Hey everyone! I was invited to write about Myalgic Encephalomyelitis (ME) and our inclusion into much needed clinical trials. Please read, like and share to help us reach more people? 💙

New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to www.physiosforme.com/o2survey

We would love your support in helping us to increase our reach. Please like, share, and subscribe to the videos on YouTube and on here. 💙

ICanCME Canadian Research Network@icancmeresearch.bsky.social · 10mo ago

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...

Hey there. Have you watched yet? What are you waiting for? It’s great content, driven by #PwME! #ICanCME2025

ICanCME Canadian Research Network@icancmeresearch.bsky.social · 10mo ago

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...

Our SMART grants are open for researchers interested in studying Myalgic Encephalomyelitis! Please check out the criteria and deadlines in the application. icancme.ca/research/sma...

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @uoftmedicine.bsky.social

Rehabilitation Science Research Network for COVID@uoftcovidrehab.bsky.social · 10mo ago

Remember to submit an abstract for the poster presentations for the 2026 International Forum on COVID Rehabilitation Research. Submissions are due TOMORROW! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf @kellyobrien25.bsky.social @drjillcameron.bsky.social

Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...

ICanCME Research Network

youtube.com

@physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @sunsopeningband.bsky.social @uoftmedicine.bsky.social @breathewellphysio.bsky.social

Rehabilitation Science Research Network for COVID@uoftcovidrehab.bsky.social · 10mo ago

Don’t miss your chance to submit an abstract for the poster presentations at the 2026 International Forum on COVID Rehabilitation Research. Submissions are due Friday January 30, 2026! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf

@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @uoftmedicine.bsky.social @apresj20.bsky.social @breathewellphysio.bsky.social

Rehabilitation Science Research Network for COVID@uoftcovidrehab.bsky.social · 10mo ago

Abstract submissions for poster presentations at the 2026 International Forum on COVID Rehabilitation Research is NOW OPEN! The deadline to submit is Friday January 30! Share your #COVIDRehab research! Review the guidelines for submission and submit here tinyurl.com/2s3ubuuf

Thank you for the great work!

Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup. simonspichak.beehiiv.com/p/day-3-of-t...

Day 3 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis

A brief summary of the presentations.

simonspichak.beehiiv.com

Simon Spichak@spichaksimon.bsky.social · last yr.

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

Simon Spichak@spichaksimon.bsky.social · last yr.

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

#ICanCME2025

Nandini@nandini0306.bsky.social · last yr.

Day 2 reflections: "Who is driving and who is the passenger"- Symptoms don't exist in isolation; they collide, overlap, and amplify each other. For those living with ME/CFS, LC, managing life is about navigating the unpredictable system when the "driver" role constantly shifts

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

@icancmeresearch.bsky.social #ICANCME2025 Wow what an agenda for Day # 3

It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience. Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social 👉#Blog bit.ly/3LwLXCp @icancmeresearch.bsky.social

Are you registered? If so, please join us for our last day together! 💙

Sabrina Poirier@sabrinapoirier.bsky.social · last yr.

Today is the last day of the #ICanCME2025 Conference. We will be talking research design today! Common mistakes, gaps in knowledge, tools we need to create, opportunities for increased diversity and inclusion, hoe to increase accessibility in research, why patient partnership matters, and more!

We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME. Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs. #ICanCME2025 #Paediatric #Children

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. 🩵💙🩵

I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously. #ICanCME

Simon Spichak@spichaksimon.bsky.social · last yr.

And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...

We are excited and ready for day 2 of @icancmeresearch.bsky.social! #MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon! #ICanCME2025 #pwME #MECFS

Excited for day two of the excellent @icancmeresearch.bsky.social conference! Starting now! #ICanCME2025

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry. Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

ME/CFS Science@mecfsscience.org · last yr.

1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November. The main presentations take place at: 1 pm - 5 pm Eastern Time 6 pm - 10 pm London Time 7 pm - 11 pm Brussels Time #ICanCME2025

And coverage for Day 1 of the #ICanCMEConference by the @icancmeresearch.bsky.social. Features a link to my live tweets. simonspichak.beehiiv.com/p/icancme-da...

Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis

A brief summary of the presentations.

simonspichak.beehiiv.com

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME). Huge shout-out for the respect for lived experience! Wonderful start! #ICanCME2025 #NothingAboutUsWithoutUs @icancmeresearch.bsky.social, applause to planning team!

Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.

Covering the @icancmeresearch.bsky.social live over on the other app. Will be posting a brief summary of the day's talks as well. x.com/SpichakSimon...

Simon Spichak on X: "A little late to the party but following the @ICanCMEResearch conference. First keynote coming on" / X

A little late to the party but following the @ICanCMEResearch conference. First keynote coming on

x.com

1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November. The main presentations take place at: 1 pm - 5 pm Eastern Time 6 pm - 10 pm London Time 7 pm - 11 pm Brussels Time #ICanCME2025

#ICanCME2025 is happening this week! This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far. And please be patient with us this week if we run into any issues. 🤞💙

Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...

2025 ME Conference - ICanCME

icancme.ca