New section of the podcast - mutual aid. Please help if you can, Anna could use your help @halcionandon.bsky.social Details: chuffed.org/project/1619...
Ness
@nessau.bsky.social
Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets. AUS
Orthostatic intolerance after spaceflight journals.physiology.org/doi/abs/10.1... 14 astronauts 10 minute stand test pre- and post-spaceflight All could finish the test pre-flight, only 5 could complete the test after. What's more interesting is the cardiovascular responses in each group 🧵
Orthostatic intolerance after spaceflight | Journal of Applied Physiology | American Physiological Society
Orthostatic intolerance occurs commonly after spaceflight, and important aspects of the underlying mechanisms remain unclear. We studied 14 individuals supine and standing before and after three space...
journals.physiology.org
I am hiring! My former postdocs have all gone on to great ongoing roles, so I am now looking for 2 new postdocs in dynamic vegetation modelling: Modelling vegetation-fire interactions in Australia Modelling Australian vegetation distributions Details linked below - please share!
World refugee day, 20 June We recorded this more than a decade ago and it still brings tears to my eyes Arbitrary or mandatory imprisonment of refugees is cruel & illegal Everyone has a right to safety when they flee conflict or persecution stevetowson.bandcamp.com/track/christ... #RefugeeDay
Christmas Island, by Steve Towson
track by Steve Towson
stevetowson.bandcamp.com
THREAD: 1. Some years ago women academics contacted me unsolicited on Twitter (which I no longer use) about an academic in Melbourne. They’d made complaints to a faculty head about the man’s targeted, obsessive bullying of women colleagues, including First Nations women. The university kept him on.
Anna needs to escape her family in Melbourne. She needs a place to go and someone to get her there. Are you that person? Do you know a place?
Threats and yelling here please help me get out. 🥺
#SevereMErgency #pwME, please sign this petition and email the hospital if you can. Instructions on the petition. @tessamunt.bsky.social - here we go again. @jamesmurrayldn.bsky.social @sharonhodgsonmp.bsky.social how many more times will you allow this to happen? We need safe beds for the Severe!
Sign the Petition
Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.
change.org
Does #MutualAid exist anymore? Crowdfunding stalled. Too sick to stay visible? People too broke? If you’re reading please share pinned post! Help if able. Room or granny flat? Board neg. Land for trailer/ cabin? LMK. Dying, Dr backed! #DisabilityMA 💕💸 #MADBoost 💸❤️ bsky.app/profile/halc...
Need to rest & recover from #Covid but bills & problems don’t disappear while sick. Read my story. Help me escape abuse. I don’t know how long I’ve got to live. chuffed.org/project/61937-help-anna-escape #MutualAidAustralia #HelpSky #DisabilityMA 💕💸 #MADBoost #MutualAid 💸❤️
#pwME there was a study in the past year or two showing the detrimental effects of psychologising physical illness. I can't find it anymore tho, does anybody have the link to the study?
For #MEAwarenessday I interviewed 8 men about their experience with ME. As far as I'm aware there's never been a film with just men talk about ME. Make sure to check out and please share!! #myalgicEman #pwme #millionsmissing #millionsmissing #severeME #MECFS youtube.com/watch?v=z_MC...
Men about living with M.E. (with subtitles)
YouTube video by Anil about ME
youtube.com
🧵🧵 A repository of selected ME/CFS and Long Covid documentaries & shorts. Plus some current affairs reports, art films and archival footage * Compiled over a few years from web searches * Apologies for any links that have broken #MECFS #LongCovid #GreatestMEdicalScandal #MillionsMissing #May12th
Two poems by James Strazza who died this week. He had been suffering with severe #ME since 2019. A rare and sensitive man. It’s incredibly sad that once again we are mourning one of our own. May those that have blocked research and psychologised ME feel the pain of their actions 💙
This has been a challenging crowdfunding for Berkeley's Trial by Error project on ME, ME/CFS, Long COVID, etc, but it seems like things are catching up in the final days. Now at 80% of the goal! Thanks to all!!! crowdfund.berkeley.edu/project/49720
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
crowdfund.berkeley.edu
Oooh nice!! Congrats to @davetuller1.bsky.social for being a finalist 👏 Last chance to support his Trial By Error reporting at UC Berkeley (3 days left): crowdfund.berkeley.edu/project/49720
🌟 Celebrating David Tuller, senior fellow in public health and journalism at UC Berkeley, finalist in the #mecfs Awards for Journalism Excellence for his piece Open Mind Chronic Denial. 🔗 zurl.co/6S3JW 📢 Thank you David for highlighting ME/CFS through your work!
Thanks!!! The campaign has now reached 72% of the goal. For those who'd like to support the project, here's the link: crowdfund.berkeley.edu/project/49720
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
crowdfund.berkeley.edu
David Tuller (@davetuller1.bsky.social) has done a lot of great work to promote proper science on ME/CFS, Post-COVID, and PAIS in general. Please support his work if you can. There are 3 days left in the current crowd funding campaign. #MECFS #LongCovid crowdfund.berkeley.edu/project/4972...
David Tuller is crowdfunding for his salary & expenses for period up until end of 2026, when he plans to retire. His work has played a major role in the ongoing shift in how ME/CFS is viewed, and Long COVID along with it. Contribute until 5 May. 58% of goal achieved so far tinyurl.com/5exx924e
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
tinyurl.com
Could we get this legend who fights for us paid for the last year before retirement, please!
For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: crowdfund.berkeley.edu/project/49720
‼️ BURIED ALIVE WITH M.E.‼️ For #MEAwarenessMonth I made a severe ME body‑bag “dance” film about death within the ME community. youtu.be/XhrAhGkrGuQ?... I also joined the online expo ME Kills by A Quiet Storm, which goes live on May 12th, 1/ #pwme #myalgicE #millionsmissing
Buried Alive with M.E. (with subtitles)
YouTube video by Anil about ME
youtu.be
Ah, here it is "a single bed in a share house with multiple tenants" in North-Eastern Adelaide www.sbs.com.au/news/article...
Show me the rental. I want to see this unicorn www.abc.net.au/news/2026-04...
Guess what? It's #WaysideWednesday and here's the first episode of Wayside, an audio drama for the Covid Conscious community. I'll post episode 2 next Wednesday! youtu.be/MvcynQFPJRk
Wayside: An audio drama for the Covid Conscious community - Episode 1
YouTube video by N95sSaveLives
youtu.be
There was a great man called Dave Who was #pwME ‘s fave He stood up for them When they had PEM Please donate in memory of Maeve #GreatestMEdicalScandal #SevereME #MaeveInquest
Please Help David Tuller @davetuller1.bsky.social , Our Champion! crowdfund.berkeley.edu/project/49720 Image is from the AMMES April 2026 newsletter #MEcfs #PwME #LongCovid
Not up for a full research study? You can still make a big difference. One blood donation to the AusME Biobank can support up to 39 research studies into ME/CFS and long COVID. Low effort, high impact. Join here: zurl.co/JosYx
Berkeley's crowdfunder for Trial By Error has received 350 donations!! Thanks to all who have supported my work over the years. Here's the link for the current effort: crowdfund.berkeley.edu/project/49720
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
crowdfund.berkeley.edu
@angryhacademic.bsky.social slow release vitamin 🍊 dose 🐾😽🐾
Lift off! Everyone is LOVING the recent summery weather!!
1) This review on exercise for Long Covid now has a corrigendum, following a letter by David Tuller that points out multiple flaws.
1) A new review on Long Covid recommends 'exercise training' but it's based on low-quality trials with high risk of bias and problematic inclusion criteria. Some didn't even focus on Long Covid patients, just people who survived COVID-19. A brief overview 🧵
Can you help provide Anna with: 1. $$ 2. A quiet room in a COVID-conscious (masking) home in Melbourne, Australia (can pay $250 per week) 3. Relocation assistance 4. Advocacy 5. Assistance with basic phone calls
Need to rest & recover from #Covid but bills & problems don’t disappear while sick. Read my story. Help me escape abuse. I don’t know how long I’ve got to live. chuffed.org/project/61937-help-anna-escape #MutualAidAustralia #HelpSky #DisabilityMA 💕💸 #MADBoost #MutualAid 💸❤️