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Brian Shuell

@bshuell.bsky.social

196 Posts973 Follower423 Folgt
It's ME(Jaime)@exceedhergrasp1.bsky.social · 2w ago

We have so many responses that it's likely we will have to close the survey once it's been open a week rather than a month. If you have the time, I hope you'll consider taking the survey this weekend! You can find it here: surveys.mayoclinic.org/jfe/form/SV_...

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

surveys.mayoclinic.org

It's ME(Jaime)@exceedhergrasp1.bsky.social · 2w ago

We are ready to launch the Emergency Department Survey! Thanks to all your help-- and a few grants-- we are ready to go! If you're registered with #MEAction, an email with a link to the survey should be in your inbox very soon! Also, check out our social solicitation for the survey below. 🧵

Emergency Department Guidelines With your help, the Emergency Department Project is now just $5k from FULLY FUNDED! Underneath is a stacked bar graph, showing the proportion of the grant paid for by Whittemore Peterson, the 15k match, the amount of donations we've received that aren't the grant or the match, that we met the $15k match with individual donations, the new Mayo Clinic General Internal Medicine CME Education Committee Seed Grant, a HUGE chunk due to generous individual donors and a sliver left to go. Over the stacked bar graph it says, "Prepare for launch..." On the right is a person standing at the top of a tower holding a triumphal flag! (We did it, folks! We can launch the study now!)
Alexandra Thompson@alexthompo.bsky.social · 4mo ago

Exercise is always a good thing, right? Well, maybe not. For people with long covid or ME/CFS, it can be devastating. And science needs to catch up (all views my own blah blah blah) www.newscientist.com/article/2523...

Exercise advice for long covid may be doing more harm than good

Exercise has been touted as a tool for managing and treating long covid, but much of the evidence has neglected one of its most debilitating symptoms: post-exertional malaise

newscientist.com

Grace Hurford PhD@ghurford.bsky.social · 4mo ago

“We talked about all M.E. had taken from us. From her, it had stolen her career, her imagined children, snowboarding, often even the strength to get out of bed. But the worst theft was her brilliant technologist’s mind. She told me she constantly felt concussed…” 💔

Julie Rehmeyer@julierehmeyer.bsky.social · 4mo ago

Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...

Brian Shuell@bshuell.bsky.social · 4mo ago

📢 Medical providers: your signature is needed. We're asking CMOs to share accurate ME/CFS resources & support its inclusion in licensure/exam pathways. go.solvecfs.org/e/1109402/Cl... #MECFS

Clinician Sign-On: Chief Medical Officer Outreach Letter

Thank you for lending your clinical voice to this effort. By signing on, you are joining fellow healthcare providers in asking Chief Medical Officers to take two concrete steps: disseminate accurate M...

go.solvecfs.org

Brian Shuell@bshuell.bsky.social · 4mo ago

If you or someone you know is suffering with #MECFS, you can take action by signing a letter asking State Medical Boards and State Health Leadership to recognize ME/CFS competency as a patient safety and standard-of-care issue. Please take action now! go.solvecfs.org/e/1109402/St... #MECFS

Community Letter Sign-on Form

Thank you for adding your voice to this effort. By signing on, you are joining patients, caregivers, clinicians, and allies across the country in asking State Medical Boards and State Health Leadershi...

go.solvecfs.org

Solve M.E.@solveme.bsky.social · 5mo ago

9 million Americans have ME/CFS. There are still no FDA-approved treatments. This year, Congress can change that. Here's what we're asking for in FY27 appropriations: 🧵