Unknown Etiology

@viralpersistence.bsky.social

fund research and clinical trials for infection associated chronic illnesses now, and furthermore provide clean energy-powered hotel cold on demand for free.

Takes like this are very tempting but IMO go too far. The polling miss last night was historically exactly average for a primary — no evidence polls have gotten worse recently. And remember 2022 had the most accurate House and Senate polls in history! bsky.app/profile/gell...

Adam Serwer@adamserwer.bsky.social · 14h ago

There’s no actual alternative to polling but I just don’t believe they capture public sentiment in any reliable way anymore

I feel the same way. NIH has been terrible for us, but has been responsible for truly brilliant breakthroughs in other diseases. The one that I think about often is sickle cell anemia - a nightmarish disease that has now been cured in a few people and is on the way to being widely curable.

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tbc there were absolutely circumstances that made it traumatic for some. but things like being locked down with an abuser or dealing with mental health issues disabilities psychosis aren’t even part of the conversation, it’s only ever about the separation from social life.

Unknown Etiology@viralpersistence.bsky.social · 3d ago

I knew it was possible to be before this happened. but still, even my previous nondisabled self didn't experience lockdowns as trauma because...I wasn't a fucking infant? there wasn't anything weird or special about me that made 2020 somehow easy. my grandpa died of covid. I was forced to go to into

2020 was very hard for me. what I've experienced since then has been awful, but I really dislike narratives of "disabled toughness" or whatever. I'm not tough and I don't want to be. I experience frequent distress from my symptoms even though my #LongCovid is relatively mild. I'm always sadder than

I’m doing ok right now but I’m not excited about my outlook with dysautonomia and possibly me/cfs because like. what kind of outcomes do people with autoimmune diseases who don’t take medication tend to have lol.

feels like things have already been the least misogynist and ableist that they’re ever gonna be in my lifetime, which makes it hard to feel hopeful about having an under-researched disease that mostly affects women

there’s a lot of tension in disability communities between people who accept their disability in the sense of like “I accept that this is happening and I’m not in denial about it, but I’d like to change it and am trying in one way or another to become closer to abled” and people who

I looked into that endometriosis test in the uk and as far as I can tell, the tests (there are two) haven’t been validated in a large clinical study and are being introduced to see if they help with diagnosis. it seems more like a public private partnership type thing than a breakthrough.

Congrats on getting Hamas to say “okay fine, we’ll disarm after Israel totally withdraws” and Israel to say “okay fine, we’ll withdraw after Hamas totally disarms.” No one’s accomplished that before, better make it the top headline.

We can't "own" the billionaires by withholding the "farmer" title from them. For one thing, the "farmer" title isn't... like.... bestowed by a mandate of the people anyway. People who own farms will continue to do so, & dictate how agriculture works, whether we call them "farmers" or not.

Yeah so NYT asked me ~2 yrs ago to write an op-ed about how the Colorado is running dry, & what we should do to keep this exact thing from happening. I said "There's only one real answer. Bill farmers by how much water they use. Duh." NYT editorial staff freaked tf out & cancelled the piece.

Elias Thorne@truebe.horse · 6d ago

saw an article today about an az politician saying how great it was that we're now in emergency drought conditions because the farmers get automatic bailouts and I feel like way more Professional Rural Understanders just breeze by sentences like that. www.paysonroundup.com/news/arizona...

idk, I think I have a fairly inclusive definition of disability but it isn't maximally inclusive. people worry about overly inclusive definitions centering people who are mildly disabled but I think the problem is more that they can lead to applying a disability framework to people who