Brilliant, vital thread. “The one thing the state is afraid of is a chorus." I’ve never joined a choir, but I’ll join this one.

Learning Disabilities & Autism at Manchester Met@learningmet.bsky.social · 3mo ago

As part of the Social Murder Festival, we're hearing from Lucy Easthope today, on Lessons for Challenging Social Murder from a Lifetime Working in Disaster www.eventbrite.co.uk/e/lessons-fo...

This is why @sabasalman.com new book, ‘Double Discrimination’ cannot be ignored. When you ignore a whole population in reports such as this from the BBC, and when groups like Mencap and the Staying Alive group don’t mention the double discrimination, we still have work to do!

It is shocking that people with a learning disability die much earlier than the general population. But once again, nobody has mentioned the even more shocking statistic that people from an ethnic minority who have a learning disability die much earlier still. www.bbc.co.uk/news/article...

Over half of adults with learning difficulties do not live past 65, report says

The government says the findings are stark, while a campaign group says they should be "headline news".

bbc.co.uk

Warning for graphic burn photo. Every year, nondisabled people scoff about the necessity of disability justice, let alone Disability Pride Month. The fact that “nobody knows” what happened to a vulnerable man who told people what happened is up there. www.independent.co.uk/news/health/...

I was banned from speaking out on five-year battle over disabled son. I want answers

When Grant McPherson, who has cerebral palsy and uses a wheelchair, temporarily went into care, his father Leonard McPherson had no idea they would be separated for so long. During that time, Grant su...

independent.co.uk

Worked with brilliant people on this: a snapshot based on my upcoming book on racism and ableism, Double Discrimination geni.us/Double_Discr... TY Paul Christian, making Black history easy reads with @gpadmoreinstitute.bsky.social, Bollywood dancer Harry @mumof3amigos.bsky.social & pianist Chapman

This is great, and points to a common and frequently overlooked cause of misunderstanding. The language we use frames our understanding- and superficially it often appears we are speaking the same one… but are we?

BJGP@bjgp.org · 6mo ago

BJGPLife: Speaking power to suffering bjgplife.com/speakin... #GeneralPractice #PrimaryCare #FamilyMedicine

… and we need the lift the projects and people in this latest edition offer, alongside a focus on shameful failures in support and care (and how to avoid them!). Thanks to all involved in creating this latest issue⬇️

Community Living Magazine@communitylivingmagazine.com · 6mo ago

New stories out now! One aim is to balance the negative headlines with some good stuff, so we look at how creativity can make a difference in people's lives. @georgejulian.bsky.social @maryohara1.bsky.social @touretteshero.bsky.social @oskabright.bsky.social communitylivingmagazine.com

I cannot overemphasise how important and brilliant this research is!

Torie Robinson@torierobinson.bsky.social · 7mo ago

Want to hear something exciting? 🥳 In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻 youtu.be/3qj5If0RdqM Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #MRI

Beautiful post in recognition of those living with rare diseases - which their can quickly become shorthand for a professional shoulder shrug. My own child didn’t get diagnosed until adulthood - partly due to advances in genomics but largely due to professional curiosity and a willingness to listen

Ruth Kettle-Frisby 🍉 ☮️ 🧡@ruthyphro.bsky.social · 7mo ago

#RareDiseaseDay thehaveringdaily.co.uk/2026/03/04/h...

Interrupting the grim with the light: my book Double Discrimination is out 21 May🔽 It's influenced by my sister Raana, it's on racism and ableism, what happens when you feel both, why that matters (to us all) - and to do about it. Feat. awesome people & projects www.hachette.co.uk/titles/saba-...

Double Discrimination

Whilst white privilege, unconscious bias and institutional discrimination have become high profile issues, learning disabled people of colour continue to be ...

hachette.co.uk

Forgive the boasting but that’s the 47th five star review for my book and a very nice one it is too!

What's the business re Keppra rage 💊😡? True? False? Inbetween? Who cares about seizure control when they are feeling so depressed (or worse)? 🙄 Watch 👇! 🎬 YouTube lnkd.in/eAhf66-2 This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #keppra #kepprarage

Agency and Responsibility socialismoryourmoneyback.blogspot.com/2026/02/agen... @officialspgb.bsky.social

Tragedy at the BAFTAs. There are no winners here, but there are some lessons for group and collective safety, some learning for leaders. www.forbes.com/sites/drnanc...

Tragedy At The BAFTAs: A Tale Of Victims And Villains?

Can we call on this tragic moment to reflect on accepting two truths as valid, and harm as systemic rather than a game of villains and victims?

forbes.com

If you are fond of an ale, I can thoroughly recommend this little beauty. A small, independent North Devon brewery too - chin chin.

“Evil starts when you treat other people as things. There are perhaps worse crimes, but they begin when you treat other people as things.” - Terry Pratchett

She never lived to see this moment, but it’s worth remembering that none of this would have happened without Virginia Giuffre. She had the courage to speak out against power and privilege when it was just her word against Andrew’s. Thanks to her, justice & accountability may finally have its day.

“Let me state clearly: the law must take its course”. This makes me feel more patriotic than any number of bedraggled lamppost flags.

AMAZING NEWS LADS! A good couple of thousand raised by this genius move by RSPCA Altrincham.

orbette@orbette.bsky.social · 8mo ago

I absolutely burst out laughing

Positive action: an explainer

Sean Jones KC@seanjones.org · 2y ago

In their manifesto Reform attack the "positive action" provisions in the "Equalities Act" which, they suggest cost billions, reduce productivity and destroy meritocracy. Have they identified a great social evil? Let's have a look. /1

When you have a child with learning disabilities, this is the barbaric and terrifying reality that keeps you awake at night.

Daniel Hewitt@danielhewittitv.bsky.social · 8mo ago

🔺Investigation: Families of severely learning disabled people in care have told us they’re being restricted or banned from visiting them after complaining about negligent care. We spoke to 50 families about the increasing use of contact restrictions. A worrying trend. www.itv.com/news/2026-02...

It's a year since my extraordinary daughter died unexpectedly. Re-sharing her obituary because it matters so much that the world understands who children w/ SEND actually are - especially right now when their right to the support they need in education is at risk. www.theguardian.com/lifeandstyle...

Amy Reyes obituary

Other lives: Music-loving teenager who was a consummate communicator, despite the restrictions imposed on her by Rett syndrome

theguardian.com

New year, new home, lots and lots of change but the cassis made from our blackcurrants (gathered at our old place) has been bottled, and tonight we will raise a Kir Royale to new adventures.

Should you need a bit of positivity rn👇🏾

Community Living Magazine@communitylivingmagazine.com · 9mo ago

The hospital staff told us they had never done anything like this before and that they will create an Elvi pathway for others with learning disabilities. @samcarlisle.bsky.social #healthcare communitylivingmagazine.com/solution-to-...

While I figure things out, here’s a kind of holding post. My (now adult) kids are out the other side of the statutory Education system - a door I’m delighted to shut. Recently stepped into the world of the rare epilepsies and all that entails. Still ranty and sweary, moved from a farm to the sea.

Thread. It is a great honour to announce the shortlist for the 2025 #Curae prize for unpaid carers POETRY CATEGORY Mistletoe. Sam Garvan Diagnosis. Elizabeth Loudon Sinkhole. Charlotte Ansell I Love Him (like salt and water). Emma Wilson The Shop at the End of a Wave. Ia Kozoboli. thecuraeprize.uk

“But talking about my daughter feels like the most important thing I can do. She mattered because she was here and she was exceptional.” What a beautiful and heartbreaking and important piece of writing this is.

Special Needs Jungle@spcialndsjungle.bsky.social · last yr.

NEW POST: Empty spaces & unwanted freedom: The end of caring. @catrionamoore.bsky.social wrote in March of the death of her daughter, Amy, who had #RettSyndrome. Today, she explains the aftermath of loss when your life has been structured around their care www.specialneedsjungle.com/e...

This is a new image from #JWST. The bright points with spikes are stars in the Milky Way. Everything else is a galaxy. Everything. Else. Is. A. Galaxy.

🧵 I want to tell you why I think this is one of the most important prizes running and I’m sorry that the book press and mainstream publishing hasn’t dived on it with bells on and support …

BookwormVaught - Dr Anna Vaught@bookwormvaught.bsky.social · last yr.

I confirmed the 2025 #Curae prize shortlist just now. Emotional? Me? Shortlist announced at 12 on 1st of May across socials and I will have let winners know just before. We can be in touch throughout the day. Life can be so hard; so sad, but community, love, creativity - those are golden.

"This book is both heartrending and gorgeous. It crosses the line many times but, ultimately, it’s about love. He teaches us humanity." Miriam Margolyes Published June 5th, available for preorder now.