Delighted to see WHO Director-General Dr Tedros join us on Bluesky @drtedros.who.int Welcome Dr Tedros!
Amy M. Russell
@amymrussell.bsky.social
Associate Professor Health Inequalities @UniversityLeeds #Qualitative health research to improve inclusion in research & healthcare. Working with people with a learning disability to innovate in creative methods for inclusion. https://linktr.ee/amymrussell
Launching today ‘Creating knowledge together’ – a collection of 13 essays on the power of community engaged research, published by British Science Association. Read our essay ‘How to ethically share power with public research partners: AKA keeping blobs blobby’ and explore the full collection here:
British Science Association@britsciassoc.bsky.social · 2y agoExplore the power of community engaged research. We've published essays amplifying voices often left out of traditional research, created with fantastic communities & organisations, sponsored by UKRI. #CreatingKnowledgeTogether Read here: www.britishscienceassociation.org/News/creatin...
The figures haven't changed in the past few years
Mencap@mencap.org.uk · 2y ago1/3 🚨 The latest NHS data shows there are 2,065 people with a learning disability and/or autism in mental health hospitals. 👉 It’s time for change. Join us in campaigning for a better future. Sign up to become a Mencap campaigner, brnw.ch/21wRhxA #HomesNotHospitals #MentalHealthActReform
Great summary of the day by @peterlangdon.bsky.social It felt like it was one of those talks that resonated with a lot of people. Lots of break time discussion about recruitment, ethics, gatekeepers and funding. So much energy and desire for improvement gives me a kick up the bum to keep going!
Peter Langdon@peterlangdon.bsky.social · 2y agoWe’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham
We’re back again this year showcasing excellent research involving people with intellectual disabilities and autistic people taking place across the Midlands! Thank you to our partners: NHS England, ADASS, NIHR RDN East and West Midlands, Reach-Out, University of Birmingham
How should you respond to a regime that has disregard for health and wellbeing, ignores the central role of inequalities in poor health outcomes, and believes science and scholarship to be enemies of progress? @kamranabbasi.bsky.social in the latest Editor's Choice www.bmj.com/content/388/...
Gary Boulet and I are the keynotes today for the Midlands Learning Disability and Autism Research event. Our talk is on the contribution people with learning disabilities make to research; as participants, advisors & as research leaders.
Great write up at @thetransmitter.bsky.social on the seeming erasure of SABV in the new era of NIH. Gotta say The Transmitter is killing it the last few weeks, first to report on the Federal Register block and now this. Leading the charge! 💪 www.thetransmitter.org/policy/exclu...
Exclusive: NIH appears to archive policy requiring female animals in studies
Such a shift would “put us back in the dark ages in terms of our science,” says neuroscientist Anne Murphy, who helped to formulate the original policy.
thetransmitter.org
Why is measles such a big deal? Here's why:
"Amanda Jones, a librarian in Louisiana, has received death threats since speaking out against book bans. She was labelled a paedophile and filmed by strangers in public. She fears going out alone. “I can name a librarian in every state this has happened to — and I fear it’s only going to get worse”
I am the ‘Michael Jordan of book banning’. This is why I do it
Bruce Friedman has challenged 1,200 books since the pandemic, alarming free speech advocates — and librarians who face death threats
thetimes.com
More to add to the trial methodology starter pack @amymrussell.bsky.social (and lots to follow here @trialforge.bsky.social @streweek.bsky.social) in not already!
Amy M. Russell@amymrussell.bsky.social · 2y agoI’ve done a starter pack for people working in inclusivity in trial methodology but I can’t see some of the key people I’d like to include. Feel free to share @vickylshepherd.bsky.social @katiegillies.bsky.social @markjayes.bsky.social @kerryhood.bsky.social @willjcragg.bsky.social
One of our supporters shared this with us—people are getting creative tonight!
Currently low response rates from CTU Directors (n=5), Programmers/Data Managers (n=0), & QA Managers (n=3) working in clinical trials. We need to know what these groups think the challenges are for greener trials. forms.office.com/e/fkeLD8HbMA Please complete &RT @ukctunetwork.bsky.social
Microsoft Forms
forms.office.com
Katie Gillies@katiegillies.bsky.social · 2y agoDo you work on clinical trials? We need your help to understand the challenges to designing & delivering greener trials. Only 30 responses so far but we can all have a say on this topic. Please take 10 minutes to tell us what you think tinyurl.com/GreenTrials Please share across your networks
This is just so cruel. My wife works at a school attended by many kids with disabilities, and one of my daughters is neurodivergent. I am at a loss for words. This state just keeps disappointing me.
ballerina X@ballerinax.bsky.social · 2y agoUtah is among the states suing for the right to discriminate against disabled people & that your disabled child can be discriminated against in school in school "The lawsuit says that no one should have to follow any part of Section 504" Call Governor Cox & the Atty General 801 366-0260 #utpol
"It’s particularly egregious as a women’s health product to be deceiving about what it can and can't do and could prevent women from getting proper treatment." #FemTech #WomensHealth #COI #CDoH www.forbes.com/sites/cyrusf...
Procter & Gamble’s Menopause Test Kit Is A ‘Fraud,’ Lawsuit Claims
A urine stick test isn’t the best way to determine a woman’s menopausal status.
forbes.com
Let deregulate children catching fire and botulism. It doesn’t sound like unnecessary red tape when you look at it that way…
Trish Greenhalgh@trishgreenhalgh.bsky.social · 2y agoWe had a house fire once. This makes my blood run cold.
On the 5 year anniversary of the shambles that half the country didn't want and now its hard to find anyone who still thinks it was a good idea I felt this was worth a repost #brexit
Caroline Lucas@carolinelucas.bsky.social · 2y agoPity Farage wasn’t asked about this - he should be forced to own it @bbclaurak.bsky.social @theneweuropean.bsky.social
How can anyone in their right mind ignore this letter from Caroline Kennedy about her cousin, RFK Jr.?
Really feeling for US colleagues and students and knowledge and society right now...
Monica Heilman 석지혜@writingmonicker.bsky.social · 2y agoThis fellowship was announced one week and taken down the next. The number of funding and job opportunities for graduate students being eliminated right now is staggering.
I think some people hear “grants” and think that without them, scientists and government workers just have less stuff to play with at work. But grants fund salaries for students, academics, researchers, and people who work in all areas of public service. “Pausing” grants means people don’t eat.
White House pauses all federal grants, sparking confusion
The Trump administration has put a hold on all federal financial grants and loans, affecting tens of billions of dollars in payments.
washingtonpost.com
Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.
Trump Reinstated the Global Gag Rule. Here’s What’s at Stake.
In his first term, Trump oversaw an unprecedented expansion of the gag rule. Its reinstatement could decimate global reproductive and sexual health.
rewirenewsgroup.com
Of course we expected this, but it’s still not widely known about among non specialists. The damage done to women’s health by the global gag rule can’t be understated. The GOP/US government have been doing this for decades www.theguardian.com/us-news/2025...
Trump signs order to reinstate ‘global gag rule’ on abortion aid
Federal rule also known as ‘Mexico City policy’ halts US funds to overseas groups that provide abortion services
theguardian.com
www.texastribune.org/2025/01/24/t... @aclu.org - can anything be done? Can Texas Medical Board investigate?
Feds drop charges against Texas doctor accused of leaking transgender care data
Dr. Eithan Haim of Dallas had faced four counts for wrongfully disclosing the individually identifiable health information of underage patients at Texas Children’s Hospital in Houston.
texastribune.org
Had such an enjoyable collaborative writing retreat this morning @amymrussell.bsky.social @drmkirby.bsky.social #research
Our new study shows that together with increasing early childhood education and care participation rates, overall inequality has increased in Europe. #ECEC #childcare #education #inequality www.cambridge.org/core/journal...
Growing inequality and diverging paths in early childhood education and care: Educational disparities in Europe | Journal of International and Comparative Social Policy | Cambridge Core
Growing inequality and diverging paths in early childhood education and care: Educational disparities in Europe
cambridge.org
#Trump’s withdrawal from @who.int was widely anticipated & criticised for damage it will cause. It serves as a wake-up call for the importance of multilateralism in the face of American unilateralism. In our @bmj.com piece, we outline actions to address the crisis www.bmj.com/content/388/...
1/ Trump has announced plans to withdraw from @who.int This decision threatens to weaken WHO, isolate the US, and undermine global health diplomacy when unity is most needed. We respond @bmj.com www.bmj.com/content/388/...
bmj.com