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Katie As

@katieas.bsky.social

🏳️‍🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷 (I have left the other place permanently, please interact with me here!)

377 Posts431 Follower857 Folgt
Frances Ryan@francesryan.bsky.social · 3d ago

I’m very much on the “don’t speak ill of the dead” side of civility but that doesn’t mean distorting what someone did with their life, particularly if they used their position to hurt others. Liddle was not a brilliant provocateur. He used misinformation to whip up hate against bedbound people.

Frances Ryan@francesryan.bsky.social · 3d ago

As Rod Liddle has died, I notice this column I wrote in 2019 about his attacks on people with M.E. is on the most read again. Rebekah Brooks, of News UK, described Liddle today as “provocative”. In reality, he spread lies about very sick people for cash. www.theguardian.com/commentisfre...

Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be | Frances Ryan

Whether it is ME patients or another target, huge swathes of the media have normalised hatred of minorities for years, says Guardian columnist Frances Ryan

theguardian.com

Long Covid Advocacy@longcovidadvoc.com · last wk.

No.03 in our 101 series covers The Biopsychosocial Model. A vital topic as much of our clinical care is BPS. Lack of progress in care, research & treatment rests on this theory. Yet, it's a complex topic, so we have created an accessible article AND a 1-page visual summary. Link 👇

Cover image for a series titled "101: 03. The Biopsychosocial Model." Against a textured background in shades of yellow, orange and ochre, a large cracked surface dominates the image, with deep black fissures radiating from a central break, suggesting fracture or instability. In the upper left stands an engraved-style illustration of Lady Justice, blindfolded and holding a sword in one hand and balanced scales in the other. In the lower right is a small line drawing of a human head in profile with the brain illustrated in intricate detail. The title appears in dark blue text over the orange centre of the image. The overall design evokes themes of justice, critical examination and a model under strain.
Germaine Hypher - Crafting A Path Through Illness@germainehypher.bsky.social · last mo.

This project, by an anonymous ME patient, uses the voices of people with Severe ME for everyone with ME who often has to make themselves worse just trying to access healthcare. nicecollages.portfoliobox.net/the-collages #mecfs #ME/CFS #chronicillness #invisibleillness #art #collage #CraftSky

NICE Collages for ME-informed Healthcare

A creative project raising the voices of people with Severe ME, highlighting that the NHS has not implemented NICE Guidance of 2021 (NG206)

nicecollages.portfoliobox.net

Chris Ponting@cgatist.bsky.social · 2mo ago

Final #DecodeME analysis has been stalled since 22 April when UK Biobank removed access to its compute for all users. Yesterday, they wrote again but without a timetable for re-opening, just saying that this timetable would be available in June. We will complete our analyses asap thereafter. #MEcfs

sarah boothby@swastrosarah.bsky.social · 2mo ago

Imho, having been part of this process since it was announced in 2022, it is far worse than a failed government initiative, though of course that is bad. Things are worse now than they were before it began.

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 2mo ago

Today @thesicktimes.org: Nearly one year after the U.K. published its final delivery plan for myalgic encephalomyelitis, it's failed to actually improve conditions for people with ME, argues @nickbenton.bsky.social. thesicktimes.org/2026/06/19/t...

Plague Poems@plaguepoems.bsky.social · 2mo ago

New research finds “half or more of the gap in life outcomes between older and younger siblings can be attributed to pathogens inadvertently brought home by older siblings,” and while we didn’t really need more reasons to clean the air in schools, it’s one more reason.

Sean Mullen, Ph.D.@drseanmullen.bsky.social · 2mo ago

Respirators in social settings work extremely well and allow one to avoid infections for years…as I have. There is NO way I would not take that option. I have a family & there are things I want to do in life. I don’t succumb to peer pressure. Is this high school? People are DYING from Long Covid.

🔬🔭🧭👨‍💻🏞️👾🤖🌡️@dcrinyyc.bsky.social · 2mo ago

I've seen lots of posts from covid cautious folks wondering why some of the biggest reputable names in covid research don't mask. I can't speak for all of them obviously, but I have spoken with someone who has a very good understanding of the risk profile of this disease & is a recognized scientific

Danielle Beckman@daniellebeckman.bsky.social · 2mo ago

The Office for National Statistics estimates that around 110,000 children in England & Scotland are living with Long Covid symptoms lasting 12 weeks or more. Friends, if you live in the UK, please help us by contacting your elected representatives. Letter template below! #LongCovid #LongCovidKids

Long Covid Kids@longcovidkids.bsky.social · 2mo ago

Send our template letter to your elected representative today and ask them to attend the APPG on #LongCovid on the 24th June. Paediatric focus. They will hear directly from a young person with Long Covid, a presentation from LCK and NHS colleagues. www.longcovidkids.org/post/all-par...