Beth Dobbin was a Team GB sprinter. Severe ME keeps her in bed 22 hours a day. 360 sportspeople, including Tom Daley, David Moyes and former England captain Millie Bright, back her letter to the PM: support Beth Dobbin, fund ME research. www.bbc.co.uk/sport/athlet...

Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

Did you know 8 of the top 10 recycling councils in England are Lib Dem led? Mid Suffolk, a Green majority council, ranks 162nd, and Brighton was among the worst in the country when they ran it. @ollygrender.bsky.social put the figures to the government in the Lords in April.

We will cut income tax by raising the personal allowance, and take 750,000 ordinary people out of paying the higher 40p rate.

After two years of amazing work, we’re only just getting started!! Please reshare and donate if you can (link in thread)

ThereForME@thereforme.bsky.social · last mo.

We're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4

Massive thanks to ATV’s Robbie Lyle for taking the time out of the UCL final to send a message of support for ME patients instagram.com/p/DZAAFLEjM1i/… @emptystands.me

Instagram

Create an account or log in to Instagram - Share what you're into with the people who get you.

instagram.com

@jeffsmithmp.bsky.social I understand you used to run the Labour Campaign for Drug Policy Reform - I am running a similar AO within the Lib Dems, and wondering whether there is some cross-party work we can do on this policy area

Massive thanks to the #HandbrakeOff team @ianstonecomedy.bsky.social @amylawrence.bsky.social @adrianjclarke.bsky.social for raising awareness of Long Covid on the pod. @emptystands.me is an incredible football campaign for those with post viral conditions, do reach out if you can support us!

Really excited to be discussing psychedelic research into Long Covid’s neurological symptoms at DeSci’s next event luma.com/vept4r7f

Psychedelics: Long COVID, Relationships and the Future of Therapy · Luma

This month's DeSci London. One of the most interesting areas in neuroscience right now, and also one of the most overhyped. Come find out which bits are…

luma.com

The ME strategy wasn’t good enough - and Labour can’t even live up to it! And they wonder why the electorate has lost faith so quickly. Disgraceful that exhausted advocates looking after sick loved ones have to hold them to account. I wasnt expecting much but this takes the piss

ThereForME@thereforme.bsky.social · 7mo ago

This week we were informed by DHSC, alongside other organisations, that DHSC and NHS England have delayed discussions on commissioning a specialised service for very severe ME until April 2027. This means yet another year without NHS care for people with very severe ME. (1/3)

Well done to the rest of the team at the Lib Dem Psychoactive Policy Group who worked so hard to make this a reality

Drug Science@drugscience.bsky.social · 8mo ago

Pleased to see the Liberal Democrats reflect scientific evidence in their newly passed mental health policy. The motion support for further research into pharmacologically assisted therapies and calls for an evidence-based approach to the regulation of drugs. libdems.org.uk/confe...

It is heartening to know that we have an ally in this role who understands the decades of neglect faced by the #ME community. I sincerely hope you can meet with @tessamunt.bsky.social very soon and that we will see a step change in government actions on #ME and Long Covid. #ThereForME

Excellent news! very excited to see Tessa continue the APPG's work advocating for ME patients

Tessa Munt MP 🔶@tessamunt.bsky.social · 10mo ago

Honoured to be elected as Chair of the APPG ME today. I’m grateful to have @JoPlatt.bsky.social continue to serve as an officer, facilitating continued coordination with the APPG Long COVID, and the support of @actionforme.bsky.social and @meassociation.org.uk through providing the Secretariat.

Ed Davey Confronts Keir Starmer Over Rising Antisemitic Attacks | Prime Minister's Questions

Ed Davey Confronts Keir Starmer Over Rising Antisemitic Attacks | Prime Minister's Questions

Jewish communities should not have to live in fear. Antisemitism is real, poisonous, and has no place in Britain.

buff.ly

Thank you Ed Davey and the @libdems.org.uk for being #ThereForME this year! Your support has meant the world to us at @thereforme.bsky.social and for people with ME across the UK ⭐️💛

ThereForME@thereforme.bsky.social · 11mo ago

December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk! This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨

A really great example of how politicians, even out of power, can make a real difference to people like myself and Didier during some of our most difficult moments

Didier@medidier.bsky.social · 11mo ago

When coming down with #ME 4y ago I felt betrayed and dissapointed by all parties in the UK like never before in my life. I have never been a 'one-issue' voter but the treatment of #pwME/LC is so scandalous and criminal, so disabling, that everything, including politics, reduced to that... 1/3

I nominated Sir Ed because the support ME and Long Covid communities have received from the Lib Dems has been exemplary. This ‘eMEy’ award is a testament to the culture of the party and its parliamentarians

ThereForME@thereforme.bsky.social · 11mo ago

December 22nd. Thank you for being #ThereForME, Sir Ed Davey & the Lib Dems @libdems.org.uk! This year the LibDems have been key players championing the need for improved support for people with ME in parliament. Nominated by Jonah Weisz @weiszguy.bsky.social ✨

Paid opportunity to shape the future of IPV trauma treatment!

"With 4/6 of my #family now #disabled, our once-happy, fulfilled lives have changed forever. I have had to watch one brother’s promising academic career blighted by #LongCovid..Another brother ..is awaiting a #diagnosis.": buff.ly/lHHlwOn by @weiszguy.bsky.social #LongHaulers

ME in the family

A generational Sword of Damocles

buff.ly

Live(ish) @ 3pm 🎶 please bother me on the chat directionradio.org

A great article from Syed, well worth reading

Rima I Anabtawi@rimaanabtawi.bsky.social · last yr.

What we see in Gaza is rekindling jihad. Netanyahu must be stopped The brutal and protracted assault on civilians is exactly what Hamas planned to provoke with its October 7 attacks Matthew Syed www.thetimes.com/comment/colu...

My second set has just come out. Thank you so much to all 30 of you who listened to the last one 🥰 you're making dreams come true (and having a great time whilst doing it) www.mixcloud.com/Direction_ra...

My understanding (I am not an expert on this subject) is that FII is extremely rare. Yet allegations of FII are rife against families of children with disabilities. This issue particularly affects those with Long Covid and ME. See this report ➡️ cerebra.org.uk/wp-content/u...

If you’re here today, say hi 👋 :)

My first ever episode of Heaven Could Be Lately is out now! (live every Wednesday @ 3pm) Vibe = Upbeat tracks to lock into work with 🪩 🎶 directionradio.org

Thank you @helenmorganlibdem.bsky.social, @tessamunt.bsky.social, and @libdems.org.uk for standing with ME patients. After decades of systemic neglect, finally we are being taken seriously

Tessa Munt MP 🔶@tessamunt.bsky.social · last yr.

June 30 + 8… still no Delivery Plan on ME. Grateful to helenmorganlibdem.bsky.social, LibDem Health Spokesperson for writing to rthonwesstreeting.bsky.social asking that the Plan be published very shortly. We want people with ME, and their carers, to know that the LibDems are on their side.

"I tested positive again for #Covid19 ..I had nearly reached the top, and was about to be crushed as it tumbled back down. The red line on the lateral flow test might as well have been a jail sentence.": buff.ly/eeWEvaF by @weiszguy.bsky.social #NEisVoid #ChronicFatigue #pwME #MECFS

ME in the family

A generational Sword of Damocles

buff.ly

It'll take more than a hose down to clean up the water industry. We will continue to campaign to replace Ofwat and clean up our waterways for good.

Very moving installation. I really hope one day I am well enough to get to Glastonbury www.bbc.co.uk/news/article...

Art installation inspired by ME coming to Bristol and Glastonbury

The Mirrorbox artwork plays messages recorded by people with conditions such as ME and long Covid.

bbc.co.uk

Thank you @helenmorganlibdem.bsky.social for your support - it means so much to patients across the UK

Helen Morgan MP@helenmorganlibdem.bsky.social · last yr.

Today is #WorldMEDay. ME is a chronic, complex and often misunderstood condition that has a huge impact on patients. People with ME have been let down for decades - it's time for that to end. Our @libdems.org.uk letter to the Government 👇