Annabel
@annabelhowell.bsky.social
Mum and wife, loving life in Scotland. Medical Director, Childrens’ Hospices Across Scotland (CHAS), ViceChair My Name’5 Doddie Foundation, PhD student University of Hull re digital tech used in palliative care during the pandemic.
Film #2: Overview Siblings of children with life-limiting conditions share their powerful perspectives in our second #BecauseWeCare film. youtu.be/JysuiVrzH-8?... #ChildHealth #EmpathyInCare @clairecassidy.bsky.social @drannar.bsky.social @alisonmurray.bsky.social @sarahwishart.bsky.social
Because We Care - The Overview
YouTube video by Strath HASS
youtu.be
Good to talk to Mark @prospectmagazine.co.uk for this interview, following on from this @bmj.com piece on Facing Death Differently www.bmj.com/content/387/...
Prospect Magazine@prospectmagazine.co.uk · last yr.“ I worry that assisted dying could become the only choice for some people—not necessarily because they want to die, but because they feel a real pressure,” says palliative care researcher @lucyselman.bsky.social. www.prospectmagazine...
My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social Register: www.mainexchange.org.uk/webinars/ Funded by @mariecurieeolc.bsky.social
Upcoming Webinars
MAIN
mainexchange.org.uk
Are you ready to try something new this #DemystifyDeath week? Try running an Escape Room in your local community! Find out more and order a kit here (Scotland only)- www.goodlifedeathgrief.org.uk/escape-room/ Watch this short video to see more- vimeo.com/1072772593?s...
Delighted to share this podcast of our AHRC funded project #BecauseWeCare Voices of #siblings of children with life-limiting conditions. Listen here: tinyurl.com/4yzpenhn @paedpallcare.bsky.social @alisonmurray.bsky.social @annabelhowell.bsky.social @sarahwishart.bsky.social #ClaireCassidy
Podcast #53: Meet the Because we Care project team by Strathclyde Institute of Education - Podcasts
In this episode, meet the Because we Care project team. This project focused on the siblings of children with life-limiting conditions to explore ideas of care and well-being before making recommendat...
tinyurl.com
Strathclyde Institute of Education@strath-ioe.bsky.social · last yr.#BecauseWeCare project is on our latest podcast. The project was about siblings of children with life-limiting conditions. Listen here: tinyurl.com/4yzpenhn @paedpallcare.bsky.social @alisonmurray.bsky.social @drannar.bsky.social @annabelhowell.bsky.social @sarahwishart.bsky.social #ClaireCassidy
Delighted to be part of such a beneficial piece of research- the experiences of siblings of children with life limiting conditions
Strathclyde Institute of Education@strath-ioe.bsky.social · last yr.#BecauseWeCare project is on our latest podcast. The project was about siblings of children with life-limiting conditions. Listen here: tinyurl.com/4yzpenhn @paedpallcare.bsky.social @alisonmurray.bsky.social @drannar.bsky.social @annabelhowell.bsky.social @sarahwishart.bsky.social #ClaireCassidy
Indeed - and many have found other ways to earn an income and cope- though to their detriment
Frontline19@frontline19.bsky.social · last yr.Essential reading by @doctoroxford.com "Unless meaningful mental health support is embedded in Streeting’s 10yr NHS plan, the NHS will continue to haemorrhage its greatest asset: dedicated, caring staff." Staff are being utterly failed in the name of cutbacks. www.newstatesman.com/politics/hea...
My article 'What is a good death? A critical discourse policy analysis' is now in the BMJ Supportive and Palliative Care (Vol 14 Issue e3) [but online first a few years ago] spcare.bmj.com/content/14/e...
What is a good death? A critical discourse policy analysis
Objective The concept of a good death is a motivating factor for end of life care policy; this article examines what English end-of-life care (EOLC) policy defines as a good death. Methods Critical d...
spcare.bmj.com
Our Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to £1 million over 3 years! Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky
My Name'5 Doddie Foundation@mndoddie5.bsky.social · 2y agoApplications are now open for the Discovery Network 2025. Up to £2m is available to fund interdisciplinary, multi-institutional teams to better understand the biology of MND, with a focused goal of identifying new therapeutic targets 🔬 See more & apply here👇 www.myname5doddie.co.uk/research/fun...
People with lived experience of MND are being invited to join a study to help better understand how to support people with MND to make decisions about their care,and what support people need For more info or to express interest in involvement, please contact: sean.white3@nhs.net
For those struggling to keep up with the amendments to the Terminally Ill Adults Bill, Prof Alex Ruck Keene KC has an up to date annotated version on his website www.mentalcapacitylawandpolicy.org.uk/terminally-i...
Terminally Ill Adults (End of Life) Bill – Bill with amendments to 15 March 2025
Prompted by a question from a colleague in Chambers who was (understandably) finding it very difficult to track through precisely how the Bill has been amended since starting the Public Bill Commit…
mentalcapacitylawandpolicy.org.uk
Letter in today’s @theguardian.com from me and 34 other health and care professionals on the assisted dying panels. Unfortunately they have cut 33 signatories - including social workers, psychiatrists, geriatricians. This must be corrected. www.theguardian.com/theobserver/...
www.spectator.co.uk/article/on-a... Informed opinion- but maybe those pushing this do not want that?
Britain must learn from the Netherlands's mistakes on assisted dying
As a former member of a euthanasia review board in the Netherlands, I have followed the debate of Kim Leadbeater’s assisted suicide bill.
spectator.co.uk
@britawards.bsky.social @teddyswimsofficial.bsky.social great set- delighted to see Gala tartan !
@britawards.bsky.social @scarpenterbr.bsky.social really - sexualising women in this day and age is not good
ICYMI - Article in @theconversation.com Death doulas: helping people at the end of their life theconversation.com/death-doulas...
Death doulas: helping people at the end of their life
There is a growing demand for people who help the terminally ill have a good death.
theconversation.com
