It’s August now and the official Severe ME Awareness Day is the 8th of August. In past years our community has talked about how a single day for severe ME is not enough. 1/5 #SevereME #MECFS #pwME #Photography nikosuvisto.com/this-is-how-...

Every tablet in this photo tells a story about what Long Covid has taken from my life. #LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts

Registration is now open for @uoftcovidrehab.bsky.social 2026 International Forum on COVID Rehabilitation Research rehabcovidnetwork.med.utoronto.ca/news/registr... @kellyobrien25.bsky.social #LongCovid #SafeRehab

Data by Finnish smart ring company Oura suggests that women in Finland are significantly more stressed than men.

Smart ring data reveals Finns are most stressed on Fridays, not Mondays

Data by Finnish smart ring company Oura suggests that women in Finland are significantly more stressed than men.

yle.fi

The Hursti foundation were forced to turn people away from the venue in Pasila due to a lack of space.

Christmas charity event organisers shocked by number of people in need

The Hursti foundation were forced to turn people away from the venue in Pasila due to a lack of space.

yle.fi

I have made myself a website! To showcase my photography portfolio, which so far consists of my most meaningful ongoing project, “Enduring: Life with Severe ME/CFS”. The site also features my short biography. I kept the pages simple. 1/5 nikosuvisto.com #MECFS #pwME #Photography

Niko Suvisto

I’m Niko Suvisto, a photographer from Lahti, Finland. I document my life as someone who is 99% bedbound with severe ME/CFS.

nikosuvisto.com

Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS, www.beckershospitalreview.com/quality/pati... 1/

Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis

New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release.  The clinical ...

beckershospitalreview.com

What’s on your bingo card for the next outbreak in USA? - measles? - polio? - influenza? - TB? - other (say)? #episky

What projects you have made with scrap yarn? 🧶 I usually knit socks but this crochet teddy bear was a nice change. #crocheting #crochetsky #scrapyarn

Thank you all for following g my Crocus-in-the-Snow mittens journey. They are done 😍🧶 From the book Knit Like A Latvian. I'm especially proud of the thumbs. #knitting #knitsky #knittersofbluesky

Long COVID is NOT caused by deconditioning! Excellent response by Appelman, Charlton, Wüst et al.

Is it too early for spring vibes? 😄🌷🧶 I couldn't resist this lovely pattern, Tiptoe through the Tulips, by @stoneknits.bsky.social #showmeyourknits #knitting

Korkeampi syke ja vähäisempi sykevälivaihtelu ovat riskinä #longcovid ja #mecfs oireiden pahenemiselle. Puettava teknologia voi toimia pacing-menetelmän tukena. kehonaarella.fi/2025/01/31/p...

Puettavan teknologian hyödyntäminen long covid ja ME/CFS potilaiden fysioterapiassa

ME/CFS ja long covid hoitosuositukset suosittelevat potilaille aktiivisuuden ja levon rytmittämistä (pacing -menetelmä), jonka toteutuksessa voidaan hyödyntää puettavaa teknologiaa. Puettavan tekno…

kehonaarella.fi

Assessment of Autonomic Nervous System Function in CFS & Post-COVID-19 Syndrome Presenting with Recurrent Syncope www.mdpi.com/2077-0383/14... "Patients with #CFS, irrespective of etiology, exhibit significant autonomic nervous system dysfunction and a high prevalence of syncope" #LongCovid #PASC

Make sure you’re following @coresinai.bsky.social for clinical trial opportunities and updates here!

Despite years of work and input from the IAG & new author group, Cochrane fails to address critical issues in its review of exercise therapy for ME/CFS. Worse, Cochrane has not followed its own stated processes & principles. Now the IAG has a message for Cochrane. www.meaction.net/2025/01/24/c...

Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS

#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue sy...

meaction.net

My latest cable projects that I knit with leftover yarn. The patterns are designed by Finnish designers Joona Höri (Graniitti mittens) and Lea Petäjä (cable headband). #knitting #showmeyourknits

🌠 From the #longcovidlegend that is David Putrino