Laid in the pre-op anaesthetic suite with a team of people connecting various tubes and wires to me, all of who looked very professional and experienced - realising I was the only one in the room who had never done this before; then thinking "will I still be me when (if) I wake up?" (brain surgery)
‘At least you’re still here …’ Were the words uttered as I stretched out while talking to someone after a carol service who asked me why I suffer from pain. People don’t say insensitive things like that, doesn’t help. #cancer #lateeffects
AND... I had Stage 4a colon cancer at diagnosis. I've been NED for 4.8 years...and NO DOCTOR will say that it won't recur...so I'd like, at least, annual scans for many years to come. Let's catch the recurrences EARLY. It's called being PROACTIVE...not fearful.
Another 5🌟 review for Stories of Cancer and Hope. Our book is helping people directly and indirectly affected by cancer. All royalties go to Maggies cancer centres. #cansky storiesofcancerandhope.co.uk#nav_about
Toxic thoughts and stress do NOT cause cancer, despite what functional+naturopathic doctors might say. I explain this in more detail in my next book - ‘The Cancer Roadmap’ Being happy and smiling more CANNOT cure you Pre-order The Cancer Roadmap HERE lnkd.in/eshzcwvU
I travelled from London to Ipswich today to watch my brilliantly talented brother Liam Bull in #RedRoseChainTheatre #Pinnochio What a great panto, the cast were fantastic & all the kids (& adults like me!) absolutely loved it! ❤️#DelaneyGreyManagement
I’m always the most amazed by parents who don’t bat an eye consenting their children for transfusion, chemotherapy, stem cell transplant and then decline vaccinations.
Do you know what #Lymphoedema is, Dr Katherine Wang from our lab at UCL Mechanical Eng has explained this for bbcfuture www.bbc.com/future/artic... @uclnews.bsky.social @raeng.org.uk
Lymphoedema: The 'hidden' cancer side-effect no one talks about
Patients who beat cancer can be left with an incurable, chronic and painful condition. Sufferers and doctors alike are fighting to bring this hidden condition to light.
bbc.com
Thank you, Dr Wang. This is a great piece. #Lymphoedema #Lymphedema #bcsm #bccww #lwabc #BreastCancer #oncsky #cansky
Moazen Lab@moazenlab.bsky.social · 2y agoDo you know what #Lymphoedema is, Dr Katherine Wang from our lab at UCL Mechanical Eng has explained this for bbcfuture www.bbc.com/future/artic... @uclnews.bsky.social @raeng.org.uk
My girl is five years down the road and new effects popping up. The struggle is real.
Rotten Ovaries@ovariesrotten.bsky.social · 2y agoI can partially get why muggles don't understand that carcinomies have to deal with late effects from treatment and fear of recurrence. I just cannot understand how there are still medical professionals who just don't understand this. #Cancer #LateEffects #CanSky #ThanksCancer
Message from Mand 👇 She lifted it from another social account; not sure of its origin but we love the message. #IamStillHere #MetastaticCancer #Cansky Mand is a #CancerDinosaur
Did you miss #SABCS24 last week? No worries! Here's my @fredhutch.bsky.social SABCS24 wrap story w/insights into #cancer treatments & #cannabis; #ctDNA; #obesity & #epigenetics, #FES-PET & much more. #cansky #oncocsky #medsky #bcsm @thankscancer.bsky.social www.fredhutch.org/en/news/cent...
What’s new in breast cancer research? SABCS24 looks at ctDNA, AI and ‘right-sizing’ treatment
More than 11,000 researchers, clinicians, patient advocates and drugmakers gathered last week at the San Antonio Breast Cancer Symposium to share the latest treatments, tricks and tools to take down b...
fredhutch.org
CHRISTMAS FUN - we're here for it! Enjoy our mySociety-themed playlist, games and puzzles, and a list of recommendations from our usually-private staff chat, at
Happy Christmas from mySociety
We want to thank you for following along with everything we’ve done at mySociety this year, so we’ve put together some fun activities for you to enjoy.
buff.ly
They focus on the "thing" they're treating and ignore the human being. Acknowledging the person and having some sort of survivorship system is badly needed.
I can partially get why muggles don't understand that carcinomies have to deal with late effects from treatment and fear of recurrence. I just cannot understand how there are still medical professionals who just don't understand this. #Cancer #LateEffects #CanSky #ThanksCancer
Another great point! Yes, it's important 4 researchers & clinicians to know that after #cancer treatment, very few patients are "asymptomatic." We are rife w/symptoms & side effects from our treatments, surgeries, etc. It's v. hard 2 sort out what's NORMAL pain & what's potential RECURRENCE. #cansky
I can hardly think of a better example of the moral decay in modern health care than a Goldman analyst noting that biotech cures for diseases like hepatitis are cool and all, until their success diminishes the business opportunity for pharmaceutical manufacturers. www.cnbc.com/2018/04/11/g...
Goldman Sachs asks in biotech research report: 'Is curing patients a sustainable business model?'
Goldman Sachs warns sales from the most successful disease treatments are difficult to maintain.
cnbc.com
“certain procedures are more likely to result in #chronicpain. They include breast #surgery with mastectomy, thoracic & spinal surgery, amputation ' knee replacement surgery": https://buff.ly/3BO5yct #MedSky #PainAwareness #surgeons
Postoperative Chronic Pain: Experts Urge Better Recognition
Postoperative chronic pain is expected to become increasingly prevalent but remains poorly understood.
buff.ly
What happens when you support a group experiencing profound health inequality to build a voice and lead service change? We explore the groundbreaking work of Brighton and Hove Common Ambition ⬇️ https://buff.ly/3VPnsmu
Working with people experiencing homelessness to improve health services
What happens when you support a group experiencing profound health inequality to build a voice and lead service change? We explore the groundbreaking work of Brighton and Hove Common Ambition.
buff.ly
Excellent points. #BreastCancer #CanSky
Stacey Tinianov, MPH@coffeemommy.bsky.social · 2y agoWeb-based interventions aside, the basic ACKNOWLEDGEMENT that #FoCR is real, valid, and should be addressed is HUGE step forward in my mind. Also, any intervention (incl. digital) should be designed WITH (not just for) individuals. Helps w/ retention & effectiveness #SuppOnc #SurvOnc cc: #SABCS24
I'd really like 2 recast this whole fear of recurrence thing (#FoCR). Maybe call it LEGITIMATE DESIRE 4 DISEASE MONITORING instead? Pts aren't nec fearful, jst trying 2 figure out if they have undetected disease. If u dangle a 2K lb piano over someone's head, they're legit concernd. #SABCS24 #cansky
If you’re entitled to a free flu jab, please get it now.
The Guardian@theguardian.com · 2y agoNumber of people in hospital in England with flu jumps 41% in a week
*Shocked face* plus the effort to bring a judicial review shouldn’t be overlooked.
Chaminda Jayanetti@cjayanetti.bsky.social · 2y agoNEW: Strong evidence has emerged that the DWP hid the true reasons for its planned cuts to disability benefits Documents disclosed in a legal challenge also suggest up to 100,000 disabled people could be pushed into poverty by the changes By me, for @bigissue.com www.bigissue.com/news/social-...
Remember, your value doesn't decrease just because someone else fails to acknowledge it.
It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL
Root canals don't cause cancer and amalgam fillings are safe. You don't need to find a holistic dentist Find out why in my latest video... Debunking Dental Myths: Cancer Claims exposed youtu.be/E7hic2liwnY?... via @YouTube
Debunking Dental Myths: Cancer Claims exposed
YouTube video by Dr Liz O'Riordan
youtu.be