Perfectly said. No, I cannot do another daily task. Unless I want to skip one of my two meals. And no, I cannot go to any more appointments or physical therapy or anything. I need to rest more. I can't remember the last time I had *any* energy at all. I have to move and I have no idea how.

David Keegan@drdavidkeegan.bsky.social · 20h ago

One of the things a patient with complex chronic disease dreads to hear from any doc is, “Add this new thing to your routine. It will only take 5 minutes each day.” The “only” is doing *such* heavy lifting. When you add in all the other bits and pieces, tracking medications, handling the 1/3

This is today!!! RSVP for the Zoom link.

Julia Métraux@juliametraux.bsky.social · 4d ago

On Wednesday, I'll be speaking about my disability reporting at @motherjones.com at SF's Disability Cultural Center. Come in person for 4pm PT or watch online, but please RSVP either way! disabilityculturalcenter.org/event/disabi...

if you think you’d don’t know anyone with longcovid, but you don’t use any mitigation yourself, consider: yes you do, they just may not feel safe enough to tell you.

babs ✨@itsbabs.bsky.social · last yr.

longcovid is not uncommon, not prevented by vaccines, and likelihood of developing it increases with every subsequent acute infection. symptoms can range from annoying to debilitating, and impact people with marginalized identities disproportionately. prevent infection. wear a mask.

Its embarrassing how many grown ass adults live in these fantasies where people work for some nonsense like the artificial cultures oligarchs manufacture over survival.

Inflammatory disorders can be brutal. I’d know personally (thanks vasculitis et al). But the misinformation, including on vaccines, is dangerous. A deep dive from me into how MAHA sped up the inflammation panic. New from me at @motherjones.com www.motherjones.com/politics/202...

The Great Inflammation panic

The wellness world's favorite buzzword has gone federal. For those of us with real inflammatory disorders, the misinformation isn't just annoying—it's harmful.

motherjones.com

Everyday eugenics is grinding me down to my bones. Any time I read the news its just headline after headline of "well vulnerable people will just die *shrug*" whether its war, famine, diseases, environmental disaster, or whatever other horrific stuff is happening daily. I am so so weary.

Not a big fan of the "sick, elderly and/or disabled people don't count" discourse that appears to follow public health disasters these days.

The New York Times@nytimes.com · 2d ago

Breaking News: Two deaths in Michigan have been linked to cyclospora. Both people who had the parasite also had underlying health issues.

I think "AI" plumpers should be happy I'm focusing mostly on the nonsense it's doing to my field, rather than how it's very clearly designed as a tool for the capture of wealth and capital by a bunch of accelerationist weirdos enthusiastically huffing their own farts from the depth of their K-holes

The Register@theregister.com · 3d ago

Sci-fi authors Scalzi and Stross decry AI's dystopian impact on their craft

Super useful. I figure a lot of us here in the Sky know this stuff already, but it might be handy to hand to parents, grandparents and pals who are less technically minded. www.librarian.net/NoToAI/

I truly dont know how we can look around and pretend the same groups of people identified as likely to die or become disabled by Sars-Cov-2 no longer need protection. Sorry are you telling me there are no more pregnant people, disabled people, or elderly people in the world?

Please stop saying “lockdowns.” There were never true lockdowns in the US, and it fuels far right narratives to repeat this inaccurate statement. You can say closures, you can say restrictions, or better, you can say public health measures which saved many lives.

Dr. Lucky Tran@luckytran.com · 6d ago

People still complain about “lockdowns” but we had none in the US. We had stay-at-home orders, where although businesses were closed, you could still go outside whenever you wanted. Other countries had far stricter rules, and yet have been much more accepting of them as they saved many more lives.

At the end of Disability Pride Month, I want to reflect on the labor it takes to be a disabled person being one of a handful of people regularly covering disability. I am exhausted. But I'm also proud of what I do at @motherjones.com.

When are we going to talk about how class shapes conferencing in academia? And how conferences exacerbate the wealth gap btw folks with unlimited research funds vs those of us with the funds to attend/belong to just one org a year?

Reposting this piece by myself and @nicole-lee-sch.bsky.social about SHEAR’s resistance to inclusion and accessibility for…reasons. www.insidehighered.com/views/2022/1...

Ending remote conference options is exclusionary (opinion)

In scrapping remote options for conferences, academia has set out on a dangerous trajectory, Shira Lurie and Nicole Schroeder write.

insidehighered.com

"As Japanese financial newspaper Nikkei Asia found in a recent investigation, just five US tech giants — Alphabet, Microsoft, Amazon, Meta, and Oracle — are hiding an estimated $1.65 trillion in debt that doesn’t appear on balance sheets. futurism.com/artificial-i...

AI Companies Are Trying to Hide a Staggering Amount of Debt

AI companies are pouring tens of billions of dollars into enormous data centers. They're being built on top of a mountain of hidden debt.

futurism.com

Got an email today for an academic org bemoaning how much conference hotels charge for a mic, speakers, and projector. You have got to be kidding me. Just cut the hotel conference contract. Host your JULY conference at a uni thats fully prepped. Go virtual. Buy $20 mics 1/6

Same applies to epi pens. I pay $400 for a generic pair every other year. Even though there are some brands like Auvi-Q that ARE innovating and making the application easier (and harder to make mistakes), insurance companies fuck w the formulary to make sure you pay more for a worse product.

Acyn@acyn.bsky.social · 3w ago

AOC: This is an inhaler pump. Can you guess what the great innovation was that made it worth preventing this from going generic? It’s this little plastic piece right here. That was a major part of the new patent they filed to extend exclusivity and prevent this life-saving drug from going generic.

AOC: This is an inhaler pump. Can you guess what the great innovation was that made it worth preventing this from going generic? It’s this little plastic piece right here. That was a major part of the new patent they filed to extend exclusivity and prevent this life-saving drug from going generic.

Thank god there are no gender studies classes anymore otherwise we might be able to figure out what's going on here.

Matthew Gault@mjgault.bsky.social · 3w ago

Hegseth announced they're gonna start screening for T and administering testosterone treatment for warriors found wanting

"July is Disability Pride Month, so I wanted to focus this newsletter post on how my Disability Justice lens informs all of my work, in case tangible examples could help others to think more critically about how oppression limits access." www.equitableforall.com/articles/7-w...

7 Ways This Disability Justice Practitioner Can Support Your Work with Virtual Equity Services

This newsletter post is the author's attempt at highlighting how her Disability Justice lens informs all her virtual equity services, as she reconciles that she will either get better at marketing her...

equitableforall.com

Call for submissions! The July writing contest theme is: Own Voices, Personal Fiction or Poetry, Memoirs or Nonfiction Learn more at: www.underground-bookshelf.com/3250546_july... #WritingContest #ownvoice #Fiction #poetry #memoirwriting #memoir #submissionsopen #disability #lgbtqia #bipocauthors

One of the gems on our ELibrary page is Calisphere's digital collections. For Disability Pride month, we'd like to highlight UC Berkeley Bancroft Library's Disability Rights and Independent Living Movement collection: calisphere.org/collections/...

Disability Rights and Independent Living Movement: selected documents from the Bancroft Library

The world view on disability has shifted dramatically over the past thirty-five years. In the 1960s and 1970s, for reasons not yet fully explained, the grassroots call for self-determination by people...

calisphere.org

If we are serious about protecting LGBTQIA+ people - not just online safety, but the survival of queer history - we need to understand what is lost when access to online spaces is restricted

Geocities: a cautionary tale of how Trans+ history can be deleted with one click

Geocities, a gay owned start up, was one of the first to give people tools to make their own web pages - when Yahoo deleted it, queer and Trans+ archives were lost

wearequeeraf.com

"The Government Doesn't Want You To Read These Zines" – new benefit zine packets from South Bend Commons! All proceeds go to Prairieland Defendants. firestorm.coop/products/253... @dfwsupportcommitt.bsky.social

Please keep hammering this. It's an obvious and effective message that plays widely, especially with low-info voters.

Chris Murphy@chrismurphyct.bsky.social · last mo.

Trump has turned the White House into a 24/7 corruption operation. This is a national crisis. Trump thinks the public will stop paying attention. So I went to the Senate floor to call his bluff. I told the ENTIRE STORY of his 500 days of corruption. 1/ Here it is - in one🧵

Calling all in #DisabilityStudies - please share the news that @disstudies.bsky.social has a new conference CFP out! "Here and There, Then and Now: Disability Studies at the End of the World" is going to be AMAZING next April! 1/7

Did you teach, read, or cite an article from @DSQJournal this year? DSQ is open access for anyone interested in #DisabilityStudies! Since it doesnt make $ through publication, we have to fundraise to support the editorship. If you care about making this possible please donate!

Society for Disability Studies@disstudies.bsky.social · 3mo ago

Option #1: Disability Studies Quarterly Fund Everyone deserves the right to engage with disability studies research. Your donation will support our paid editorship and continued open access publishing for DSQ. paypal.com/donate?campa... 4/6

I know academic orgs are mostly bs, but I'm on the SDS Board and I actually think we are trying to combat the general harms of academia. If youre also in #DisabilityStudies I really hope you can help us sustain the org!

Society for Disability Studies@disstudies.bsky.social · 3mo ago

Want to help the SDS grow and sustain our yearly activities? We need your help to maintain Disability Studies Quarterly, host an accessible yearly conference, and provide access supports like CART and ASL at our events! The best ways to get involved? #DisabilityStudies #AcademicSky 1/6

To be clear since the headline isn't: a study that claimed GenAI was good for learning, actually, turns out to have been bullshit.

Matt Seybold@mattseybold.bsky.social · 3mo ago

Retractions never get proportional attention. This one should.

Historical research does not need to be done faster or in greater volume for any social or intellectual purpose whatever; if anything, it needs to be done more slowly and deliberately than at present, by people allowed the training, time, space, and resources to do it that way.

Erin Grievances@erinbartram.bsky.social · 3mo ago

"This will transform historical research!" Cool but it's already being transformed out of existence by the same forces pushing these transformative technologies. Forgive us if we're skeptical of a moment that's telling us "This will help you do your work--which we despise--faster and better."