Rose Mary
@rose-mary-x.bsky.social
She/her | UK | Covid conscious | Disabled | ME/CFS | Long Covid | Vaccine Injured | Climate aware | Free Palestine | Socialist | Human rights | Sisters, not cis-ters
Covid is a vascular virus ‘masquerading as a respiratory one’ not my words, those of the British medical journal, earlier this year. Add to that the fact that it’s airborne ( stated by the covid inquiry) and it’s frankly staggering we have zero messaging on this!
Satisfactory Update 5 Train Wreck
ALT: Satisfactory Update 5 Train Wreck
static.klipy.com
Here you can see the clear line from an infection (COVID) to new onset autoimmune disease (Celiac). This is a well-known pattern that plays out with many autoimmune diseases. For me, it was strep throat ➡️ psoriasis. Once you have one autoimmune disease, your risk of getting another increases.
MaskTogetherAmerica@togetherwemask.bsky.social · 4d ago"Long COVID has been devastating and life-altering. It led to my diagnosis of Celiac diseass —as COVID-19 can disrupt the gut microbiome." —Erin Kay, Founder of Claiming Disability shares why she strongly advocates for masking. www.instagram.com/p/DefAbKmJcg... #MaskTogetherAmerica
The debilitating chronic illness myalgic encephalomyelitis (ME) is one of the most common bad outcomes of a Covid infection—including for this Olympian. If you’re left wondering “what even is ME?”, this article is a great, moving account. Do check it out—everyone deserves to understand this risk.
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.com
“Just having a conversation… can impact you afterwards. When I say impact you, you feel like you're dying basically.” Former Olympic sprinter Beth Dobbin describing post-exertional malaise the hallmark symptom of #ME.
🔥 Please Share - So, so close, but only 9 days to go 😮 for this stretch target window. £24,210 donated of £25,000 👏stretch target from an amazing 746 pledges Justice4ME.uk #pwME #pwLC
Something Chronic@somethingchronic.bsky.social · 3mo agoNew update today from the life saving #JusticeForME campaign Thank you to everyone involved and @ris-law.bsky.social #Justice4ME #GreatestMEdicalScandal #MEcfs #SevereME #VerySevereME
Gratitude to Beth for telling her story with such grace. She speaks for me. I, too, am mostly confined to bed and housebound. I left my house 3 times this summer. Haven't been out at all in September or October. This is no way to live. #frailandfurious #MECFS www.bbc.com/sport/athlet...
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.com
this is what the “yA gOtTa LiVe YoUr LiFe” brigade fails to grasp after six years—yeah, i do, hopefully not with a debilitating but largely preventable disease that confines me to my bed for all but two hours a day!
Alan Garner@garnalan.bsky.social · 2d agoThis young Olympian had very mild infection but is now severely disabled. I have been asked why I still mask when death is now rare from COVID in Australia. It is not dying I am worried about.
Very severe ME may involve loss of ability to communicate, to leave bed, and the ability to digest properly. If you're a medical provider or researcher who thought #MECFS was fatigue, take a look at this article and share it with your colleagues. www.mayoclinicproceedings.org/article/s002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
mayoclinicproceedings.org
This is the disease for which I research and advocate: #MECFS. Even mild presentation is life-changing, and this is what severe looks like. People are surprised so many of us were athletes. They want to believe this can only happen to people who were already unwell. www.bbc.com/sport/athlet...
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.com
📻 Full interview with @binitakane.bsky.social on BBC Radio 5 Excellent discussion on ME & Beth Dobbin that looks at: 🔹why ME has been dismissed 🔹 why it's seen as psychological 🔹 the sickest patients have no NHS care. #pwME #longcovid #medsky
The PCR positivity map is out, and national positivity has edged up in both England and Scotland. Reporting in England is close to 100% this week, making the 10.98% adjusted national average as accurate as it gets in the world of covid data. jamestindall.info/skeuomorphol... 1/8
From BethDobbin former Olympic athlete, now bedridden with #ME. Still classified as a psychiatric illness in some medical textbooks. Many people still choose to believe this to be the case until it hits family, friend or someone known to be mentally fit. Everyone is vulnerable. It wrecks your life.
“These are some of the sickest patients I’ve ever come across in my life.” Dr @binitakane.bsky.social talking about #MECFS and the lack of research, specialists and services on yesterday’s BBC Radio 5 Live.
1/2 Huge thanks to Olympic athlete Beth Dobbin for using her limited energy to share her story & raise awareness of the severely debilitating effects of ME & the lack of clear NHS pathways. www.bbc.co.uk/sport/athlet... We hear of situations like this all too often.
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.co.uk
📺 Quality interview with Beth Dobbins on @BBCSport Thank you Beth for your precious energy for this. We understand the impact this can have.
Long Covid Advocacy@longcovidadvoc.com · 2d agoOlympic sprinter Beth Dobbin advocates brilliantly in this article: 🔹strongly rejects CFS label 🔹states there is no specialist NHS service 🔹conveys the severity of the disease 🔹raises the issue of how athletes are more 'believed' www.bbc.co.uk/sport/athlet...
Think you’re healthy enough to fend off viruses? Are you in better shape than this Olympian? The best way to avoid joining the ranks of those of us with ME/CFS is to avoid catching airborne viruses like Covid 😷 And if you get sick, radical rest! Rest longer than you think you need.
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.com
Five years ago, Beth Dobbin was an Olympian Today, ME leaves her in bed 22 hours a day Even this interview could cost her months of health But she spoke anyway, because millions are suffering in silence, and she knows her voice might help them be heard www.bbc.com/sport/athlet...
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.com
"There is nothing out there. There is nowhere to go. You go to the GP and there's nowhere for them to send you to. It's really at the back of the queue as far as research, knowledge, expertise, funding." The Olympic sprinter now bedbound for 22 hours a day with #ME www.bbc.co.uk/sport/athlet...
Beth Dobbin: British Olympic sprinter in bed for 22 hours a day after ME diagnosis
Beth Dobbin ran for Great Britain at the Tokyo Olympics in 2021. Five years on, she is largely bedbound after being diagnosed with ME, a devastating illness for which there is no cure.
bbc.co.uk
Some items available in my POD shop at the moment. New cormorant motif on T-shirts, stickers etc. My designs are all human-made digital illustration. Only 79 more sleeps until Christmas 🎄 🎁 😅 #RedbubbleShop #Tshirts #Stickers #GiftIdeas #design #illustration www.redbubble.com/i/t-shirt/Co...
What does the Green Party proposed new health policy say about #infectious disease? @greenparty.org.uk
We'd love to see conference made safe for all, but conditions could be ideal for the spread of Covid and Flu, etc. However, some precautions can really reduce that risk. #ventilation #ffp3mask @greenparty.org.uk #greenpartyconference
I spoke to Dr Christelle Blunden from the Green party Health Policy Working Group about B03 A Green way to health, the new healthcare policy chapter for the Green Party. @greenhealthpolicy.bsky.social youtu.be/Yn2nDXdK47E
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier. This clip is from his closing comments, which I thought were very powerful. Actually, I burst into tears 😭 Thank you both 💙 #MyalgicEncephalomyelitis #GreatestMEdicalScandal #LongCovid
📻 Superb @georgemonbiot.bsky.social Interview on LBC with Natasha Devon. "A long & vicious history in this country of dismissing predominantly female diseases & calling them hysterical." 🔥 Thank you George & Natasha 🙏
Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article www.theguardian.com/commentisfre...
LBC | Natasha Devon interview with George Monbiot
YouTube video by Broken Battery
youtu.be
Symptoms are “horrible” and severe cases are a “living nightmare.” @georgemonbiot.bsky.social speaks to @natashadevon.bsky.social on LBC about ME/CFS, its long history of being dismissed and psychologised, and the role of governments and insurers.
The George Monbiot LBC interview with Natasha Devon is EXCELLENT! It's on at 7.33 pm. Can't record it due to DRM capture. BUT will keep an eye out for the recording. share-gp.globalplayer.com/live/lbc/uk/
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@georgemonbiot.bsky.social was on top form tallking about ME on @natashadevon.bsky.social Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is. Listen back! #MEcfs #MyalgicEncephalomyelitis
. @georgemonbiot.bsky.social & @natashadevon.bsky.social discussing #MECFS on LBC earlier. This clip is from his closing comments, which I thought were very powerful. Actually, I burst into tears 😭 Thank you both 💙 #MyalgicEncephalomyelitis #GreatestMEdicalScandal #LongCovid