meg’s malaise

@megclems.bsky.social

she/her Long COVID/ME + Dysautonomia since 2020

As we recall the trauma caused by COVID in 2020, we should not forget COVID continues to harm. Many still suffer from Long COVID, people who mask are often harassed, and we haven’t scaled clean air infrastructure. If we truly acknowledge past harms, we should be working to create a better future.

It is an awful time arguing with my disability insurance to cover my ongoing leave due to Long COVID, so I’m asking for some help to bridge the gap until I can get paid the 4+ paychecks I am owed (I may have tried to avoid begging until it was urgent)

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Right, what we are not going to do this month: Tell people they don’t count as disabled Tell people who are not ready to self ID they are disabled Claim we can reclaim the r slur Install “you must be this incapacitated to ride” signs Deny the experience of long COVID havers

One infection. That's all it takes. For millions around the world, a single COVID infection led to symptoms that lasted months or years. Long COVID can affect the brain, heart, lungs, immune system, and more. (...)

Graphic from the World Health Network on a light gray background. Text reads: “whn.global. World Health Network. Science for a safer, healthier world. One COVID infection. That’s all it takes to develop Long COVID. Mask up.” The words “COVID” and “Long COVID” are highlighted in bright pink, with a pink mask icon below.

Can anybody signal boost this? Long covid has messed me up this week. Could really use some help, have been unable to do what I normally do to meet needs.

Post nicht verfügbar.

@wired.com this is what your shitty article leads to. Stop denying all of our lived experience. Stop making out like #pwME & #LongCovid aren't experts on our own bodies, our own illness. Lots of us have lived with this for decades. We KNOW what works and what doesn't. Stop publishing eugenics!

Chantzy@chantzy.bsky.social · 2mo ago

Cw: suicide A post in the long-haulers subreddit reports a woman in Vancouver, Canada died recently of suicide after years of struggling with Long COVID and having her symptoms dismissed & psychologized by all around her ❤️‍🩹 www.reddit.com/r/covidlongh...

WIRED has decided to hide comments pointing out that the author of the “It’s your fault for having Long COVID, you have it because you’re thinking and talking about having it instead of ignoring it” article has no qualifications to be talking about disease management.

Playing Chicken With Oblivion@oblivionchicken.bsky.social · 2mo ago

What a brilliant scientific article by a professor of religious studies with a B.A. in philosophy/religion! You can tell how much expertise the author possesses about infectious diseases by his strident anti-wokism and persecution complex. What a joke. Shameful and embarrassing for Wired & JMU.

Having #ME/CFS MEans waking up feeling worse than when you went to sleep, no matter how long you’ve managed to sleep. It also means that your day ends almost at the same time that it’s started. Our bodies not only cannot recharge, but they are trapped inside multiple broken physiological cycles.

People really memory holed-covid, due to a huge far right propaganda effort. That's why all you hear about is lockdowns, and not: - hospitals out of capacity - Skype calls with family members in quarantine as they died - bodies stored in freezer trailors - mass graves in NYC

Phoenix Calida@phoenixcalida.latinsky.app · 4mo ago

The lock down myths are so damn weird. So there were just no open hospitals, factories, grocery stores, etc? Everyone just existed on vibes and tap water?

I sometimes wonder if people think we’re exaggerating when we say ‘there’s no medical help for ME/cfs’ but there’s genuinely almost nothing. One fairly useless course (exercises, condescending ‘advice' and CBT) and maybe some low dose amitriptyline, which did fuck all for me.

chiller@chiller.eurosky.social · 5mo ago

#LongCovid mostly seems to become #mecfs given enough time, plus residual respiratory issues for some folks. And #mecfs is a total fucker to live with. And nobody gives a shit about it. There is no medical help. At all.

The “long covid is going away on its own“ myth was started by an influencer named “Health Nerd” who is an Australian epidemiologist who thinks US kids shouldn’t be vaccinated against COVID-19 (cuz AUS/UK don’t) and that NYC should have ran unethical RCTs on hospital visitation in 2020. Not science.