Clinicians lacks reliable information on caring for the severe #MECFS patient, leading to misguided and too often devastatingly harmful care. While directed to home care, this guidance should help to educate those working in healthcare facilities to not only do no harm but actually help.

Dr. Sabine Hermisson 🦋@sabinehermisson.bsky.social · last wk.

We're pleased to announce the English version of our transdisciplinary care guide for people with severe #MECFS. We hope it will help family caregivers, healthcare professionals, and policymakers improve care for one of the world's most underserved patient populations.

BREAKING: in June 2026, *every single one* of the 1,062 refugees admitted in the U.S. were white South Africans. In FY 2026, the U.S. has admitted a total of 7,727 white South Africans, three Afghans (back in November), and nobody else. For reference, the U.S. admitted 100,060 refugees in 2024.

Alex Ip 葉清霖@alexip718.com · 2mo ago

BREAKING: in May 2026, *every single one* of the 599 refugees admitted in the U.S. were white South Africans. In FY 2026, the U.S. has admitted a total of 6,665 white South Africans, three Afghans (back in November 2025), and nobody else. For reference, the U.S. admitted 100,060 refugees in 2024.

Folks can register to volunteer with @standupforscience.net! We are organizing in specific districts that are flippable, phone banking, wheatpasting, GOTV-ing, and organizing Congressional meetings! Standupforscience.net/take-action

Take Action NOW — STAND UP FOR SCIENCE

"Get in dorks!" is our shared battle cry for joining the fight by signing our petitions, working on the ground to turn back Trump and donating to support our work of saving American science and health...

standupforscience.net

"Being Informed: Understanding Treatment Pathways" emerge.org.au/starting-a-n... "Emerge Australia suggests before starting any treatment, including those claiming to cure or provide a pathway to recovery for ME/CFS or long COVID, consider asking the following ten questions..." #MEcfs #LongCovid

Trump used the Armed Forces Full Honor Cordon — soldiers who escort fallen heroes and heads of state — to usher UFC fighters past Abraham Lincoln’s statue like they’re celebrities on a red carpet. I am LIVID.

Such a spoiled child - putting up a tarp so we can't see the letters being taken down? MSNOW Livestream 1:45 am

The prisoners at for profit Delaney Hall Torture Center are living in horrendous, subhuman conditions. Protesters are being beaten, pepper sprayed and more. Help get out the word #CLOSEDELANEYHALLFREETHEMALL #CLOSEDELANEYHALLTORTURECENTER #CLOSETHECAMPS #SHUTDOWNDELANEY #ICECAMPSKILL"

"Whatever our views of the Middle East conflict, we should be able to unite in condemning rape." Palestinians have reported "pattern of widespread Israeli sexual violence against men, women and even children — by soldiers, settlers, interrogators" and prison guards. www.nytimes.com/2026/05/11/o...

Opinion | The Silence That Meets the Rape of Palestinians

nytimes.com

The front page of today’s New York Times.

For those who want to go to a No Kings protest tomorrow but can't make it...

Stand Up for Science!@standupforscience.net · 4mo ago

The Official #NoKings 3 #Accessible & #Virtual Rally, March 28, will include ASL interpretation, live captions, visual descriptions, & Spanish audio interpretation. Because resistance must be accessible, inclusive, & open to all & our rally will be for everyone, everywhere. Details: tr.ee/nk3ar

If you don’t care about this now, you will when you’re dying from a disease that would have been treatable

Joshua Weitz@joshuasweitz.bsky.social · 4mo ago

A 20% budget cut atop multiyear funding-induced cuts to research and direct terminations of projects underway will further degrade American leadership in science. This is early news & not even a proposal or appropriations - precisely the reason to speak out now. rollcall.com/2026/03/27/s...

theonion.com/it-is-journa...

It Is Journalism’s Sacred Duty To Endanger The Lives Of As Many Trans People As Possible

The task of reporting is not a simple one. Each and every day, reporters and editors at publications like The Onion make difficult decisions about which issues should receive attention, knowing that o...

theonion.com

No ICE. No wars. No Kings. Find your local protest and join us on Saturday. 👇

No Kings

As the president escalates his authoritarian power grab, the NO KINGS non-violent movement continues to rise stronger. We are united once again to remind the world: America has No Kings and the power ...

nokings.org

Title: "The United States is Driving a Public Heath Emergency of International Concern" www.bmj.com/content/392/...

NIH went from 756 funding announcements (NOFO) in 2024 to 120 in 2025 to just 14 so far this year. Reports this collapse due to number of policy changes including requiring every NOFO be approved by political appointees and now also by the Office of Management and Budget. The full impact is vast

Megan Ranney MD MPH@meganranney.bsky.social · 5mo ago

On top of the slowdown in grantmaking I wrote about last week - this is another deeply worrisome trend for scientists, physicians, patients, families, and basically anyone who wants new treatments and new tools to promote health. 🆘🧪🥼 open.substack.com/pub/elizabet...

A total collapse. The National Institutes of Health went from 756 funding announcements published to 14 in two years. One example of the effects: emerging threats will become harder to address quickly. Response to future health emergencies (like Covid) will be slower and less coordinated.

Megan Ranney MD MPH@meganranney.bsky.social · 5mo ago

On top of the slowdown in grantmaking I wrote about last week - this is another deeply worrisome trend for scientists, physicians, patients, families, and basically anyone who wants new treatments and new tools to promote health. 🆘🧪🥼 open.substack.com/pub/elizabet...

LongCovid Physio, together with LongCovid Kids, LongCovid SOS and LongCovid Support were core participants in Module 3 of the Covid Inquiry The report will be released on Thursday 19th March Please see our press release ahead of this day Thanks to LCS for posting 🙏

Long Covid Support@longcovidsupport.bsky.social · 5mo ago

Today, alongside Long Covid Kids, Long Covid SOS and Long Covid Physio, we release our demands ahead of the release of the UK Covid-19 Inquiry report on Module 3 (due on Thursday 19 March). Read the press release on our website: www.longcovid.org/impact/news/... #CovidInquiry #LongCovid

Hassett: "If the war were to be extended, it wouldn't really disrupt the US economy very much at all. It would hurt consumers, and we'd have to think about what we'd have to do about that, but that's really the last of our concerns right now."

Another alarm bell in this five alarm fire. Donald Trump is still trying to relitigate the 2020 election six years later. He wants to scare election officials and election workers ahead of the midterms. And he’s using the FBI to do it.

Trump administration subpoenaing Arizona 2020 voting records, as Trump pushes to consolidate election power

The administration has also obtained records from Fulton County, Georgia, as Trump continues to focus on the 2020 election he lost.

politico.com

www.wsj.com/us-news/immi...

Americans Are Now a Target in Trump’s Immigration Crackdown

A WSJ investigation tracked the U.S. citizens caught in the crosshairs of an aggressive federal campaign to detain and demonize dissenters.

wsj.com

WH official: “We want to seize all the oil from Iran. The long-term benefit is getting massive oil reserves out of the hands of terrorists.”

It is so damning of US news media that so many outlets refuse to just straight up say that Senator Tim Sheehy assaulted an activist. He did not "help" Capitol police. They did not need his help. He wanted to assault the guy and did. He should resign.

"The answer is not to dehumanize us." -- Judge Salas

60 Minutes@60minutes.bsky.social · 5mo ago

“I think that the attacks against the judiciary are only getting worse. What I am seeing now is far different than what I have seen in the past,” says Judge Esther Salas, a federal district court judge in New Jersey. cbsn.ws/4sjeqfc

Richmond County’s own Nicole Malliotakis giving off the same energy as one of the white people protesting southern school integration in photos from the 50s

The Washington Post@washingtonpost.com · 5mo ago

Rep. Al Green (D-Texas), who was carrying a sign saying “Black people aren't apes,” was escorted off the floor. This is the second consecutive year that Green has been removed removed from the president's address to Congress for protesting. https://wapo.st/3ZQywBr

Trump is pulling out all the stops for fossil fuel - revoking EPA's determination that greenhouse gases threaten public health & welfare. And here, ordering the Pentagon to buy coal fired electricity. Meanwhile, the Chinese are kicking are butts on clean energy. www.nytimes.com/2026/02/11/c...

Trump Orders the Pentagon to Buy More Coal-Fired Electricity

nytimes.com

This!

Matt Lazell-Fairman@mfairma.bsky.social · 6mo ago

Statements like below in this pre-print lead straight back to graded exercise bc few providers understand their pts level of function or trust when pts say they can’t exert more than they are. Which leads providers to feel their pts are difficult or non-compliant, further eroding care.

(US) Protect Medicaid access for people with ME/CFS and Long COVID www.meaction.net/freakin-frail Screenshot from February 2026 AMMES newsletter #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @meactnet.bsky.social

The Wayback is now so load-bearing we should be protecting it with our actual lives

Arieh Kovler@ariehkovler.com · 6mo ago

They closed the CIA World Factbook and deleted it entirely.

2) How the Pentagon is Quietly Building Trump’s Concentration Camps SCOOP: A repurposed Navy contract to funnel tens of billions to ICE for a nationwide "ghost network” of concentration camps—just got a lot bigger. migrantinsider.com/p/how-the-pe...

How the Pentagon is Quietly Building Trump’s Concentration Camps

SCOOP: A repurposed Navy contract is funneling tens of billions into a "ghost network" of detention camps that can materialize anywhere in America overnight.

migrantinsider.com