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Lydia, 34

@lydiafd.bsky.social

Living with post-Covid ME/CFS, dysautonomia and Functional Neurological Disorder since a 2nd Covid reinfection in May 2022

87 Posts309 Follower1690 Folgt
Lydia, 34@lydiafd.bsky.social · last mo.

Four years, and these are the findings? A repetition of debunked biopsychosocial understanding of post-viral conditions. Also, do we mean POTS, ME/CFS, Sjögren's, MCAS? This is deeply disappointing and dangerous for patients in 2026 EU. @ec.europa.eu @horizoneu.bsky.social @ema.europa.eu

EU Long COVID Project: Final Results after Four Years of Research - The Recovery Channel

The EU Long COVID project has published its final results after four years of research. Read the 7 key findings and watch our panel discussion

recovery-channel.org

Lydia, 34@lydiafd.bsky.social · 4mo ago

One way to tackle the growing problem of Long Covid is to implement #cleanairstrategies in public spaces! @hselive.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social @educatetogether.bsky.social @cleanairie.bsky.social @lcaireland.bsky.social @ecdc.europa.eu @meactnet.bsky.social

Long Covid to cost OECD economies up to €115bn a year

New research predicts impact of lower productivity and workers quitting because of long-term illness after Covid-19

irishtimes.com

Lydia, 34@lydiafd.bsky.social · 4mo ago

Please consider donating to our good friend Nevra www.gofundme.com/f/save-nevra

Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth

Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety

gofundme.com

Liz Nevra A.@nlizaki.bsky.social · 5mo ago

🚨 EMERGENCY SUPPORT FOR NEVRA 🚨 Nevra (30) in Pakistan has very severe ME/CFS. She’s a DV survivor at risk of being forced back to her abusers—cutting off phone/internet and putting her life in danger. Please share + donate 🙏 PayPal: paypal.me/SaveLizNevra GoFundMe: gofundme.com/f/save-nevra

Image IDs: [Image IDs: all images have a black background with white and occasionally red writing] [Image 1: has a black and white image of Nevra, a Pakistani woman with long black hair laying in bed with a drip in her arm and sunglasses on. Text reads: EMERGENCY SUPPORT FOR NEVRA: DV SURVIVOR VERY SEVERE ME CFS & CONTINUING TO DECLINE.]
Liz Nevra A.@nlizaki.bsky.social · 6mo ago

Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen her very severe ME/CFS significantly. She is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI.

Lydia, 34@lydiafd.bsky.social · 6mo ago

Nevra requires further fundraising! Please consider donating and reflect upon the fact that this is the reality for many living with ME/CFS! @meactnet.bsky.social @remissionbiome.bsky.social @mecfs.at @longcovidsos.bsky.social @longcovidadvoc.com @longcovidjustice.org @lcaireland.bsky.social

Liz Nevra A.@nlizaki.bsky.social · 6mo ago

🚨‼️ We are beyond an emergency situation regarding Nevra's well being‼️🚨 Nevra currently has a UTI with fever which is causing her other conditions to flare dangerously. Please donate and share! PayPal: paypal.me/SaveLizNevra GoFundMe: gofundme.com/f/save-nevra #pwME #MECFS #SaveLizNevra

Screenshot of an Instagram story from @ quella_the_dizzy_octopus that reads "We are beyond an emergency situation regarding Nevra's well being. Nevra is extremely low on funds and may be forced to return to a DV setting that WILL worsen here very severe ME/CFS significantly. This is extremely dangerous to her wellbeing and something that is causing her significant distress. On top of this issue, she is suffering significantly due to running out of antibiotics and estrogen cream to prevent UTI. She currently has a UTI with fever. And it is causing her other conditions to flare dangerously. Please donate and share!"
Lydia, 34@lydiafd.bsky.social · 7mo ago

With more people falling ill with post covid complications, why are Long Covid being shut down? @nytimes.com @democracynow.org @longcovidjustice.org @meactnet.bsky.social @newyorker.com @washingtonpost.com @bostonglobe.com

MaskTogetherAmerica@togetherwemask.bsky.social · 7mo ago

The closing of ~80% of #LongCOVID clinics—which provided services that PCPs couldn’t—due to funding cuts, provider burnout and lack of approved treatments, is leaving ‘millions’ of LC patients to suffer without care. @scienceline.org 🧵 scienceline.org/2026/01/long...

Sharing an article from ScienceLine: “Long COVID clinics are quietly closing, leaving Millions (which we added in red and we crossed out “thousands” that’s part of the original headline) of patients without specialized care” | By Emma Smith    Subhead: Patients, providers and advocates say they are worried about the future of treatment   Quote: “Providers in Texas and New York who treat Long COVlD said that the closures may stem from funding cuts, provider burnout and the lack of approved treatments.”   Visual: A doctor holding a stethoscope  
Lydia, 34@lydiafd.bsky.social · 7mo ago

Great to see this information in mainstream media! Clean air strategies protect patients! @hselive.bsky.social @roinnslainte.bsky.social @fphuk.bsky.social @maritahennessy.bsky.social @president.ie @independent.ie @irishtimes.com @irishexaminer.bsky.social @news.rte.ie @francesryan.bsky.social

Face masks ‘inadequate’ and should be swapped for respirators, WHO is advised

Experts are urging guideline changes on what health professionals should wear to protect against flu-like illnesses including Covid

theguardian.com

Lydia, 34@lydiafd.bsky.social · 8mo ago

@togetherwemask.bsky.social very kindly shared my story regarding Long Covid. In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours! #cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS

MaskTogetherAmerica@togetherwemask.bsky.social · 8mo ago

“Due to the reinfection in 2024, I’m no longer able to sit out in the garden - a pleasure that took me two and a half years to build to, and only one reinfection took away from me again." Lydia Fischer Dooley, disabled by #LongCOVID triggered by a 2nd COVID in 2022. www.instagram.com/p/DSP9ch5ES8...

Lydia Fischer Dooley took a masked selfie wearing a Black KN95 to support #MaskTogetherAmerica’s educational campaign about Long COVID. Interviewed by Julie Lam
Long Covid Advocacy@longcovidadvoc.com · 8mo ago

😷 Masks aren't traumatising. Abandonment is. Airborne denial is. Hospital-acquired infection is. Long Covid and severe ME is. The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14

Lydia, 34@lydiafd.bsky.social · 8mo ago

Long Covid has now surpassed asthma as the most common childhood condition contributing to memory issues, concentration and anxiety. We need to reflect this in studies, as we are only getting one part of the picture. @cleanairie.bsky.social @roinnslainte.bsky.social @etbireland.bsky.social

Economic and Social Research Institute (ESRI)@esri.ie · last yr.

"School attendance, engagement, and student wellbeing are all worse in the wake of the pandemic, according to educators working with young people at risk of leaving school early." 💡 Read more key findings from the report: www.esri.ie/news/new-esr... 📰 Read @irishexaminer.bsky.social coverage:

Lydia, 34@lydiafd.bsky.social · 8mo ago

Finally, politicians are recognising airborne viruses exist, and clean air strategies are a dire need - especially in our schools and in the context of the current flu surge! @earlychildhoodireland.ie @roinnslainte.bsky.social @etbireland.bsky.social @cleanairie.bsky.social @rte.ie @esri.ie

Minister Admits Airborne COVID Risk In Schools

Minister’s letter implicitly recognises airborne COVID-19 risks in schools but offers no central funding for clean air measures.

shh-uk.org

Lydia, 34@lydiafd.bsky.social · 9mo ago

I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you! @newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social

Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone

The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...

independent.ie

Lydia, 34@lydiafd.bsky.social · 10mo ago

Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social @meactnet.bsky.social @longcovidsos.bsky.social

Frontiers | Prevalence of post COVID-19 condition and associations with risk factors among U.S. adults: 2023 Behavioral Risk Factor Surveillance System

IntroductionDuring the COVID-19 pandemic, between 12 and 20% of US adults were identified as having post-COVID-19 condition, commonly referred to as ‘Long CO...

frontiersin.org

Lydia, 34@lydiafd.bsky.social · 11mo ago

As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund. Nevra is a polyglot, inquisitive, and creative young woman. Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️

Liz Nevra A.@nlizaki.bsky.social · 11mo ago

gofundme.com/f/save-nevra The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME #MutualAid #DisabilityJustice #SevereME #VerySevereME #DomesticViolence

Lydia, 34@lydiafd.bsky.social · last yr.

I am a living example of this! Completely fine with my first infection, recovered and back to normal. Second infection led to long term illness and disability. The literature repeatedly backs this trend up: reinfections are a detriment to our health!

NSJosi@nsjosi.bsky.social · last yr.

“Although your immune system can take on [a COVID] infection, you want to avoid testing it as much as possible because your body is sustaining damage with each infection that it survives.”

Lydia, 34@lydiafd.bsky.social · last yr.

It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that? @intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social

Clean Air Advocacy Ireland @cleanairie.bsky.social · last yr.

Two weeks ago, when reacting to the 2022/23 school attendance report, the Minister for Education was dismissive of illness as being a factor. Today, a separate report shows that child admissions to adult ICU *more than doubled* in 2023. Links in next post.

Headline from the Irish Independent reads, "Hugely alarming levels of school absences prompts Minister Helen McEntee to announce measures to tackle problem."
Lydia, 34@lydiafd.bsky.social · last yr.

Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?