As we recall the trauma caused by COVID in 2020, we should not forget COVID continues to harm. Many still suffer from Long COVID, people who mask are often harassed, and we haven’t scaled clean air infrastructure. If we truly acknowledge past harms, we should be working to create a better future.
meg’s malaise
@megclems.bsky.social
she/her Long COVID/ME + Dysautonomia since 2020
It is an awful time arguing with my disability insurance to cover my ongoing leave due to Long COVID, so I’m asking for some help to bridge the gap until I can get paid the 4+ paychecks I am owed (I may have tried to avoid begging until it was urgent)
Pay Kaitlin Byrd using PayPal.Me
Go to paypal.me/gothamgirlblue and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
paypal.me
– You see, if so many were indeed housebound, you’d expect to see them everywhere! #longcovid #ableism #satire
Right, what we are not going to do this month: Tell people they don’t count as disabled Tell people who are not ready to self ID they are disabled Claim we can reclaim the r slur Install “you must be this incapacitated to ride” signs Deny the experience of long COVID havers
Damnnnn All Stars, I was already bummed out before I watched the episode. I’m devastated, that should’ve been a double shantay 💔💔💔 #RPDR
One infection. That's all it takes. For millions around the world, a single COVID infection led to symptoms that lasted months or years. Long COVID can affect the brain, heart, lungs, immune system, and more. (...)
Can anybody signal boost this? Long covid has messed me up this week. Could really use some help, have been unable to do what I normally do to meet needs.
@wired.com this is what your shitty article leads to. Stop denying all of our lived experience. Stop making out like #pwME & #LongCovid aren't experts on our own bodies, our own illness. Lots of us have lived with this for decades. We KNOW what works and what doesn't. Stop publishing eugenics!
Cw: suicide A post in the long-haulers subreddit reports a woman in Vancouver, Canada died recently of suicide after years of struggling with Long COVID and having her symptoms dismissed & psychologized by all around her ❤️🩹 www.reddit.com/r/covidlongh...
WIRED has decided to hide comments pointing out that the author of the “It’s your fault for having Long COVID, you have it because you’re thinking and talking about having it instead of ignoring it” article has no qualifications to be talking about disease management.
What a brilliant scientific article by a professor of religious studies with a B.A. in philosophy/religion! You can tell how much expertise the author possesses about infectious diseases by his strident anti-wokism and persecution complex. What a joke. Shameful and embarrassing for Wired & JMU.
Here's a WAY better Long COVID article. After you've read this evidence-based one, the Wired article will seem very silly
Understanding Long COVID: Causes, Symptoms, and What the Science Says
Explore a comprehensive, science-backed guide to Long COVID. Learn about biological causes, common symptoms like brain fog and PEM, diagnosis, and management.
rthm.com
Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened www.sciencedirect.com/science/arti... 1/
Having #ME/CFS MEans waking up feeling worse than when you went to sleep, no matter how long you’ve managed to sleep. It also means that your day ends almost at the same time that it’s started. Our bodies not only cannot recharge, but they are trapped inside multiple broken physiological cycles.
Just observing that parties who consistently say they back vulnerable communities now have an opportunity to actually back that up in practice by loudly committing to policy to support those impacted by Long Covid, if elected - this is what aligning to the values you say you have actually means 💡🤔
New public health briefing on Long Covid www.phcc.org.nz/briefing/lon...
The immune system going rogue and attacking healthy tissue seems to behind some cases of long covid, a discovery that could open doors towards treatments
Attacks from our immune system are a cause of long covid
The immune system going rogue and attacking healthy tissue seems to behind some cases of long covid, a discovery that could open doors towards treatments
newscientist.com
People really memory holed-covid, due to a huge far right propaganda effort. That's why all you hear about is lockdowns, and not: - hospitals out of capacity - Skype calls with family members in quarantine as they died - bodies stored in freezer trailors - mass graves in NYC
The lock down myths are so damn weird. So there were just no open hospitals, factories, grocery stores, etc? Everyone just existed on vibes and tap water?
Some #LongCovid news—Rep. Valerie Foushee has introduced a resolution to recognize Long Covid Awareness Month! 🧵 on how you can support this resolution—and help pave the way for further action!
I introduced a resolution to recognize March as Long COVID Awareness Month to raise awareness about the millions of people living with persisting symptoms after a COVID-19 infection. www.congress.gov/bill/119th-c...
I introduced a resolution to recognize March as Long COVID Awareness Month to raise awareness about the millions of people living with persisting symptoms after a COVID-19 infection. www.congress.gov/bill/119th-c...
congress.gov
Friends with ME/CFS who have had an upper scope & colonoscopy - did it (including the prep) set off PEM for you, and how badly?
Please donate & share to help a #pwME who has been involuntarily committed to psychiatric ward - #MECFS is not psychological! whydonate.com/fundraising/...
Fundraiser by Viktoriia Herasymenko | Help unjustly hospitalised in psych ward ME/CFS patient
Viktoriia Herasymenko Needs Your Help | This fundraiser is dedicated to Mateusz Kaczmarek, a severely ill ME/CFS patient and ME/CFS researcher (author of https://journals.plos.org/plosone/article?i...
whydonate.com
I sometimes wonder if people think we’re exaggerating when we say ‘there’s no medical help for ME/cfs’ but there’s genuinely almost nothing. One fairly useless course (exercises, condescending ‘advice' and CBT) and maybe some low dose amitriptyline, which did fuck all for me.
#LongCovid mostly seems to become #mecfs given enough time, plus residual respiratory issues for some folks. And #mecfs is a total fucker to live with. And nobody gives a shit about it. There is no medical help. At all.
Desperately needed this little sliver of hope today
Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms www.medrxiv.org/content/10.6... 1/
Ghana's President John Dramani Mahama, speaking in New York on Tuesday, criticised the U.S. administration for what he described as normalising the erasure of Black history, warning such policies could have ripple effects elsewhere. www.reuters.com/world/africa...
Ghana's president, in New York, says US 'normalising' erasure of Black history
Ghana's President John Dramani Mahama, speaking in New York on Tuesday, criticised the U.S. administration for what he described as normalising the erasure of Black history, warning such policies co...
reuters.com
The irony of me being in a PEM flare from the mental exertion of trying to find answers about PEM… 😞
ME/CFS Advocacy Week 2026 starts today and it's not too late to join! Solve M.E. & #MEAction Network are building the case to make ME/CFS part of standardized medical education. Register: https://tinyurl.com/MEActionAdvo2026 Virtual kickoff call today at 12 pm PT/ 3 pm ET! #MECFS #pwME #MedEd
I’m seeing more and more people claiming to have PEM but not ME/CFS. Is there some new study or something I missed? Is it not pathognomonic?
"there is no cure for long Covid" Also no supports while you recover - financial, physical, mental health
Artist Gillian Levine recently wrote and illustrated a comic sharing reasons to continue masking in 2026. She kindly gave us permission to republish it. 😷 Read the full comic at The Sick Times: bit.ly/4rVqQdp
The “long covid is going away on its own“ myth was started by an influencer named “Health Nerd” who is an Australian epidemiologist who thinks US kids shouldn’t be vaccinated against COVID-19 (cuz AUS/UK don’t) and that NYC should have ran unethical RCTs on hospital visitation in 2020. Not science.