Tessera
Folgen

keri

@keristars.bsky.social

I love museums and history. ★ bed-tethered disabled! AuDHD, POTS, MCAS, and ME/CFS. ★🧑‍🦽★ I miss traveling and being in nature and sewing. #1 Lizzie W. Champney fan (2025) location: Jacksonville, Florida

36596 Posts1318 Follower278 Folgt
Sarah@no1sarah.bsky.social · 8h ago

On #SevereMEDay, I'm sharing Kornelia Paulsen's 'ME - How It Can Shrink One's World, Bit by Bit' We need recognition of severe and very severe states of ME. We need training for health workers, timely diagnosis, and provision of safe, specialist health care. We need funding for research.

Cartoon-style illustration, containing 5 panels: 1: 'Before M.E: a house, a plane, a parry, a gym, a workplace, mountains and trees 2: 'Mild M.E: a concrete-looking pedestal with a house and workplace on top. Beneath, rocks with PEM written on them. 3. 'Moderate M.E' the pedestal has shrunk to contain only a house 4. 'Severe M.E' the pedestal now contains only a bed 5. 'Very Severe M.E' the entire panel is black. There is nothing except the title text.
keri@keristars.bsky.social · 3h ago

already starting to feel the tumble from my wheelchair in my hips. oops. i still think it was funny as heck... i pushed a bit to get past the PEM stuff this morning, so i know it's going to be really bad tomorrow. plus the noise from the shelf installation was a lot. oh well, I'm happy for now :)

It's ME(Jaime)@exceedhergrasp1.bsky.social · 9h ago

Today is #SevereME day. Please take a look at and share the thread below: help teach people about severe ME.

It's ME(Jaime)@exceedhergrasp1.bsky.social · 2y ago

Today, Aug 8, is #SevereMEDay. Today we discuss severe-presenting #MECFS and remember people with severe ME. #MECFS is an infection-associated chronic illness, which means it is often, but not always, kicked off by an infection. ~Half of #LongCOVID cases at 6 mo meet the dx criteria for ME/CFS. 🧵

Two diagrams from the Mayo Clinic Proceedings article I co-authored. On the left, a diagram of a woman's body, including symptoms of fatigue, muscle aches, PEM, cognitive dysfunction, unrefreshing sleep, orthostatic intolerance, temp. dysregulation, urinary frequency, myalgia, sensory sensitivity/reactivity, swollen lymph nodes & other flu-like symptoms, shortness of breath, palpitations/chest pain, appetite changes and diarrhea/constipation. On the right, a wheel diagram of symptoms that may flare in post-exertional malaise, the pathology that occurs w/overexertion in which many symptoms flare and new symptoms may appear. It notes that PEM is not deconditioning, not being more tired than usual after activity, not second-day muscle soreness and symptoms are not necessarily relieved by sleep. It includes all the symptoms mentioned in the first diagram but has some sections on what it's like in the patient's own words.
keri@keristars.bsky.social · 5h ago

today I'm using my tv time to revisit the new Proud Family, and omg i forgot how good it is plus the hilarious incorporation of memes the debate episode with the "Slaves Built This Country" presentation 🔥🔥🔥

keri@keristars.bsky.social · 6h ago

so my mom came to help me get a good bath, and I asked her specifically to help with scrubbing my legs and feet. and i also had some boxes for her to take home. so she was on the way out, and i was like "genius! i can hold these in my lap and wheel out to her car, save her back!" except

keri@keristars.bsky.social · 6h ago

5 star review for my dad's carpentry! He installed the shelves in my closet today and they look amazing, especially since none of my walls are flat, and none of the bowing or angles are the same from one elevation to the next. I'm super happy! I can sit in my w/c to put laundry away now!

Looking into a walk-in closet. There is a wire shelf slash hanger bar about five and a half feet up that goes all the way around. Some closet junk is on it. A brand new pale oak veneer shelf echoes the wire one, but only six inches off the floor. It's about a foot and a half deep. On the left hand wall are two more pale oak veneer shelves, a foot and a half above each other. And at the top, just below the wire shelf, is a narrower wood one with about six inches of vertical space, for flat or small items. Demonstrating the height and depth of the new shelves are a square laundry basket on the bottom one, a cube bin on the second shelf, and a little plastic bin on the narrow shelf.
Traykor@traykor.bsky.social · 18h ago

While everyone is discussing mobility aides I ought to put out a rec for this cleverly folding rollator I got a few months ago. It folds so small! Which if you've ever had to get a rollator in and out of a car and know how annoying they can be is a huge plus. I find it comfortable: rolloy.com

Best Rollator Walker for Seniors | Rolloy Most Compact Rolling Walker

Shop premium rollator walkers and walkers for seniors at Rolloy. Lightweight, folding rolling walkers with comfy seats. Free shipping & top-rated support.

rolloy.com

keri@keristars.bsky.social · 9h ago

i put my earplugs in since i don't know when my dad will be using the saw, best to not be caught by surprise (he's installing shelves in my closet and trimming them to fit as he goes) and lololol i keep trying to lift my sunglasses like it'll help me see better. I'm not wearing sunglasses. 🤣

keri@keristars.bsky.social · 12h ago

FIFTEEN is extremely of-the-moment, that is, 1958, and has so many descriptions of clothes and pop cultural stuff? it's kind of great for that. I'm half reading between my fingers though because i feel like something extremely embarrassing is going to happen to Jane (even more) idk if i can bear it

@erinmhartshorn.bsky.social · yesterday

I recently finished knitting a baby blanket. For a decent section of it, I listened to Olivia Waites's NOBODY'S BABY. My card for the parents includes the following two quotes (yes, I have the ebook, too — it's *good*).

Quote from Nobody's Baby by Olivia Waite. "This must be why you brought a new baby gifts, I realized. You wrapped them in blankets because you wished you could wrap them in knowledge; you showered them with clothes and soft things because you couldn't shower them with the learned experience of your years and decades. It's why people liked handmade things for infants, even when those makes had faults."Quote from Nobody's Baby by Olivia Waite. "One stitch each, every stitch a second, a single moment in time frozen in fiber. To give to an infant—because time was the real gift, passed from one generation to the next."
Rebel@rebellionista.bsky.social · yesterday

Hoping for some help from the #ME/CFS community. Pls share I have #SevereME & am mostly bedridden, in agony, with no doctor. I’m hoping to raise funds to access private healthcare. I can’t continue to live in so much pain, without any medication. #pwme #MECFS #ChronicIllness gofund.me/bfbddc2a5

Donate to Bedridden and in agony, help Emma access treatment, organized by Emma Jane

Hi, I’m Emma. I’m housebound and mostly bedridden with ME/CFS, Fibromyalg… Emma Jane needs your support for Bedridden and in agony, help Emma access treatment

gofund.me

Mearn (season)@mearn.me · yesterday

There’s a pickup truck in the Publix lot parked in the “Reserved for Pickup” spot and honestly that’s on Publix for not being more specific