Resonant, painful essay about the way internalized ableism even more than Long Covid threatened this person’s marriage. I really admire the work he’s done to get out of that destructive mindset and to a place of acceptance. Gift link: www.nytimes.com/2025/01/31/s...

I Love You. Please Find Someone Else. (Gift Article)

“In sickness and in health” may sound romantic — until you’re sidelined with a chronic illness.

nytimes.com

Welcome immigrants from X interested in science to the friendlier skies of @bsky.app, as documented by a new @nature.com survey (but you already knew that 😉) "Bluesky is much better for science. There is much less toxicity, misinformation, and distractions." www.nature.com/articles/d41...

A team in Exeter has developed a finger-prick test to classify long Covid into three types: weak antibody response, excess immune response, and unclear patterns. Early results suggest it could guide tailored treatments, but larger trials are needed. www.bbc.com/news/article...

Exeter firm excited over long Covid test breakthrough

The firm says for some people it can confirm the existence of long Covid and help treatment.

bbc.com

Please help spread the word 👇 @putrinolab.bsky.social @daltmann.bsky.social @sunny-rae1.bsky.social @sunsopeningband.bsky.social @binitakane.bsky.social @davidjoffe64.bsky.social @drannanz.bsky.social @johanvawe.bsky.social @pamelarbishop.bsky.social @oonaghcousins.bsky.social @cureid.bsky.social

Katharina 🦋🍋🍀@katha1970.bsky.social · 2y ago

‼️Important opportunity for #LongCovid patients & MDs‼️ Please share your experiences with medications and supplements tried for Long Covid in the FDA/CureID "Long Covid Treatment Survey" until Jan 31st. Results may influence clinical trials! Link: cure.ncats.io/pilot-overvi..., then click "share".

Science Alert: 'Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals' 'Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS)' www.sciencealert.com/chronic-fati...

Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals

Scientists are growing concerned that infections of the SARS-CoV-2 virus may be triggering more cases of chronic fatigue syndrome or myalgic encephalomyelitis (ME/CFS).

sciencealert.com

The Sick Times: “Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels” “The reality of Long COVID is also often erased or minimized” thesicktimes.org/2025/01/14/i...

Immune system damage from COVID-19 is different from HIV/AIDS — but the advocacy has parallels - The Sick Times

Lymphopenia is a health condition in which people have low white blood cell count in their blood. Without these cells, the body is unable to defend itself effectively against pathogens. Lymphopenia is...

thesicktimes.org

I just wrote a @C19LH_Advocacy letter: Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24) Write one here: actionnetwork.org/letters/urge...

Urge Congress to Pass the Telehealth Modernization Act of 2024 (Telehealth Set to Expire 12/31/24)

The Telehealth Modernization Act of 2024 offers a critical opportunity to secure life-saving healthcare access for millions of Americans, particularly those with Long COVID, infection-associated chron...

actionnetwork.org

Today is my 4 year COVIDversary. I didn't dread it this yr as in previous yrs. I don't want to b sick but have accepted this is my life. I'm one of the unlucky ones whose health has been in steady decline since day 1. But each day w my family is a precious gift now. #LongCovid

Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.

Passing it on

Pam Bishop, PhD@pamelarbishop.bsky.social · 2y ago

I don't have the energy for this, so passing on info. CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID. acrobat.adobe.com/id/urn:aaid:...

I don't have the energy for this, so passing on info. CMSS is now accepting applications for a multi-disciplinary Expert Panel on #LongCOVID. Looking for patients and professionals with expertise in the diagnosis and management of Long COVID. acrobat.adobe.com/id/urn:aaid:...

Ty has joined the chat! @seekingboston.bsky.social

Seeking Boston Marathon@seekingboston.bsky.social · 2y ago

One year ago I was diagnosed with stage IV cancer. Nothing can prepare you for a Dr telling you that you have 2-8 years to live. I spit in cancer's face and still here a yr later still fighting. www.seekingbostonmarathon.com/2024/02/long... #cancer #LongCovid

“It took a while for scientists to discover COVID was entering the brain. We know – the literature shows – from cases in the past that these viruses [H5Nx variants] like to hide in the brain,” Beckman said. My short interview with The Front about #H5N1 is out www.thefrontonline.com/article/2024...

Whatcom County reports its first flock infected with Avian influenza

A teenager was hospitalized in critical condition on Nov. 9 in Vancouver, B.C. after contracting the first recorded human case of bird flu in Canada, according to Canadian health officials. 

thefrontonline.com

Tell me your most effective non-opioid ways to manage pain. Neck and spine pain specifically, but also other joint pain. It's just out of control lately. #LongCovid

You may think that neurological symptoms in #LongCovid are for old people, but it is the opposite. Young adults (18–44 years) and middle-aged (45–64 years) with mild acute #COVID cases (non-hospitalized), represent 90% of the cases of #NeuroCovid. Read here: onlinelibrary.wiley.com/doi/10.1002/...

New research shows younger and middle-aged adults have worse long COVID symptoms than older adults "On an average of 10 months after COVID-19 onset, younger (ages 18-44) and middle-aged (ages 45-64) adults had worse neurologic symptoms of long COVID than adults 65 and older." #LongCOVID

New research shows younger and middle-aged adults have worse long COVID symptoms than older adults

New study from Northwestern Medicine finds symptoms occurred regardless of mild or severe COVID-19 infection

news.nm.org

Anyone with #EBV reactivation taking Acyclovir? I've been on it for two weeks and my knee joints are absolutely killing me. Just wondering if it's another weird #LongCovid phase or common side effect. TIA (Knee joint pain is one of my LC symptoms, but this is intense)

It's been two years now since I felt human after HELP apheresis. It only lasted two weeks, but it was glorious. Wish it was available & affordable to do weekly. It is the ONLY trt that has made me feel well in 4 yrs. 2 weeks in 4 years of being sick. #LongCOVID

Welcome to my Bluesky feed - I mostly post about science, tech and advocacy related to solving infection-associated chronic illnesses, like ME/CFS, Long Covid and Chronic Lyme 💙🦋 Please give me a follow! #MECFS #LongCovid

🧪 Here’s what’s happening this week in #LongCOVID research: bit.ly/3UVJt2j 💌 Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/

Study: “The COVID-19 group had a significantly higher rates of bacterial infections, influenza virus infections, and mycoplasma infections” Just like Spanish Flu, Covid is increasing the risk of bacterial infections. #MycoplasmaPneumonia #Pneumonia #LongCovid www.thelancet.com/journals/lan...

Long COVID facts and findings: a large-scale online survey in 74,075 Chinese participants

This survey provides valuable insights into long COVID situation among Chinese residents, with 10%–30% (including repeated infection) reporting symptoms. Monitoring at-risk individuals based on identi...

thelancet.com

Researchers exposed skeletal muscle to serum of ppl w/ #MECFS or #LongCovid @48 hrs: contractile profile severely compromised, shift to glycolysis @ 96-144 hrs: high fatiguability, fragile tissue, fragmented mitochondria Postexertional malaise is very real. www.sciencedirect.com/science/arti...

571P Muscular metabolic plasticity in 3D in vitro models against systemic stress factors in ME/CFS and long COVID-19

Myalgic encephalomyelities/ chronic fatigue syndrome and long COVID-19 are clinically challenging, multi-symptomatic conditions with multiple overlapp…

sciencedirect.com

#MedSky, Pause & check out symptoms of #LongCovid from Nat’l Academy (#NASEM). LC is not rare, & clinicians of all kinds are caring for ppl w/ it, whether they know it or not. As the #MedEd saying goes: you may not have seen it, but it has seen you. 👀 #MedTwitter www.nejm.org/doi/full/10....

Long Covid Defined | NEJM

Members of the National Academies of Sciences, Engineering, and Medicine describe the process and rationale for the development of the 2024 definition of persistent Covid-19 symptoms (long Covid).

nejm.org

📺A Start-up Guide in less than 10 mins. This is predominantly for people who haven't moved over (but is also has some handy tips)! We have a Bluesky playlist on YouTube too with shorts & vids to help the community #longcovid #mecfs #chronicillness #disability youtu.be/aY8mYN7_ufs?...

Set up Bluesky Guide - in less than 10 mins

YouTube video by Long Covid Advocacy

youtu.be

Many long COVID patients adjust to slim recovery odds as world moves on #LongCovid www.reuters.com/business/hea...

Many long COVID patients adjust to slim recovery odds as world moves on

There are certain phrases that Wachuka Gichohi finds difficult to hear after enduring four years of living with long COVID, marked by debilitating fatigue, pain, panic attacks and other symptoms so severe she feared she would die overnight.

reuters.com

11/13/24, Science: 'Animal models of Long Covid: A hit-and-run disease' www.science.org/doi/10.1126/...

Animal models of Long Covid: A hit-and-run disease

Animal models will inform our understanding of Long Covid and will aid in identifying therapeutic targets.

science.org

"Journalists may want to be done with COVID-19, but the virus isn’t done with us — or the communities we live in and report on. It is a disservice to people’s health and lives to mischaracterize or inaccurately report on COVID-19.” - @hashtagjames.bsky.social rjionline.org/news/breakin...

Update on my #LongCovid journey since it's been a while. I continue to decline physically and cognitively, albeit slowly (thankfully). Last 6-8 months have seen more rapid decline in energy and cog abilities. Trying Prodrome Glia again 4 brain fog & Acyclovir 4 EBV reactivation. Here's to hoping 🤞

My #LongCovid story, for those I haven't met yet on this app. youtu.be/b2xW38dbI2U?...

Update on my #LongCovid journey since it's been a while. I continue to decline physically and cognitively, albeit slowly (thankfully). Last 6-8 months have seen more rapid decline in energy and cog abilities. Trying Prodrome Glia again 4 brain fog & Acyclovir 4 EBV reactivation. Here's to hoping 🤞