@epilepsyexplained.com
Epilepsy Friends
@epilepsyfriends.bsky.social
Official Epilepsy Friends account. Free biweekly newsletter with entertainment recommendations to bring the Epilepsy community joy on rough days. EF is 🏳️🌈✨🏳️⚧️ friendly and anti-maga. Subscribe here: https://epilepsyfriends.beehiiv.com/
Shared Umbrellas
@sharedumbrellas.bsky.social
Supporting those proving extra care for themselves or a loved one. It can be isolating and often extremely challenging, now more than ever in these times of uncertain funding. You are not alone. Let’s help each other. #Disability #ChronicIllness #CareGiver
Brain Ablaze
@brainablaze.bsky.social
As people with Epilepsy, we support anyone dealing with seizures.
GirlRebuilt 🇨🇦🇧🇧
@girlrebuilt.bsky.social
Mom to humans & cats. DV survivor. Goth. Writer. Music Junkie. Pain + illness warrior 🥄. 🏳️🌈 ally. Photographer. Member of East Coast Kin. Join me in my amusement park of misadventures... it's dark in here, so I'm searching for the light.
The North American AED Pregnancy Registry
@aedregistry.bsky.social
Empowering Pregnant Women with Information About Anticonvulsants through Research
SK Life Science, Inc.
@sklifescience.bsky.social
At SK Life Science we believe there is more to life when you connect health with happiness. Our community guidelines are available here: https://bit.ly/41Whe6y
Tristan Shuman
@tristanshuman.bsky.social
Neuroscientist studying memory, epilepsy, and Alzheimer’s disease. Associate Professor at Icahn School of Medicine at Mount Sinai
Michael Absoud
@mabsoud.bsky.social
Paediatrician @EvelinaLondon ,clinical academic @KingsCollegeLon, Neurodevelopmental,epilepsy, long term conditions, mental health:Views personal #Recovery4Kids
KearneyLab
@kearneylab.bsky.social
Neuroscience | Genetics | Pharmacology | Epilepsy | Neurodevelopmental Disorders | Targeted therapeutics | Northwestern University, Chicago | Opinions are my own 🧪👩🔬🧠🧬💊
Madeleine Oudin
@madeleineoudin.bsky.social
Tiampo Family Associate Professor at Tufts University, cancer and epilepsy researcher, fierce advocate for diversity and inclusion, mom of a daughter with the SCN8A epilepsy
JB Manent
@jbmanent.bsky.social
Developmental neurobiologist studying cortical malformations (grey matter heterotopia) and #epilepsy at INMED, INSERM in Marseille, France https://orcid.org/0000-0002-2436-8593
Torie Robinson
@torierobinson.bsky.social
🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg.bsky.social
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Katja Kobow
@katjakobow.bsky.social
Epigenetics enthusiast. Working in molecular neuropathology 🧠🔬🧬 @FAU.de. Visiting scientist @UKL_Leipzig. Malformations and #epilepsy. DNA methylation and #aging. kobowlab.org
Wesley Kerr, MD, PhD
@wesleytkerr.bsky.social
Epileptologist/Asst Prof. Data Science, Functional Seizures, Clinical Trial Stats. he/him
FutureNeuro Centre
@futureneuro.bsky.social
FutureNeuro is the Research Ireland Centre for Translational Brain Science, based in RCSI University of Medicine and Health Sciences. Our vision is to change the patient journey for people affected by brain conditions.
Audrey Vernick
@audreyvernick.bsky.social
Epilepsy surgery mom, patient & family advocate, dog person. Former teacher and journalist. I support access to healthcare, equal rights, and a safe, clean environment. I love my family most of all. 🐶🏂🚴♂️🎭 (posts are my opinion only)
Joanna Mattis
@joannamattis.bsky.social
physician scientist studying circuits in epilepsy | assistant professor @UMich | she/her mattislab.org
Angel Aledo-Serrano
@aledoneuro.bsky.social
Neurologist🧠 Epileptologist, director of Vithas Clinical Neuroscience Institute & Epilepsy Center - #FND - Neurogenetics🧬 angel.aledo@vithas.es
New Adventure
@texasnoaccent.bsky.social
Child Neuro/Epilepsy, family man, dabbler in food, breaking and fixing stuff, dancing, dogs, chess, philosophy, and all the things! Life is an adventure; choose yours
Dr. Amy L. Brewster, PhD
@amylbrewster.bsky.social
Scientist (epilepsy research) and educator. When I’m not in the lab or classroom, I’m out on the trails with my golden sidekick, Beto, researching new adventures.
Ruba Al-Ramadhani, MD
@ramadhaniruba.bsky.social
Program Director, Child Neurology Residency program. Associate Medical Director, Pediatric Epilepsy Surgery program at UPMC Children’s Hospital
Scott Mintzer
@scottmintzer.bsky.social
Neurologist specializing in Epilepsy at Thomas Jefferson U., political junkie, writer, dad, lover of books, booze, Philly Union/76ers, and music. Views mine.
Epilepsy Warrior, RN
@epilepsywarriorrn.bsky.social
Former neurology nurse and NICU nurse now fighting epilepsy. RN, BSN, BS in Psychology and Statistics. Here for supporting the community and spreading awareness. Occasional memes — ok, let’s be honest — frequent memes. Don’t let anyone steal your joy.
IctalGroup Research Network
@ictalgroup.bsky.social
#neurocriticalcare #statusepilepticus #epilepsy #CriticalCareEEG #SUDEP #EBM #nursingresearch #EEG https://ictalgroup.org https://www.helloasso.com/associations/ictalgroup/formulaires/1/widget/en
CURE Epilepsy
@cureepilepsy.bsky.social
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.
Suyi Ooi
@suyiooi.bsky.social
Neurologist and Epileptologist PhD candidate at University of Melbourne Epilepsy - Structural Imaging - Machine Learning
Tallie Z Baram
@talliezee.bsky.social
Neuroscienist. Doc. Bren Prof. @UCI. Early-life #stress. #circuits #PVT🧪🧠 #Neuroscience #Neuroskyence reward, CRH #anhedonia. #memory #sexdifferences #epilepsy #epigenetics. Hiker. #classical music. #Travel. New here
Gregory B. Cogan
@gcogan.bsky.social
Associate Professor, Department of Neurology Director of Research, Duke Comprehensive Epilepsy Center Duke University http://coganlab.org
Dan Freedman, DO
@dfreedman7.bsky.social
Child neurologist & epilepsy fellowship APD at Dell Med. Interests: epilepsy, FND, medical education, history & vaccines. Personal account, views my own.
Epilepsy Education and Support
@epilepsyedsupport.bsky.social
This page was created to give educational support by providing information about epilepsy. We are not a substitute for seeing a qualified medical professional
Epilepsy Friends
@epilepsyfriends.bsky.social
Official Epilepsy Friends account. Free biweekly newsletter with entertainment recommendations to bring the Epilepsy community joy on rough days. EF is 🏳️🌈✨🏳️⚧️ friendly and anti-maga. Subscribe here: https://epilepsyfriends.beehiiv.com/
Stevie P
@steviep65.bsky.social
Restaurant Server in Mobile, Alabama, US Navy Veteran, Epileptic, avid Cyclist.
JohnnyToronto
@johnf2023.bsky.social
Toronto. Deadhead. The Jays. Bike Riding Pinko. Guitars, Cadillacs, Hillbilly music...
Anymouse
@anymouse.bsky.social
Village Trustee (Chairman/mayor), village of 95 in the Nebraska Panhandle. Democratic Socialist. Disabled Navy veteran with epilepsy. Former erotic Romance novel editor. Flag committee chair. broadwater.nebraska.gov He/him
jeanie52 🌊💙🇺🇦
@jeanie52.bsky.social
Fueled by caffeine ☕ | Future survivor of the Zombie Apocalypse 🧟♂️ | Professional cat wrangler 🐾 | #SlavaUkraini #Resist #UnionStrong #LiberalAF
John
@jrh2385.bsky.social
Middle aged, volunteer photographer, epilepsy warrior, cyborg, veggie, gamer, dog person. JRH2385, SW-7284-4924-6113, steam 152532536
Ariel
@arielgross.bsky.social
Founder of teamaud.io and techaud.io, currently Audio Director at Ghost Story Games working on Judas, prev BioWare, Volition, old indie games on GBA and DOS, yer game dev pal but I do other stuff too like occasionally brush my teeth you still reading this?
blurenze.bsky.social
@blurenze.bsky.social
I do photoshop, i mostly get free req If u like to support me I have links attached 🔗 kofi https://ko-fi.com/lawrencerodrigues
Chronic Illness Resource Library
@spoonieresources.bsky.social
Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es). Not a health professional. Requests/suggestions welcome. 🚫 No AI linktr.ee/chronicillnessresourcelibrary
LAFAYETTE
@lastudiolafayette.bsky.social
Father, Writer, Photographer, Herbalists, Tribal Medicine Researcher, Explorer, Seeker, Int Negotiator, FIT, Designer, Airline Safety & Health Chairperson, Jungle Crisis Counselor, 105 Countries, Navy Vet, Futurist, 60 yrs Cooking. 🚫MAGA
🏳️🌈🏳️🌈A Fancy Whimsy - Kindle
@samhanepublishing.bsky.social
Queer, HIV+U Gaymer who writes gay fiction and occasionally posts some NSFW content https://linktr.ee/samhane.publishing https://ko-fi.com/U6U61JQY42/shop
MichiFinds
@michifinds.bsky.social
I like to find deals and share them with others. join me at michifinds.com to track price history and save money!
CURE Epilepsy
@cureepilepsy.bsky.social
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.
⚔️KnightHawk🦅
@knighthawk899.bsky.social
AuDHD/MCAS/EDS 30s/Disabled & Chronically ill Movies/Video Games ♿ Disability Awareness♿+Politics Needs of the disabled are not being met in the US, let's change that!! My Links💘 🧡 https://ko-fi.com/knighthawk899 💝 venmo.com/u/Knighthawk899
Moobsky
@i-like-to-moob-it.bsky.social
The Bluesky -> https://moob.app migration is happening fast! 𝘾𝙤𝙢𝙢𝙪𝙣𝙞𝙩𝙮 𝙏𝙞𝙥: 𝙩𝙝𝙞𝙨 𝙖𝙘𝙘𝙤𝙪𝙣𝙩 𝙝𝙖𝙨 𝙗𝙚𝙚𝙣 𝙢𝙖𝙧𝙠𝙚𝙙 𝙖𝙨 𝙣𝙤𝙩 𝙠𝙣𝙤𝙬𝙣 𝙩𝙤 𝙗𝙚 𝙤𝙛𝙛𝙞𝙘𝙞𝙖𝙡𝙡𝙮 𝙖𝙨𝙨𝙤𝙘𝙞𝙖𝙩𝙚𝙙 𝙬𝙞𝙩𝙝 '𝙈𝙤𝙤𝙗 𝘼𝙥𝙥'
@patchworkgeneva.bsky.social
Just a patchwork dog in DC. Living with a rare disease.
The Mark Shaparin Foundation
@markshaparinfdn.bsky.social
The Mark Shaparin Foundation honors the life and legacy of Mark Shaparin through awareness, education, and action to prevent Sudden Unexpected Death in Epilepsy (SUDEP) with the goal of saving lives.
Genetic Epilepsy in Adults Network
@gean-epilepsy.bsky.social
Founded to change the way genetics is integrated into adult epilepsy care 🧬🥼 #AdultsHaveGenesToo
Jason Kelly
@jasonkelly.cloud
Cloud economist in Seattle with 2 dogs and an unhealthy obsession with soccer 🐕🐕⚽️