evidence to suggest mild COVID-19 infection may cause long-term kidney damage.' medicalxpress.com/news/2025-06...
Largest study to date assesses long-term impact of COVID-19 on kidneys
A new study of more than 13 million people in England has found no evidence to suggest mild COVID-19 infection may cause long-term kidney damage. However, patients hospitalized with severe COVID-19 in...
medicalxpress.com
Very happy to announce the first of what will hopefully be many papers with @renegaderesearch.bsky.social. The idea that post-acute infectious syndromes are related to dysfunction in the brainstem and cervical spine has been discussed by patients for years... www.preprints.org/manuscript/2... 1/N
A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID
The underlying pathologies driving post-acute infectious syndromes (e.g. myalgic encephalomyelitis / chronic fatigue syndrome, long COVID, etc) remain poorly understood. Given the extreme burden these illnesses impose on suffers, and the dramatic increase in cases following the COVID-19 pandemic, it is important to establish a deeper understanding of these pathologies. We propose a model of how ME/CFS (and related illnesses), might emerge following a viral insult. Central to this hypothesis is the recognition that the core diagnostic features of ME/CFS involve bodily systems known to be governed by the brainstem. This is consistent with the growing literature suggesting that spinal and craniocervical pathologies are over-represented in people with ME/CFS and other post-infectious disorders. We hypothesize that a non-trivial number of cases of ME/CFS and Long Covid (LC) may have a ``mechanical basis." We propose that an infectious insult may trigger an initial loss of connective tissue integrity in susceptible individuals (e.g. those with pre-existing hypermobility spectrum disorders), which in turn leads to instability at the craniocervical junction, and ultimately mechanical deformation of the brainstem. This ultimately causes widespread autonomic nervous system and immune system dysfunction due to aberrant signaling from the deformed nuclei. This causal chain may also lead to a vicious cycle: if the dysregulation produced by the initial brainstem deformation leads to a deranged immune response or state of chronic hyper-inflammation, further expression of connective tissue degrading and remodeling factors such as MMPs and mast cells may be triggered. This could further degrade the connective tissues of the craniocervical junction and, in turn, increase mechanical deformation of the brainstem, leading to symptom exacerbation over time and leading to the chronic, lifelong presentation typical of ME/CFS.
preprints.org
Watching people I’ve known for years recover from Long COVID feels like the start of a quiet renaissance. They return with a deep clarity about what truly matters, something words can barely capture. Those who know, know.
What do Shania Twain, Avril Lavigne, Yolanda Hadid, Ashley Olsen, Kelly Osbourne, Bella Hadid, and Daryl Hall have in common? Lost voices and more linked to #Lyme disease at some point in their lives. globalnews.ca/news/3424165...
Shania Twain says Lyme disease caused her to lose her voice - National | Globalnews.ca
Back in 2011, Shania Twain opened up about her struggle with dysphonia, and now says that the condition was brought on by Lyme disease.
globalnews.ca
"First they got #longCovid. Then it made them homeless." Subjected to major #discrimination due to my 3 #chronicillnesses this month. Was told where I live is WORST protection for renters than anywhere in Canada. 😢 This #stigma + senseless #homelessness must stop! thesicktimes.org/2025/06/17/l...
Long COVID is increasing housing insecurity, but support programs fail to help - The Sick Times
A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.
thesicktimes.org
📣 People with Long COVID face an increased risk of housing insecurity. Research shows this trend, which people with the disease have warned for years. Freelance reporter @jloeppky.com reports for @thesicktimes.bsky.social. thesicktimes.org/2025/06/17/l...
Long COVID is increasing housing insecurity, but support programs fail to help - The Sick Times
A growing body of research shows that Long COVID, combined with a lack of government support, leads to financial insecurity and housing instability.
thesicktimes.org
We are pushing so many people into housing insecurity. Imagine being very sick AND homeless. This is the reality of millions with #LongCovid. Thank you the @thesicktimes.bsky.social for keep talking about it.
Miles W. Griffis@mileswgriffis.bsky.social · last yr.📣 People with Long COVID face an increased risk of housing insecurity. Research shows this trend, which people with the disease have warned for years. Freelance reporter @jloeppky.com reports for @thesicktimes.bsky.social. thesicktimes.org/2025/06/17/l...
My interpretation of the potential mechanisms involved in post-COVID-19 neuroinflammation #LongCovid #NeuroCovid (2/3)
Sharing a link to our @RemissionBiome protocol info page for anyone who is new here, or is not familiar with the project. 🔗 www.remissionbiome.org/about/protoc... #RenegadeResearch #Renegade50
Around 1 in 10 in the country are suffering long covid, an estimated 409 million sufferers globally and yet we have this constant narrative being thrown at us that Covid is over. It’s the height of stupidity at this point.
Andrew works in the Zhu lab, which develops technologies using mass spectrometry-based metabolomics, in combination with advanced chemometrics, for the sensitive, reliable and non-invasive detection and monitoring of human diseases.
1/ Prodrome Glia (link in comment below) is part of the @remissionbiome.bsky.social protocol. Plasmalogen supplements are some of the most widely used supplements in our community. Already use #prodrome products or plan to discuss with a healthcare team? Save money + give back to our NPO same time!
Prodrome | Plasmalogen Supplements for Brain Health
Discover the power of plasmalogen supplements at Prodrome. Real research bringing new hope for people with Dementia, Alzheimer’s, and other brain health.
prodrome.com