Shannon 🦖

@shannonstypula.bsky.social

Certified Silly Goose. Here for artists, science, cats, wildlife, reptiles, dinosaur, books, and disability friends. Uncivil Engineer who supports equitable transportation. #TeamOrca

Looking for a Christmas miracle for a kitty (aging parent situation) for Baltimore pals: (1/2) ""My mom can no longer keep Angelo (alas!!!) and we are looking to rehome him. Angelo is a total sweetheart. He is 6 years old, gentle, playful, friendly, and a lovebug."

sweet-faced tabby cat sitting at a table with front paws on the edge of the table.

“I don’t know how you do it! I could never be chronically ill!” We didn’t get a choice. No one asked our permission. Disability just happens. It can happen to you too. We cope because we have no choice. We can’t trade our bodies in for new ones. We can’t “try harder” our way out of it.

Why Are Chronically Ill People Forced to Hide Their Pain?

And what would happen if we stopped hiding and showed the world the depths of our suffering?

disabledginger.com

Whenever drug companies justify their high prices, they tend to claim a need to recoup their huge investment in developing that drug. The story of one drug that costs more than $2M for a single dose exposes the truth about who is paying to develop the world's most expensive medications:

What a $2 Million Per Dose Gene Therapy Reveals About Drug Pricing

Taxpayers and charities helped develop Zolgensma. Then it debuted at a record price, ushering in a new class of wildly expensive drugs. Its story upends the widely held conception that high prices ref...

propublica.org

My employer switched to a new prescription benefit manager and I cannot begin to explain how many hours I've spent dealing with phone calls, paperwork, and MyChart messages. I'm tired and I just want my medication refills.

“Terrible things are happening outside. Poor helpless people are being dragged out of their homes. Families are torn apart. Men, women, and children are separated. Children come home from school to find that their parents have disappeared.” Diary of Anne Frank January 13, 1943

The US Access Board--who creates and maintains access standards for buildings, telecom, transit, web, etc--has a legally-mandated annual meeting. Was supposed to be next week. Now "postponed" with no reason given and no reschedule date. www.access-board.gov/about/meetin...

U.S. Access Board - Access Board Meetings

The U.S. Access Board is a federal agency that promotes equality for people with disabilities through leadership in accessible design and the development of accessibility guidelines and standards for ...

access-board.gov

Reminder as we blaze toward the new year that it’s OK if 2024 was just a blur of pain and chaos instead of a productive era to reflect on. Being alive is particularly rough right now. You’re doing your best and that’s enough.

It’s so hard to find friends who relate to CEO problems. Let’s talk about how challenging it is to be a CEO and then let’s plan a meetup to bond. Maybe on a boat so we can see whaley whales, just look at some orcas