@jencurtinmd.bsky.social
Physician. Entrepreneur. Nerd. 🍊YCW22. RTHM co-founder. Recovered ME/CFS. Treated infection assoc illness b4 Covid. Tweets/DMs are my own & not medical advice.
As a physician, Long COVID taught me humility.
As a patient, it showed me how harmful dismissal can be.
 To those living with Long COVID: you are my inspiration to listen better, believe sooner, and advocate harder. #LongCovidAwarenessDay #LongCovid #Physiatry
So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social! Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!
Patient-Led Research Collaborative@patientled.bsky.social · 7mo agoWe're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1
A recap of key Long COVID and ME/CFS studies from 2025. These findings continue to challenge outdated explanations and underscore the urgency of better care, better tools, and continued research. Swipe through to see the studies shaping what comes next.
RTHM is now accepting patients in Georgia and Ohio, expanding access to care for people managing Long COVID, ME/CFS, POTS, and other infection associated chronic conditions. Explore RTHM Clinic → www.rthm.com/clinic
Dr. Jennifer Curtin recently joined host Jill Brook in an episode of The POTScast to speak about RTHM’s innovative HIPAA-compliant AI platform, which equips people with infection-associated chronic conditions with practical guidance and tools. 🎙️Listen now-https://ow.ly/ji4Z50Y7T2f
One of the best sites running a wide variety of clinical trials for #LongCovid and other IACCs is @coresinai.bsky.social, via @putrinolab.bsky.social ! At least 5 trials are currently recruiting - see links below for eligibility!
"we observed sustained negative impacts of PCC on health outcomes 2.5 years after initial COVID-19 in non-hospitalised individuals, despite minor improvements over time." link.springer.com/article/10.1... Screenshot from latest Science for ME weekly update #LongCovid #postCOVID19condition
OK, that's it for the introductions! Now I'm going to create threads for each talk and attach each thread here... let's see how that works out for shareability. I've been disappointed by Bsky making longer threads cut off, b/c responses drop off past the cut, always. Let's see if this helps.
Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
bmj.com
NIH DOGE'd..... Scientists fear Trump administration cuts to NIH could impact the health of Americans for generations 60 Minutes @cbsnews.com w/transcript www.cbsnews.com/news/nih-lay...
How cuts at the National Institutes of Health could impact Americans' health
Cuts and layoffs to the National Institutes of Health threaten medical research around the U.S., agency insiders warn.
cbsnews.com
4. Anki Flashcards (me + @erinmarilee.bsky.social, assistance from @grachstephanie.bsky.social & @jencurtinmd.bsky.social) Flashcards for med students on infection-associated chronic illness #MECFS, #LongCOVID, #POTS, #hEDS, #MCAS & more. Recommended by CDC 🧵 millionsmissing.meaction.net/teachME/
Teach ME
Infection-Associated Chronic Illness Flashcards An Anki flashcard deck for medical students Includes questions on ME/CFS, Long COVID, POTS, MCAS, EDS, SFN, SIBO, and more! Written by MEAction staff an...
millionsmissing.meaction.net
Some VERY interesting research from the CDC #MECFS call today. Shows the benefits of compression garments for #POTS and similar conditions. One key finding: high waisted delivers the biggest boost. #LONGCOVID www.sciencedirect.com/science/arti...
A Community-Based Trial of Commercially Available Compression Tights in Patients With Postural Orthostatic Tachycardia Syndrome
Compression garments reduce heart rate and symptoms in patients with postural orthostatic tachycardia syndrome in an acute laboratory setting. Patient…
sciencedirect.com
