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Miranda

@crookedneighbor.bsky.social

Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her) LongCovidSafety.net

1440 Posts349 Follower489 Folgt
Liℤℤie Kodpuak née Acid Lich (can’t spell sheaves without she)@acidlich.bsky.social · 19h ago

Bad news bears, as someone who went through ABA, this is in fact what it is! They physically abused me for having seizures, I wasn’t let out of the room or restraints until I could have more sightly kinds of seizures & now I have much worse kinds. My life is actually a nightmare because of ABA

Margery BLooM@margeatlarge.bsky.social · 21h ago

Taking a child’s preferred item away to make them earn it back with acts of compliance intended solely to make them appear more normal to outsiders is not Applied Behavior Analysis. It is emotional abuse.

Miranda@crookedneighbor.bsky.social · 18h ago

Been wanting to dig into this topic (the assumption that work is "good for you") for a while. Would love to know what research, if any, gets used to back up these types of claims!

Arrianna Marie Planey, PhD MA@arrianna-planey.bsky.social · 18h ago

Just read an article that started with the claim that "employment improves health, while unemployment harms health." Work conditions can also be insalubrious, & much harm arises from conditioning healthcare access on employment status, which is also conditional on health x disability status.

Karen K. Ho@karenho.bsky.social · 2d ago

If you are an expert on air quality and have 10-15 minutes to talk to me today or tomorrow about important things journalists should know while reporting on wildfires and smoke, my DMs are open, or you can email me at karen at OpenNews dot org.

Tina Vasquez@tinavasquez.bsky.social · 6d ago

Detention Watch Network is reporting the death of 29-year-old Priciliano Trejo, who had leukemia when he was detained by ICE in NC. ICE initially failed to provide Priciliano with access to medical care. They only released him from custody when he was on his death bed at hospital.

Disability Culture Lab@disabilitylab.bsky.social · last wk.

From medical neglect in ICE detention centers to the violence of kidnapping immigrant community members, the U.S. government is actively disabling and killing members of our community. Immigrant Justice is Racial Justice is Disability Justice. We must fight to abolish ICE and fund care over cages.

Text reads, “Immigrant Detention is Disabling. From medical neglect in ICE detention centers to the violence of kidnapping immigrant community members, the U.S. government is actively disabling and killing members of our community.” Image Description: A dark blue, light green, light yellow, and white image with the white Disability Culture Lab logo at the bottom and the number “1” in the bottom right corner. Text reads, “Disabled immigrants are greatly impacted by the violence of ICE, both by being brutally targeted and kidnapped by ICE in the streets as well as being denied necessary medical care including medication and access to assistive devices. They are also frequently punished for being disabled within detention centers, such as being forced into solitary confinement. Source: VisaVerge.” A dark blue, light green, light yellow, and white image with the number “2” in the bottom right corner.Text reads, “The state violence targeting communities of color further disables people via kidnapping and detention. The trauma of being targeted by ICE and the state can deeply impact mental and physical health, including giving people PTSD. Because of this trauma and medical neglect, people with disabilities frequently experience a decrease in their mental health baseline after being detained. Source: BMC Psychiatry.” A dark blue, light green, light yellow, and white image with a white arrow and the number “3” in the bottom right corner.Text reads, “Immigrant Justice is Racial Justice is Disability Justice. We must fight to abolish ICE and fund care over cages. Here are some great organizations to support: National Immigrant Justice Center (@ImmigrantJustice), Access Living’s Immigration and Disability Task Force (@AccessLiving), Detention Watch Network (@DetentionWatch).” A dark blue, light green, light yellow, and white image with the number “4” in the bottom right corner.
Wendy Lyon@wendylyon.eurosky.social · last wk.

Glad to see so much uptake of this story which was first reported by Shamim, but please be aware this is entirely typical and unsurprising behaviour by the DOJ. It’s particularly cruel when the students are from Gaza but it’s also part of a pattern of unjustified visa refusals

Shamim Malekmian@shamimmalekmian.eurosky.social · last wk.

Dozens of people from Gaza seeking visas to study in Ireland are denied entry. It was Haneen Eshraim's only “realistic opportunity at this stage to leave Gaza safely and continue my education”, she said. More here www.dublininquirer.com/dozens-of-pe...

Hand in Hand: The Domestic Employers Network@domesticemployers.bsky.social · last wk.

ICE tactics are ever-evolving and surging, creating more chaos and terror. We continue to shift and learn how we can show up for our immigrant domestic workers and neighbors. ICE has no place in our airports. ICE has no place in our communities. #AbolishICE www.nytimes.com/2026/07/28/u...

ICE Arrests Surge at Airports, Opening New Front in Deportation Drive (Gift Article)

Federal agents are arresting spouses of Americans, tech workers and others whose visas have expired, including many who have active applications to stay in the country.

nytimes.com

Miranda@crookedneighbor.bsky.social · last wk.

And then these clinics (or the broader institutions that run them) argue that they are shutting down because there is not enough demand from Long Covid patients 🔄

Lilith@nicepersonality.social · last wk.

I got a referral to a Long COVID clinic six months ago, and the earliest intake appointment available was next month. I got a voicemail on Friday informing me that my appointment was cancelled because the clinic no longer does long COVID treatment. More bummed out about this than I’d’ve guessed tbh

Septima P. Snark@drsubini.blacksky.app · last wk.

These are going to be deployed on Black disabled students first. Think I'm exaggerating? GAO found % students suspended 3% of White students without disabilities 8% White students with disabilities 12.5% Black students without disabilities 23% Black students with disabilities

Phil Lewis@phillewis.bsky.social · last wk.

Schools are adding pepper-spraying drones to help combat active shooters The plastic, non-lethal aircraft, which can smash windows and ram attackers will be at the ready at certain schools in Colorado, Florida and Georgia www.washingtonpost.com/nation/2026/...

Marianne Dhenin@mariannedhe.bsky.social · last wk.

There are five days left in my subscriber drive. I do loads of good work. I don't get paid enough. I didn't even get enough sleep this month. Please throw $40 my way. You'll get an annual subscription, and maybe I'll get to take a nap.

Marianne Dhenin@mariannedhe.bsky.social · 3w ago

📣 I'm running a subscriber drive for the rest of this month. I want to sign up 40 more annual subscribers—enough to hire a freelance fact-checker to work on all of my original reporting. I'm offering half off annual subscriptions to help make this happen; that's $40 for the year. Will you join me?

Miranda@crookedneighbor.bsky.social · last wk.

Publishing industry folks should note the Skyhorse/Tony Lyons connection here. Lyons has been a menace for years (including scooping up the Woody Allen book in 2020). But choosing to ally himself with a child murderer illustrates just how deeply committed he is to platforming the eugenics movement.

CHD has energetically defended Shaw both before and after she was charged. Holland sat for a July 8 interview about Shaw with MAHA Action, a 501(c)4 advocacy group staffed by some RFK Jr.’s closest political allies. There, Holland was interviewed by Tony Lyons, the founder of Kennedy’s publisher, Skyhorse Publishing. And she pressed Shaw’s case in a New York Times article about the lawsuit, where she declared, “We’re probably the only organization that would take a case like that very seriously and put out information about it right away.”
Anna Merlan @annamerlan.bsky.social · last wk.

NEW: I dug into the court documents in the case of Andrea Shaw, the Idaho mother charged with killing her toddlers. Shaw insists they died following a set of vaccinations. I looked at how the anti-vaccine movement insinuated itself into this case and her life. www.motherjones.com/politics/202...

D is tired, but there is coffee@grrlintersect.bsky.social · 2w ago

I don’t feel great about asking for hotel money because I have security deposit money and also half a couch until then and there are people who don’t have that in this heat but it has been 3 days and maybe 4 hours of sleep and I am not sure I can physically handle another week of this.

D is tired, but there is coffee@grrlintersect.bsky.social · 2mo ago

I know I’ve been less around lately, things are extremely not OK, if you wanna help pay for hotels, so I have a place to live, and I don’t know maybe prescriptions: cash.app/$grrlintersect venmo.com/u/grrlinters... www.paypal.me/dgrrl39

Miranda@crookedneighbor.bsky.social · 2w ago

Please support Marvin's family ("Maurice and Natalia" and their kids from THERE IS NO PLACE FOR US). Their oldest is about to head to college. www.gofundme.com/f/support-fo...

Donate to Support for Marvin Johnson Sr.'s Family and Honor his Legacy, organized by Erica Day Ruffin

It is with broken hearts that we share the unexpected passi… Erica Day Ruffin needs your support for Support for Marvin Johnson Sr.'s Family and Honor his Legacy

gofundme.com

cognitive dissonance is a helluva drug@hnysuklchocolat.blacksky.app · 2w ago

though you don't know them, i do, & this is a perfect description of them. they were truly a team & loved their little family unit so hard. to all who have given, shared, & lent support in some way, thank you.

victoria@vashetc.blacksky.app · 2w ago

Looking to speak with any Black folks in New Mexico, Arizona, Missouri, Maryland, Arkansas, Kansas, Oklahoma, Tennessee, Washington, Florida, Georgia, Alabama, or Colorado (whew) who have had their Medicaid or SNAP benefits abruptly canceled! (I’m writing about how AI systems are denying benefits)