~Q & A Capstone Episode~ Interview with Dr. Peter Rowe ~ premieres today ~ Monday, 6/29/2026 @1pmET tinyurl.com/RoweMECFSped... 6th and final episode of Evidence-Based Pediatric ME/CFS, an updated video guide for #pediatric #MECFS #RoweMECFSWebinars
Bridget
@brid41.bsky.social
Chair, #MEAction Maryland @meactmaryland.bsky.social https://linktr.ee/meactmd adolescent onset #MECFS, #LongCovid, #POTS, #dysautonomia, #MCAS, CPT2, #migraines, #PostHerpeticNeuralgia, #TrigeminalNeuralgia, recurrent #shingles
Q & A Quote 6/24 “[Pediatric ME/CFS] was a tremendous unmet need. There were patients who were often not getting to school; the older ones couldn’t get to college; the young adults were unable to work. I thought this would be a completely worthwhile way to spend my time in medicine” -Dr Peter Rowe
All Resources Now for Episode 2 - Pediatric Orthostatic ME/CFS: a Focus on Management ~Slides~ tinyurl.com/RoweSlidesME... Final webinar, a Q & A capsule interview with Dr. Peter Rowe drops: Monday, June 29th #MyalgicEncephalomyelitis #NEISVoid
~Coming Monday 6/29/2026~ "If you understand ME/CFS, you'll have an incredible knowledge base for all of medicine" --Dr. Peter Rowe Q & A Capstone Episode Evidence-Based Pediatric ME/CFS Webinar Series Sharing a quote a day ahead of the episode premiere!
Slides - Transcripts - Sources Now available!! Joint Hypermobility / EDS in Pediatric ME/CFS with Dr. Peter Rowe (episode 3) * * * * 📢Coming Soon 📢 Capstone Q & A with Dr Rowe ~ an hourlong interview with pioneer of pediatric ME/CFS
Recent Advances in Biomedical M.E. Research, and Why This Field Needs More www.linkedin.com/events/recen... Thurs, May 14th 1:30 EDT (assuming I did the math correctly)
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Closing out Maryland's second day on the Hill, we were at the office of @alsobrooks.senate.gov meeting with staff And talking up the NIH ME/CFS Research Roadmap
Some #MillionsMissing photos. Overdid it and have one more day to go. So will be sustainably adding alt text Thurs or Friday - with sincere apologies as to capacity to not get it all up at once.
MEAction had an excellent meeting with Senator Graham’s office yesterday about funding the ME/CFS Research Roadmap. Thank you to MacKenzie Hand (in video) & all advocates who joined us in DC - we met with 8 Congressional Offices in partnership with #NotJustFatigue! #MillionsMissing
This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org #pwME #LongCovid #MECFS
@repwalkinshaw.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your VA constituents are counting on you. #MEAwareness #MECFS #VA11
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour
Tell Congress to Fund ME/CFS Research in FY27
9 million Americans live with ME/CFS — a serious, disabling disease with no FDA-approved treatments. I just contacted my representatives to urge them to increase CDC funding, keep ME/CFS as an eligibl...
solvecfs.quorum.us
ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: https://ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network
@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@slotkin.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS
@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS
@duckworth.senate.gov 9M Americans, myself included, have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding levels have not increased since 1996, despite COVID causing a rapid rise in cases. #MECFS #AdvocacyWeek2026 #MEAwareness
@duckworth.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
@duckworth.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@durbin.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
@durbin.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@quigley.house.gov 9M Americans including myself have ME/CFS. There are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing the number of ME/CFS diagnoses #MECFS #AdvocacyWeek2026 #MEAwareness
@quigley.house.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness
@quigley.house.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness
@beyer.house.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA-08 is counting on you! #MEAwareness #MECFS
@markwarner.bsky.social As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS
@kaine.senate.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS
Congressional action could make all the difference for people with ME/CFS. Reach out to your Members of Congress today → solvecfs.quorum.us/campaign/157... #pwME #MEAwareness
@durbin.senate.gov 9M Americans including myself have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing ME/CFS diagnoses! #MECFS #AdvocacyWeek2026 #MEAwareness