@sarahgailey.bsky.social I’ve really been enjoying the Love Letters care package, one a month this year, thank you for putting them together for us! I’ve saved #11 for today and I’m sorry - what are these lightweight brightly colored balls please? :-)
Kat Jones
@ciaracat.bsky.social
Fan of science fiction, musicals, and cats. She/her. Data privacy professional.
Yes, this has been a historic wave election. But I know that they and many, many other people in Texas have been building toward this, brick by brick, voter by voter, putting their own lives on the line to bring us here.
Yesterday, voters made it very clear that they want a new generation of Democratic fighters. We need a leader in the Senate who is capable of leading that fight. It’s time for Senate Democrats to choose new leadership.
GERRYMANDER YOUR WAY STRAIGHT TO HELL YOU MOTHERFUCKERS
Sir Patrick Stewart. “Besides acting, what are you most proud of that you’ve done in your life?” youtu.be/TqFaiVNuy1k?...
Patrick Stewart Gives Passionate Response to Question At Comicpalooza 2013
YouTube video by Heather Skye
youtu.be
Chronic illness acronyms: I propose normalizing GOMO (grief over missing out) instead of FOMO (fear of missing out). Keep getting asked if I’m having FOMO but it’s really almost always grief. #MECFS #LongCovid #pasc #pwme #ChronicIllness #IWantToBeLivingLifeNotPacing
This thread, I think, makes a good distinction. The conduct of the Trump administration is no longer surprising or shocking, but it still does, and should, shock the conscience: a phrase that refers not to the unexpectedness, but the brazen cruelty of the actions.
Obviously the feds lie a lot no matter who is president but holy shit if it was at like an 8 before the trump Vance era has dialed it up to an 18 at least. I know u know this but: it is absurd the sheer degree that “assume their statements false until proven otherwise” is just standard operating…
I have seen a couple people suggest in the Anthropic settlement that you should try to get the publisher’s share back from the publisher once it has been sent through one mechanism or another, and I feel it incumbent upon me to remind everyone.
And any democrat who concedes on this point and acts like covid wasn't a horrifying traumatic event worthy of a response every bit as energetic (but hopefully less stupid and disastrous) as the war on terror? They are my god damn enemy.
COVID was killing more people than died on 9/11 DAILY for a bit there, and there is no need to rank tragedy. But we were looking at freezer trucks full of bodies in NYC and mass graves. We have got to stop downplaying the trauma of what we all went through, especially when it's STILL DISABLING US.
This is EXCITING. doi.org/10.64898/202... LoCITT study preprint describing their remote participation study design for #LongCovid #MECFS #pasc #pwme. The study is ongoing, but hard numbers showing their remote design: definitely reaches a more severe population; costs way less per 1/
doi.org
And note, this is our body's reaction to us doing *normal everyday things*. Like riding in a car, then in a wheelchair, talking to a doctor briefly, back home - currently means PEM for 2-4 days for me. Taking a work video meeting for longer than my current energy envelope. Being upright too long.
🧵 ME Research UK: We are deeply appreciative that the community has shared their experiences with us. The accounts detailing the devastation of post-exertional malaise (PEM) in ME/CFS are both moving and profoundly informative. tinyurl.com/PEMimpactME #PEM #MEcfs #CFS #PwME 1/
Kevin passed about an hour ago. The time to find his cats a home IS now, and I'm not one step closer to finding it. Please, friends.
FRIENDS IN THE NYC AREA: Okay, this is a tough one, but please bear with me. My wife's lifelong friend has stage 4 pancreatic cancer and is desperately seeking a home for his two cats when that time comes. The elder, Wally, is something like 13 years old and DELIGHTFULLY dim. The younger, Doris,
"So habe ich meine ME/CFS geheilt." … Wie ich irreführende und schädliche Genesungsgeschichten gesellschafts- und machtkritisch einordne und warum diese keinen Widerspruch zur Forderung, Erfahrungswissen anzuerkennen, darstellen, jetzt auf dem Blog:
Wie geht man mit missionierenden Recoverees um? / Artikel | Waldmeer | ME/CFS
gratis-3958020.webador.de
Ughhh… #MECFS #LongCovid #PASC #enshittification This really cripples FB usage for people with energy limiting illness who have been following advocates for research news
FB changes grumble: I can now only include two links per month (!) to posts. Also links I post in the comments won’t be clickable either. To get clickable links, I would have to pay €169 per month!! #MEcfs #LongCovid 1/
This is a good and accurate mini-thread that also reminds me of an experience I had in my 20s that has stuck with me ever since. I was part of a three-person panel interviewing web programmers for a gig. All three of us were white and very genuinely progressive and anti-Republican. 1/
I think a good way to think about the current moment is understanding white supremacy as a spectrum with passive acceptance as the status quo out to actively arguing for global genocide.
Check out this clip and make sure you search the Atlas of Surveillance to see what surveillance technologies are being used in your community. www.atlasofsurveillance.org
"Flock cameras are just one part of a vast ecosystem," @lastweektonight.com's John Oliver warned his audience last night. "Check out resources like the EFF's Atlas of Surveillance, which catalogs each of the technologies used in your area." www.atlasofsurveillance.org/
Lynne Freeman got a write up in the fucking New Yorker to turn people against Tracy Wolff and it absolutely fucking sucks that all the people who read that salacious piece will never know that Lynne Freeman lied to the court, conducted this litigation in bad faith, and had absolutely zero case.
Always fun when I get notification that @murderbooks.bsky.social has sent me a package, and I have zero memory what I pre-ordered. Thanks, Past Kat, can't wait to see what you sent me!
If you want to help push this over the $250k mark, you can still register for @clairewillett.bsky.social's Book Club for Haters & enjoy her hating hard on JD Vance's new book. bsky.app/profile/clai...
We are closing in on a sweet quarter of a million dollars raised for VoteRiders and the Southern Coalition for Social Justice in this year's @romancingthevote.com auction, and I love everyone in this bar. 💓
Mt. Sinai has released the second edition of their Infection-Associated Chronic Conditions and Illnesses Provider Manual! www.coresinai.org/manual If you or someone you know has an IACCI like #LongCovid #PASC #MECFS #LymeDisease and have trouble getting care, give this to your doctor, or at least /1
Manual — The Cohen Center for Recovery from Complex Chronic Illness
coresinai.org
More people have been arrested over the Reflecting Pool than the Epstein files
More people have been arrested over the Reflecting Pool than the Epstein files
Trump has claimed Reflecting Pool ‘vandals’ could face ‘years in jail.’ By contrast, he’s urged the public to move on from the Epstein files
trib.al
A bit more on the STARLOG relaunch, and my role as editor-in-chief. Originally STARLOG begat FANGORIA back in the 20th century, but then they died. But we kept making our death saves! FANGO was resurrected by a demon (long story) and she finally brought STARLOG back online in her basement lab. (1/3)
Find our podcast at Starlog.com and follow our editors and hosts 💫 @annaleen.bsky.social @jhoffman.bsky.social @da7e.com @mereborders.bsky.social
If you are looking for a way to help the folks in Minneapolis, a member of the National Lawyer's Guild passed along this fundraiser for legal costs for those arrested yesterday: chuffed.org/project/1865... You can also donate directly to the NLG: www.paypal.com/donate?token...
Legal Defense Fund for MN Anti-ICE Organizers
On the morning of June 16th 2026, fifteen anti-ICE organizers were arrested in aggressive raids across the Twin Cities.
chuffed.org
Locally, consider supporting legal defense funds for the Spokane 3. www.nlg.org/spokane-3/ There's also a legal fund for the 15 ppl picked up in Minneapolis this week. chuffed.org/project/1865...
Everybody who believes systemic racism doesn't exist should be made to play a Monopoly game where the 3rd and 4th side properties (i.e., Kentucky Avenue to Boardwalk) have already been distributed to other players before the game starts, and then just play it "by the rules" from that point forward.