2003: whatever you do, don't source your research from Wikipedia. 2026: Wikipedia is the safest online source to start general research from.

Re-posting with typo fix and re-boosting this for the US east coast time folks, I moved to Scotland and landed in an unlivable flat, so am offering 15 drm-free books of mine as a thank you for anything you offer as a way to get into a safe living space:

#NEISvoid What papers/resources have you found most helpful for onboarding new doctors in a hospital visit? Surgical considerations would also be helpful (ex: anesthesia asks) I'm making up a hospital packet in case of emergency/low functioning admission 🙏 Dx list 👇 #MECFS #hEDS #POTS #MCAS

I scream We scream PwME scream For Bezisterim BioVie Announces Topline Results from Phase 2 ADDRESS‑LC Trial Evaluating Bezisterim for the Treatment of Neurological Symptoms Associated with Long COVID September 15, 2026 investors.bioviepharma.com/news/news-de... #LongCOVID #ME/CFS subtype…

BioVie Announces Topline Results from Phase 2 ADDRESS‑LC Trial Evaluating Bezisterim for the Treatment of Neurological Symptoms Associated with Long COVID

Statistically significant benefits observed in bezisterim-treated Long COVID patients in pre-specified subgroups with high baseline fatigue, cognitive impairment, and/or post‑exertional malaise Bezist...

investors.bioviepharma.com

valebodi.bsky.social@valebodi.bsky.social · 3w ago

Because fatigue, post‑exertional malaise, and cognitive dysfunction are defining features of the more severe and persistent Long COVID phenotypes1 described in RECOVER and other large cohort studies, we find it particularly encouraging that bezisterim demonstrated its strongest effects in patients

National Geographic: 'Why Do POTS and Long Covid Look So Much Like Autoimmune Disorders?' 'Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID...' By Rachel Fairbank www.nationalgeographic.com/health/artic...

Why Do POTS and Long Covid Look So Much Like Autoimmune Disorders?

Researchers are studying the curious connection between autoimmune diseases and conditions like POTS and long COVID—in the hopes it might lead to more targeted treatments.

nationalgeographic.com

Oh how interesting, I think he's talking about my whole anemia-of-chronic-illness thing. "The substrates responsible for bacterial and viral replication are also needed for your own cells..." bsky.app/profile/exce...

It's ME(Jaime)@exceedhergrasp1.bsky.social · 3y ago

Some convos in the #NEISvoid discussing the low B12/folate/iron combo that's common in chronic complex disease. So let's talk about the "anemia of infection" or the "anemia of chronic disease". Bit of a 🧵, so don't forget to expand the last skeet you see to continue reading! #LongCOVID #MECFS

Master post of each talk re: the Stanford #MECFS Community Symposium: 🧪 Talk 1: bsky.app/profile/exce...

It's ME(Jaime)@exceedhergrasp1.bsky.social · 3w ago

Todd Davenport from Uni of the Pacific is up first!

MMR is 97% effective. BUT: - Some may not mount a robust enough immune response to vax for a variety of reasons - Protection CAN wane if there's been a major immune disruption, though this is rare - Most pertinent: intense, prolonged exposure to someone with measles can supersede protection

Alicia Ault@aliciaault.bsky.social · 3w ago

Four "fully vaccinated" Pennsylvania residents--3 adults and 1 child--have contracted measles. #MMR #vaccines #EpiSky #IDsky #publichealth

I, uh, have an alibi

Pavel@spavel.bsky.social · 3w ago

For fucks sake Mercury, we've got other shit going on right now

Right??? 😆

KJ Charles@kjcharleswriter.com · 4w ago

It absolutely feels like authors are the people in this process everyone wants to steal from, which is hilarious given we are largely the people with the least money.

A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.

The relentless work of being sick

A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.

motherjones.com

The antihistamine thing has been referenced a few times since the updated COVID shots are rolling out, so bumping the reminder (please read the entire thread before "correcting" me, it's also pinned on my profile)

rahaeli@rahaeli.bsky.social · last yr.

The dosage and timing for pre-vaccination is EITHER: - 50mg diphenhydramine (Benadryl) OR 50mg promethazine (Phenergan) 15 minutes before the shot OR - 20mg cetirizine OR 20mg loratidine 2-3 hours before the shot Only take one of those (ie, don't take Benadryl AND cetirizine).

Hi friends. I've tried my best to reach out to HBCU's and other Black spaces but still have a very low amount of survey's from Black people. I even e-mailed professors directly and DM'd people online. Please share with any Black people with ME/CFS that you might know of!

victoria@vashetc.blacksky.app · last mo.

Study closes in September! Please share with your networks. I'm hoping to get at least 50 more responses :)

Friends, a major problem in the demographics of ME/CFS studies is the absence of Black participants. If you know of any Black adults with ME/CFS, please suggest that they complete this survey. I have completed it and it is relatively untaxing. Thanks!

victoria@vashetc.blacksky.app · 4w ago

Hi friends. I've tried my best to reach out to HBCU's and other Black spaces but still have a very low amount of survey's from Black people. I even e-mailed professors directly and DM'd people online. Please share with any Black people with ME/CFS that you might know of!

“There are no unsacred places; there are only sacred places and desecrated places.” -Wendell Berry

"I was told there would be bacon."

The fact that they were going to close 5 libraries, and this will keep them open for SIX MONTHS really shows how much you could do with that much money.

Part of the reason a lot of super rich people are so awful is that when normal people get an absurd amount of money, they immediately start looking around for who they can help.

Stoo Metz 🏳️‍⚧️ 🏳️‍🌈@stoometz.bsky.social · 2mo ago

Rachel Reid, who wrote the popular “Heated Rivalry” novel, has donated $300k to Annapolis Valley Regional Library, “one of the most significant private gifts” in their history. “I credit my local library for being a huge part of the reason I’m a published author today,” Reid said #Halifax #HaliSky

If you put together the season posters for Reacher they tell the story of a large man who can't remember where he put his keys.

Watching the first episode of the new season of Reacher & enjoying the way Reacher answers cop questions like a fairy would in a fantasy novel.

SOMEONE MENTIONED IT. You know the rules. www.youtube.com/watch?v=jPCJ...

Lip Sync Battle - Tom Holland

YouTube video by Comedy Central Latinoamérica

youtube.com

supastaaarz@supastaaarz.bsky.social · 3mo ago

Lonely Island and the Tom Holland “Umbrella” Video are the best examples of the importance of going all in, full commitment to the bit.

#MEAction is on summer break this week y'all. If you've sent anything don't expect a reply right now. I will personally be out the week after this one. 👍

tonight my son and i watched A League of Their Own, and he asked if women played professional baseball now. I said “I’m sure they do, let’s look it up” cue to both of us shocked because the Women’s Professional Baseball League is CURRENTLY playing their inaugural season. now. in 2026.

Physical books. You own them. They don't require updates. They don't surveil you or collect and sell your data. They are a genuinely safe hallucinogen that leaves you smarter and more empathetic and with a longer attention span the more you use them. Free from the library. What's not to like?

The children's rights and deconstruction movements were richer for having had him. I'm devastated. Never lose sight of how deeply damaging the American Christian fundamentalism is to those of us who grow up in it. And how much it robs the world of the best of us.

ash blu@ashblu.bsky.social · 3mo ago

i just received confirmation from a private source that @rlstollar.bsky.social has gone to be w the ancestors. a stalwart warrior for children & homeschool alumni, he will be deeply missed. my heart aches so much. be at peace, my dear dear friend.

If you have #POTS and/or other types of dysautonomia and you take Corlanor aka Ivabradine, there’s a recall, check your pills: www.eatingwell.com/heart-kidney...

Heart and Kidney Medications Recalled Nationwide—Over 900,000 Bottles Affected

Heart and kidney medications are being recalled nationwide due to a potential contamination. Here’s what you need to know.

eatingwell.com

It is a long-established myth in Christofascist circles that rightly structured families are a form of abuse prevention.

Families Are Not Umbrellas (And Other Myths About Abuse Prevention)

Gothard, MacArthur, and the many other rightwing advocates of patriarchal, nuclear families are dead wrong. Fathers, parents, and nuclear families are not magical umbrellas of protection.

rlstollar.com

Lyme sucks, US healthcare is garbage, and Kate here can tell you all about it. Maybe read the whole thing even if you can't donate. Kate's experience is illustrative. Even with immense advantages in play, they got pretty well screwed. It is EASY to end up in this position, or one far, far worse.

Kate Violette@kateviolette.com · 3mo ago

Hello friends near and far 💜 I've reached the end of my savings, frustratingly, just as we've solved the root mystery of my illness (it's Lyme) and are seeing continued success with treatment. I'm asking for your help in bridging the gap between now and when I can hopefully work full-time again.

Huge thanks for that latest anonymous donation, whoever you are ❤️

It's ME(Jaime)@exceedhergrasp1.bsky.social · 5mo ago

Our Emergency Department fundraising is on fire! Note: in order to make the best use of our $15k match, we need to raise $15k from other donors. We're so close! Can you get us a little closer? millionsmissing.funraise.org/fundraiser/m...

Not me crying when I learned there is a shrine in Japan for saying goodbye to stuffed animals who are beyond repair 😭