Tessera

@msmarquartpoetry.bsky.social

So excited to contribute to this new book created to help medical professionals, educators, caregivers, and others understand what life with myalgic encephalomyelitis is like. #MillionsMissing #pwME #myalgicencephalomyelitis #mecfs

Pillow Writers@pillowwriters.bsky.social · 6mo ago

Huge congratulations to our WIMEL group on the publication of their incredible book. What is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives The book is now available to purchase via Amazon.

Elizabeth Warren @warren.senate.gov · last yr.

15 million Americans are going to lose their health care.

Robert Reich @rbreich.bsky.social · last yr.

trickle down economics trickle down economic trickle down economi trickle down econom trickle down econo trickle down econ trickle down eco trickle down ec trickle down e trickle down trickle dow trickle do trickle d trickle trickl trick

United We Dream @unitedwedream.org · last yr.

The @aclu.org, @unitedwedream.org and Abundant Futures Fund are joining forces to launch the Defending Our Neighbors Fund, a historic initiative housed within Rockefeller Philanthropy that surges financial support to nonprofit legal service providers supporting thousands of families.

@msmarquartpoetry.bsky.social · last yr.

I'm delighted to be part of this anthology with so many talented Asian artists, celebrating Asian women's magic!

Pauline Chow@paulinechow.bsky.social · last yr.

#CoveroftheEast is on @thestorygraph.com! buff.ly/aqI0Hcc @angelayurikosmith.bsky.social @aijiang.bsky.social @chaweonkoo.bsky.social @garnetonwinter.bsky.social @mudangjenn.bsky.social @samwilket.bsky.social @sonyarhen.bsky.social @ayidashonibar.bsky.social @muteddragon.bsky.social

Jennifer R. Povey (she/her)@ninjafingers.bsky.social · last yr.

Come listen to me and a bunch of other wonderful ladies* (I think they're all ladies) on Friday, October 3 at noon! @swsworlds.bsky.social @authorterribruce @tracytodd-author.bsky.social @lrrrocks.bsky.social @paulinechow.bsky.social @kdbwrites.bsky.social

Strong Women Strange Worlds presents First Friday QuickReads of Sci Fi, Fantasy, and Horror by Jennifer R. Povey, Adriana Kantcheva, Kimberly Davis Basso, Tracey Todd, Linda Robertson Reinhardt, and Pauline Chow. October 3, 12 noon EDT, Free On Zoom. Preregister now at StrongWomenStrangeWorlds.weebly.com

@msmarquartpoetry.bsky.social · last yr.

Many of us depend on #telehealth, but essential telehealth provisions expire on Sept 30 in the US. @meactnet.bsky.social has a script to call/email your representatives re a bill to preserve telehealth: www.meactions.org/telehealth Please advocate by Sept 29th! #MEAction #pwme #disabilityrights

A screengrab of the website linked above, which says:

"TAKE ACTION

TELEHEALTH

Update:

Congress has passed a Continuing Resolution budget that will keep telehealth extensions until Sept. 30th, 2025. Let's keep the pressure on our representatives to make those telehealth extensions permanent!

LEARN MORE

Essential telehealth provisions are set to expire on September 30th 2025. Congress needs to hear from all of us that telehealth saves lives. The "CONNECT for Health Act of 2025" (S.1261/H.R. 4206), introduced as bills in the both the House and the Senate, directly addresses the long-term expansion of telehealth by:

* Removing geographic restrictions for telehealth services.
* Expanding eligible originating sites.
* Widening the range of providers allowed to deliver telehealth.
* Eliminating the six-month in-person requirement for telemental health.
* Providing additional flexibilities for rural health clinics, Federally Qualified Health Centers, and Native American health facilities.

These bills' intent is to make many of the current pandemic-era telehealth flexibilities permanent, ensuring continued and future access for Medicare beneficiaries and expanding coverage for more providers

Help us advocate today!"

Gale Naylor @galejnaylor.bsky.social · last yr.

The problem is

i’m so done with the guns know i’m not the only one who wants to run from the ones who think guns will be the way they won and i wonder how many sun kissed children will be undone before we’re done with the guns and the ones who keep mum when the guns kill enemies but who run to the megaphone when guns kill someone they run with meanwhile masked bandits with long guns hunt Brown and Black and immigrant ones, run to punish anyone not kneeling to the gun-owning gold-leafed bunker lovers and none of what we’ve done and all that we’ve not done has not stopped the guns guns guns guns the problem is the problem is the fucking guns

—G. Naylor

#MEAction Network @meactnet.bsky.social · last yr.

We’re proud to join #NationalVoterRegistrationDay on 9/16 as a Community Partner! Together, we’re celebrating democracy by helping every eligible American get registered & #VoteReady for 2025. Register or check your status: nationalvoterregistrationday.org/register-to-... #pwME #Disability

Dr. Lucky Tran @luckytran.com · last yr.

It’s worth noting that for many years doctors refused to wash their hands, not because there was a lack of evidence for it being a life-saving measure, but because it challenged established norms. We are seeing the same regressive phenomenon with masks now.

Why did doctors refuse to wash their hands? A new study explains - Uppsala University

uu.se

@msmarquartpoetry.bsky.social · last yr.

I’m excited to read at Yellow’s 1-Year CelebrASIAN (free & virtual) this Sun, 9/21 at 10am-1:30pm PT / 1-4:30pm ET / 6-9:30pm UK, w/ hosts Keith Mar & Maureen P. Medina Register: www.eventbrite.com/e/yellows-1-... Come build & find refuge in a space that celebrates & centers Asians! #AsianArt

A graphic with the names and photos of all the performers, that says:

“YELLOW'S 1-YEAR CELEBRASIAN
SUNDAY, SEPTEMBER 218T 10AM PT | 1PM ET
AIM
AISHWARYA
BALASUBRAMANIAN
AMY MANION
DIANA "BIG MAMA"
ZMILLIONS MISSING
EVE LEE
HITEN CHOJER
JENNIFER ELISE
WANG
M.S. MARQUART
PATA SUYEMOTO
SHEDRAGON713
VEX KAZTRO
YAN SHAM-SHACKLETON”

@msmarquartpoetry.bsky.social · last yr.

Excited to be reading at the @pillowwriters.bsky.social salon this Thurs, Sept 18 @ 11am PT / 2pm ET Register: us06web.zoom.us/meeting/regi... This salon celebrates the release of the second issue of The Pillow Writers Anthology, avail here: a.co/d/7EBcelQ Proceeds benefit @meactnet.bsky.social

Pillow Writers @pillowwriters.bsky.social · 2y ago

There are several different Pillow Writer meetings, different time zones, different frequencies and different languages. All the necessary information on how to join us can be found here: pillowwriters.wordpress.com

Pillow Writers

An ME/CFS writing group

pillowwriters.wordpress.com

@msmarquartpoetry.bsky.social · last yr.

I'm honored to be a part of this anthology along with so many beloved and talented colleagues.

Pillow Writers@pillowwriters.bsky.social · last yr.

The second Pillow Writers Anthology is now available on Amazon. All profits to @meactnet.bsky.social Congratulations to all involved.

Merrydholl @maryeilmicdom.bsky.social · last yr.

Got a wee bit of exciting news. When well enough, I'm part of an international group of writers. Our second anthology has just been published. All proceeds go to @meactnet.bsky.social I'll remind you all later that this would make an ideal C-word present 😁 #LifeWriting #ME/CFS amzn.eu/d/8kZ5vCk

Near-Life Experiences: The Pillow Writers Anthology, Issue 2: Amazon.co.uk: Greenberger, Ann, Janzen, CJ, pagán teitelbaum, iliana, Gessert, Mary, Howard, Sol, Keogh, Martin, Solaris, Laila, Loehrer, ...

Buy Near-Life Experiences: The Pillow Writers Anthology, Issue 2 by Greenberger, Ann, Janzen, CJ, pagán teitelbaum, iliana, Gessert, Mary, Howard, Sol, Keogh, Martin, Solaris, Laila, Loehrer, Trish, S...

amzn.eu

Caiti Quatmann | writer + editor @caititalks.bsky.social · 2y ago

Want to support disability justice? Start by listening to disabled people. Then, actually *believe* what they tell you.

Neha Sampat @nehas.bsky.social · last yr.

Returned here after a long break to find this lovely post. It’s my poem, “Legacy,” published in the stunning @thebkmagazine.bsky.social!

The B'K Magazine@thebkmagazine.bsky.social · last yr.

CW: Mention of colonization Born shy of 7 lbs, she flung out her delicate arms to gather air and dust and world and universe, to claim what was hers Read more of "Legacy" by @nehas.bsky.social in The B'K Magazine, Volume 16, Issue 2: www.talbot-heindl.com/bitchin_kitsch

Background image is the cover art by Amuri Morris featuring a woman in a blue heavy gown crouches with her pet wolf sitting behind her. The subject is in a vast forest with bits of bright blue sky peaking through. Behind her a gold portal opens to another world of flames and a burning city. Text overlaid is the excerpt from the piece. Text at the bottom says Read more in The B'K Magazine, Volume 16, Issue 2!

#MEAction Network @meactnet.bsky.social · last yr.

In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2025! www.meartistsproject.com/severe-me-ar... Over 100 of you submitted photos, drawings, writing, music and videos of your work for our 5th Severe ME Artists Project! #SevereME #UnitedForME #pwME

Frame hanging on gallery wall with bench in front. Text in frame: Severe ME Artists Project Gallery 2025 Now open for virtual showing at #MEAction website: bit.ly/SMEAP25

Dr. Lucky Tran @luckytran.com · last yr.

BREAKING: New York Governor Kathy Hochul is set to sign an executive order allowing pharmacists to prescribe and administer Covid-19 vaccines to anyone who requests them, regardless of age or underlying conditions.

VACCINES FOR ALL: Gov. Kathy Hochul is set to sign an executive order allowing pharmacists to prescribe and administer Covid-19 vaccines to New Yorkers who request them, according to plans shared exclusively with Playbook. The Democrat’s executive order will mirror actions taken by other blue state governors this week to protect access to the latest Covid vaccine.

The Food and Drug Administration has only granted limited approval of the jab for older adults and individuals considered to be high-risk. That’s prompted Democratic leaders to create their own vaccine guidance and explore ways they can legally protect access to the shot for everyone.

“By signing this EO, Governor Hochul is making it clear that when Washington Republicans play politics with public health, New Yorkers will still be able to make their own health care decisions and get the care they need from trusted providers in their community,” Hochul spokesperson Kara Cumoletti said in a statement to POLITICO.

This morning, POLITICO Pro reported that the Hochul administration is reviewing potential solutions to the Trump administration’s efforts to restrict vaccine access. However, a long-term fix may require legislative changes by lawmakers either through a special session, or when they return to the state Capitol in January.

“This temporary order will ensure seamless access while the Governor works with the Legislature on a long-term solution to safeguard preventive care and vaccines,” Cumoletti added. — Katelyn Cordero

Danielle Froom 🏳️‍🌈@danifroom.bsky.social · last yr.

It's just a sports ban. It's just a bathroom ban. It's just a healthcare for kids ban. It's just a military service ban. It's just a federal jobs ban. It's just a university housing ban. It's just a passport & visa ban. It's just one Constitutional right. It's just your status as free citizens.

@msmarquartpoetry.bsky.social · last yr.

Immigrants make NYC one of the greatest cities in the world! #ImmigrantsBelong #GetICEOut #MoveOn

A graphic showing a subway train that says “New York City. Planned Service Changes: No Service to ICE Trains At All Times.” And “Text ‘BELONG’ to 668366 Msg & data rates may apply.”

@msmarquartpoetry.bsky.social · last yr.

I'm so excited to be part of the Pillow Writers Anthology that will be featured at this salon! Please join us! @meactnet.bsky.social @meactionuk.bsky.social @meactionscotland.bsky.social #MEAction #pwME #MECFS #DisabilityPride #CripPoetry #DisabledWriters

#MEAction Network@meactnet.bsky.social · last yr.

You are invited to join #MEAction for our latest Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK. Register: us06web.zoom.us/meeting/regi... More about Pillow Writers: pillowwriters.wordpress.com #pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE

America Is Divided @petrep.bsky.social · last yr.

Capitulation breeds capitulation, courage breeds courage.

Melody Schreiber @melodyschreiber.com · last yr.

Re: last repost: anti-vaccine activists talk about vaccines as a medical freedom issue. But what about everyone else's freedom to move through the world without contracting preventable disease? That's true bodily autonomy.

Bateman Horne Center @batemanhornecenter.bsky.social · last yr.

Living with severe #MECFS often means being bedbound. One community member shares practical tips, like bedside setups & sensory relief, to make daily life more manageable. 💙 Read more: buff.ly/nkcCa5r

Illustrated graphic with large text reading: 'Finding Comfort When Bedbound: A Community Member Shares Her Advice.' Smaller text below says: 'August is Severe ME Awareness Month. A community member generously shared her personal strategies for making her space more comfortable and manageable while living mostly bedbound.' Illustration shows a bedside table with items including water bottles, lamp, alarm clock reading 10:08, medications, snacks, and personal care supplies. A bed with orange bedding and two stuffed animal figures is partly visible.

Judy Stone @drjudystone.bsky.social · last yr.

Wonderful interview w @drdemetre.bsky.social on MSNBC. Refreshing to hear him call Kennedy's plans #eugenics and the language echoing #fascism. Brave man! Much respect to him and the other CDC docs who quit. www.msnbc.com/the-weekend/...

‘Wake up. This is where fascism lives’: Resigned vaccine chief on Trump’s ousting of CDC director

This week, CDC employees walked out of their offices in support of their leaders who resigned after President Trump ousted CDC Director Susan Monarez, and replaced her with Jim O’Neill, a businessman ...

msnbc.com

Ethical Seafood Research @ethicalseafood.bsky.social · last yr.

The Underwater Explorers & Rescuers Colouring and Activity Book is now available on Amazon! 🐟🦈🐡

@msmarquartpoetry.bsky.social · last yr.

I’m delighted to share that my poem “The Sparrows Shake Me, Wake Me” was published in Beyond the Veil Press’s new disability pride poetry, essay, & art anthology, In Praise of Despair. To purchase: a.co/d/jiG0Rqg #crippoetry #crippower #DiabilityPride #disabledpoets #disabilitypoetry #poetry

A photo of my poem in the book, which says
“The Sparrows Shake Me, Wake Me
After Mary Oliver
M.S. Marquart

My body and I have endured a thousand humiliations;
I was crying at the most recent, when suddenly a house sparrow
swooped past my window, landing in the soil below.
Then like lightning it flew onto a tree branch, trading places
with its fellow. The winged messenger quickly drew my eyes
to dozens of sparrows, brown bodies flitting from tree
to tree, rolling in the earth, hopping in the tall grass,
black beaks pecking at invisible treasures, voices
chirping incessantly.

I realized that the winter’s bare branches had sprouted leaves,
that the magnolias and cherry blossoms in the distance
were starting to bloom, that daffodils and crocuses
were springing up, bunches of hope.

You do not need to be able-bodied to merit a share
in the joys of life. You can be disabled, struggle through each day,
unable to leave home, unable to work, unable to be physically present
for loved ones’ birthdays, recitals, graduations, weddings --
and you can still taste nature’s beauty and delights.

Outside the open window:
bright clouds floating in a sunny blue sky,
intensified leaf and petal colors on grey days,
luscious floral scents drifting on the breeze,
a carpet of green ferns swaying in the wind like ocean waves.

The sparrows’ demanding cheeping, peeping, shrieking
shout at me, as if to shake me, wake me out of a haze,
remind me that the world’s love is for every creature,
as we float through the cosmos together.”

A photo of the cover of the book, which says
“Beyond the Veil Press
In Praise of Despair
disability pride poetry, essay, & art anthology”

The cover is set on a disability pride flag as the background, with diagonal stripes in muted red, yellow, white, blue, green, and charcoal gray. There’s an image of two hands making a heart with their thumbs and pointer fingers; one hand is an x-ray of a hand and the other hand is a white hand. Behind the white hand, there is a letter sealed with a heart that has a medical heartbeat symbol running across the middle. This artwork is by Raika Sailing.

@gnashingteethpub.bsky.social · 2y ago

📝 Poem of the Day 04/23/25 🔗 Read "bartender at the end of the world" by Denise Buitre by heading to our website, or by visiting the link below! gnashingteethpublishing.com/potd042325/ #potd #poemoftheday #poets #poetry #writingcommunity #author #napowrimo #openforsubs

Your Local Epidemiologist @ylepidemiologist.bsky.social · last yr.

1/ Popping back in with another #fallvaccine update. 👇 In case you missed it, Friday (or soon after) the FDA is expected to license the Covid-19 vaccine. Word is that the label will be restricted to adults 65+ and people at high risk. But a few organizations have made different recommendations.