The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels. n.pr/47WGe0m

Disability rights activist and author Alice Wong dies at 51

The MacArthur "Genius" Award-winner was best known as the founder of the Disability Visibility Project, which highlights disabled people and disability culture through storytelling projects, social media and other channels.

n.pr

Alice Wong’s legacy is the political horizon she helped articulate. A horizon where disabled knowledge is central, and care is a shared commitment. She taught us to name grief & rage without collapsing under them, to celebrate disabled brilliance without ignoring the material conditions shaping life

There are so many wise words that I've highlighted in her memoir, "Year of the Tiger: An Activist's Life". Rereading the Intro just now and sharing this glimpse into her incredible character and spirit. I am forever grateful that she left us with her legacy and principled guidance.

Amy Tan, MD@amytanmd.bsky.social · 12mo ago

I have not wanted to believe this for the 30 min since announced. Alice Wong was at the top of a very short list of ppl who truly made the world a better place; a fierce oracle who inspired, rallied, personally supported in dark moments +spoke up for so many of us in the disabled community. 💔 RIP

I have not wanted to believe this for the 30 min since announced. Alice Wong was at the top of a very short list of ppl who truly made the world a better place; a fierce oracle who inspired, rallied, personally supported in dark moments +spoke up for so many of us in the disabled community. 💔 RIP

Helen Rottier@helenrottier.bsky.social · 12mo ago

I’m heartsick to hear that the incomparable Alice Wong has passed. Her loss will be felt keenly, by many, and for a long time. She is a force, a generous leader and storyteller, and an oracle for disabled futures. Much love to Alice and to all our crip kin and comrades. ❤️‍🩹

Pls help me prep for some education sessions I'll be giving; want to see what public perceptions are: Without looking it up, what do you think the average life expectancy for a Canadian is? Have you heard of the term "healthspan"? What do you think the healthspan of the average Canadian is? 🙏🏽

OMG. The world has lost a truly amazing, compassionate, and talented human being. My condolences to his family and friends. How devastating a loss to the Edmonton community, and the AB medical community. RIP Darren. 💔💔💔

Tania J. Spencer@taniaspencer.bsky.social · last yr.

1/ Many of us have followed this extraordinarily compassionate 🇨🇦 doctor throughout the pandemic. Dr. Markland was indefatigable in his advocacy for healthcare & patients, & so much more. Rest in peace, Dr. Darren Markland - www.westernstandard.news/news/beloved...

🔬Interesting new brainstem and cerebellum study in Long COVID - new imaging findings A new brain imaging study of Long COVID patients reveals major damage in key parts of the brain responsible for movement, balance, and automatic body functions like heart rate and sleep Let’s break it down🧵

Not all heroes wear capes. Incredible work from @putrinolab.bsky.social. They have created a *FREE* manual for clinicians treating chronic illnesses associated with infections. #LongCovid #MECFS #LymeDisease and many others.

Putrino Lab@putrinolab.bsky.social · last yr.

Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS, www.beckershospitalreview.com/quality/pati... 1/

Starting Sept. 1, B.C.’s Medical Services Plan is capping all online group medical visits to just 20 patients, to “ensure there can still be a one-on-one interaction between each patient and physician,” the Health Ministry told The Tyee.

Funding Changes Might Leave BC’s Long-COVID Patients in the Lurch | The Tyee

The province has one main clinic offering care to more than 5,200 online patients.

thetyee.ca

At 1st read, thought this was abt actual humans being dehumanized in the name of productivity. Realizing AI is just extending what has been all along: Extract what you can. Discard. Rinse. Repeat. And that's how we have society that only puts worth on ppl's productivity and not their humanity.

Aparna Nair@disabilitystor1.bsky.social · last yr.

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rhaco_dactylus, phd@rhacodactylus.bsky.social · last yr.

it is quite terrifying how eager people are to accept dehumanization - of others as well as themselves - as long as it's packaged in terms of "being more productive" or "more efficient" there is zero humanity-acknowledging, much less enhancing, aspect to these technologies

It is so difficult and so confirmatory of the systems we are trapped in that you must watch people, organizations & institutions eulogize one of your abusers (an openly known "secret") as though they were a saint. And the suffering without accountability, in silence, continues.

PSA: This afternoon, a visitor at one of the health facilities in which I work, and while I was rounding on my patients, came up to me and asked, "Who are you? Are you using THOSE (pointing at my forearm crutches in pic) because you *actually* need them, or is it for some sort of performance?" (🤯)

I've been a palliative care & family physician for 20+ yrs. Marathon runners, organic food eaters, cross-fitters + whatever else is considered a virtuous "healthy" lifestyle have all unfortunately been subjected to (for many, early) life-limiting diseases, despite this. No one "deserves" illness.

Michelle Cohen@docmcohen.medsky.social · last yr.

Love this framing for its black & white absolutism. You're either unhealthy or not, on Rx meds or not, have a bad lifestyle or not. No in-between, no understanding that many ppl with virtuous lifestyles are on meds too. Just another way of talking about morality and who "deserves" to be healthy.

#TSUNAMI Watch has been issued by the National Tsunami Warning Center and it includes #BC Notification Zones A, B, C, & D. If it materializes, expect it to begin around 2205 Langara BC and at 2330 PDT at Tofino. For more and updates: go to tsunami.gov #BCtsunami #BCstorm

To think & act as though you're entitled to comfort, is in fact privilege. Ppl must examine themselves & the world around them: who is materially at actual risk (of dying, losing health, autonomy, freedoms, losing their careers/livelihoods) in the given context, and why is your comfort worth more?

Erika Hall@erikahall.bsky.social · last yr.

We need to teach people the difference between being uncomfortable and being unsafe. Because the discomfort of the safest people is endangering the most vulnerable, all day every day.

TW: SA Today's hockey trial in Canada underlines once again victims of sexual assault are not valued in society. The system is designed to protect perpetrators, mostly men, while harming the assaulted, mostly women and girls. This must change. Believe the victims.

Oh and for all the armchair legal experts with their "Well, actually..." this is a reminder that not guilty does not mean innocent. You do not get found innocent in a Canadian criminal trial. ✌🏻

Misogyny lives on, strong and clear.

I'm seeing this play out in every day interactions with every day people, empowered by the fact that world leaders are exemplifying this, even on a Sunday night: letting bullies get their way only creates more tantrums, heightened entitlement, and more injustice. WHY are we doing this?????

Having started in medicine in 1999, and now in my 20th year of medical practice, I will state with full conviction that I really do miss the days where getting vaccines for preventable infections (some that had once been eliminated) was just plain common sense & uncontroversial. #VaccinesSaveLives

www.queensjournal.ca/hockey-canad...

Hockey Canada trial fumbles the consent conversation - The Queen's Journal

The moment we treat consent as a legal checkbox, we've already compromised justice.

queensjournal.ca

You can’t fight fascism without disability justice. Fascism creates more disability, which then sees us as replaceable and our deaths as excusable. You can’t fight for humanity without fighting for disabled people.

Covid is a social justice issue. For many of the most vulnerable, the pandemic never ended. People decided to 'go back to normal' because it's what they wanted, not because it was over. Society's unwillingness to address Covid means those of us who care must work twice as hard to avoid infection

As a trauma survivor, a lot of what is covered here re memory and trauma including dissociating, fragmented memories, and emotions very much resonates with my ongoing experience of this. Hope this is considered strongly by the judge. www.cbc.ca/news/canada/...

How trauma can affect memory and court testimony | CBC News

Under cross-examination, E.M., the complainant in the world junior hockey sex assault trial underway in London, Ont., has alleged she suffered trauma that has clouded her memory after the June 2018 ni...

cbc.ca

You can’t “try harder” your way out of disability You can’t “healthy diet” your way out of disability Many conditions are completely debilitating & the people suffering from them end up disappeared Non disabled people can’t face the reality of chronic illness, so they choose not too #WorldMEDay

Cardinal Robert Prevost has requested everyone use the name Pope Leo XIV when addressing him. No one seems to have a problem with using the name he’s chosen despite it not being his birth name. Seems like a courtesy we might extend to everyone if they request it.

Essentially, women aren't allowed to make decisions and act for themselves; they must comply with sexist societal expectations AND worry about how it will make men react. Women aren't allow any autonomy. That's what I'm getting from Dan Brown, defence lawyer.

So let me get this straight, no woman is allowed to decide for themselves whether to have a drink, buy themselves drinks, dance, or just interact with men in general, because this could *cause* sexual assault by men to occur, for which *she'd* be to blame? 🤬🤬🤬 #MisogynyAtItsFinest #HockeySATrial

Every Stanley Cup playoff article in sports media should be linked to an article covering the hockey sexual assault trial. These are two sides of the same coin.