Severe Covid leads to persistent viral reactivation, with >10 different viruses noted in the first 40 days after hospital admission. Long Covid was specifically associated with reactivation of latent Anelloviridae virus @nature.com www.nature.com/articles/s41...

Virus reactivation in acute and long COVID-19 - Nature

Chronic reactivation of distinct herpesviruses and anelloviruses occur during acute and long COVID-19, and track with disease severity, inflammation and outcomes, revealing immune signatures with prog...

nature.com

Central origin of fatigability in Myalgic encephalomyelitis/chronic fatigue syndrome revealed by multimodal neuroimaging — Bedard et al "Our most novel results relate to the lack of neuromuscular adaptation in ME/CFS compared to the [Healthy Volunteers]." #MECFS

Your brain uses about 20% of your body's energy. A study found people with Long COVID had lower energy in a key brain region, helping explain brain fog and fatigue. Creatine may help cells deliver ATP energy, but like any supplement, it's probably not the answer on its own.

Long COVID Study Finds Major Energy Deficits in the Brain - Health Rising

A long COVID study examining, for the first time, energy levels in the brain, found them to be depleted in a large region called the cingulate cortex.

healthrising.org

📢 Participants needed for Long COVID research I'm helping an MSc student recruit adults living with Long COVID for an important study exploring experiences of rehabilitation and recovery. 🔗 app.onlinesurveys.jisc.ac.uk/s/lboro/long...

Factors Influencing Experiences of Rehabilitation Among Adults with Long COVID: An Explanatory Sequential Mixed-Methods Study - Online Surveys | Online surveys

Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, Online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

well if i've been rendered a ghost anyway, i'm gonna haunt this shit as long as i can. i am an angry spirit with unfinished business and if all i can manage is the slamming of some cabinets late at night then that's what i'll do. you still won't believe in me, but you'll at least feel vague unease

"Themes included the growing evidence that dysautonomia is an inflammatory and autoimmune condition; the role of mast cell dysfunction in driving symptoms; strategies for treating people who have both POTS & ME; and a new biobank initiative to facilitate research." thesicktimes.org/2026/07/28/d...

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick Times

The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.

thesicktimes.org

Signup here: www.renegade-research.org/signal

SIGNAL | Renegade Research

SIGNAL is built around a device lending library. Patients diagnosed with ME/CFS or Long COVID borrow promising therapeutic devices, shipped directly to their homes at no cost to them, for a 1-3 month ...

renegade-research.org

Fiona C@drfionac.bsky.social · last wk.

New remote trial recruiting now (US only) #MECFS youtube.com/watch?v=RmEH...

@batemanhornecenter.bsky.social Pediatric ME/CFS/LC Resources: Care Guide covers PEM, pacing, crash management, and school support. batemanhornecenter.org/wp-content/u... Webinar covers diagnosing and managing ME/CFS/LC in children. www.youtube.com/watch?v=no1a...

@rthm.bsky.social Dr. Putrino, Dr. Bateman, Dr. Curtin, & moderator Charlie McCone Webinar: how to best manage and treat PEM. Info on different types of PEM, how to navigate a crash, and interventions for reducing PEM. 8/6 2pm PST Sign up here: ow.ly/nAvg50ZtEb8

Welcome! You are invited to join a webinar: How To Manage and Treat Post-Exertional Malaise (PEM). After registering, you will receive a confirmation email about joining the webinar.

Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, and moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise (PEM). Learn about the different...

ow.ly

Many multidisciplinary/rehabilitation studies for ME/CFS, Long Covid, etc. pretend to have meaningful positive results. Here's one that clearly states the intervention didn't work: virology.ws/2026/07/23/t...

Ceterizine recall y'all "The recalled medication is distributed by Rising Pharma Holdings Inc. and comes in 100-tablet HDPE bottles with NDC number 16571-401-10. The affected lot numbers are GY825029, GY825030, GY825031, and GY825032, all with expiration dates of October 2028." #NEISvoid #MCAS

From the MCAS community on Reddit: Nationwide Recall Issued for Cetirizine Allergy Tablets Over Contamination Risk

Explore this post and more from the MCAS community

reddit.com

Mount Sinai @polybiorf.bsky.social CoRE Clinic Rapamycin Trial: Recruiting adults with physician-diagnosed LC in New York for a low-dose rapamycin trial to identify which LC subtypes benefit most. Open-label extension available after the 3-month trial. Email CoreResearch@MountSinai.org to register.

For the @thesicktimes.org I wrote a primer on how to read trials critically. We go over what different types of trials can and can't tell us as well as the difference between a statistically significant and a meaningful result. thesicktimes.org/2026/07/21/h...

How to interpret clinical trial results for Long COVID - The Sick Times

With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...

thesicktimes.org

1) We wrote a new article on cell and tissue analysis using genetic data. For ME/CFS, the results strongly point to neurons. One of the top hits is the medium spiny neuron, located in a region deep inside the brain called the striatum.

Cell and tissue enrichment in ME/CFS - ME/CFS Science

By matching DNA results with gene expression databases researchers can determine the tissues and cellContinue readingCell and tissue enrichment in ME/CFS

mecfsscience.org

Results of following 44 #POTS patients for 20 yrs. Some improved, some worsened, some fluctuated. Only 1 person’s symptoms resolved. (Looking at you, medical myth that #POTS magically goes away over time.) Mention of common comorbidities #EDS #MECFS #MCAS onlinelibrary.wiley.com/doi/10.1111/...

Dept of No Justice is rescinding a key guidance about the right to community living under the ADA & the Supreme Court’s decision on Olmstead v LC. And could force adults w/disabilities into institutions. Pure Evil. #Olmstead #ADA #CommunityLiving #Disability www.disabilityscoop.com/2026/07/20/j...

Justice Department Deems Major ADA Guidance 'Not Enforceable'

The Trump administration is tossing aside key guidance that federal officials have used to steer enforcement of the Americans with Disabilities Act for more than a decade.

disabilityscoop.com

PLRC is kicking off a summer fundraiser to help sustain our work and fund new projects that will improve clinical trials and biomarkers! You can help by donating, sharing our posts, and forwarding the emails you receive to folks in your network.🧵 Donate: patientresearchcovid19.com/donate/

Are you someone with myalgic encephalomyelitis/chronic fatigue syndrome #MECFS or #LongCOVID who’s been to the emergency room at least once over the past 10 years for your symptoms? Clinical care needs your voice! Take the Emergency Department research survey: surveys.mayoclinic.org/jfe/form/SV_...

9) An overview and explanation of each of the studies can be found on the website of the ME/CFS Research Foundation here:

ME/CFS Research Foundation invests €2.4 million in new research projects 

Noch in diesem Sommer starten sieben neue Forschungsprojekte mit Förderung der Stiftung in Höhe von insgesamt 2,4 Millionen Euro. Die Projekte wurden aus mehr als 30 Einreichungen von einer wissenschaftlichen Jury aus internationalen Expert*innen sowie dem wissenschaftlichen Beirat und dem Team der

mecfs-research.org

What if movement didn't have to be big to matter? Unbound is a film woven from 20 bodies, 20 stories, and 1 thread of connection. Join us for the premiere on July 29th at 6:30 PM ET. www.eventbrite.com/e/unbound-gl... A reflection on my process for this film on my blog: liapas.com/2026/07/11/u...

A large randomized placebo-controlled trial tested Temelimab, a drug targeting a retrovirus-related protein, in LC patients with evidence of HERV-W ENV. It found no benefit for fatigue, cognitive outcomes, function, or biomarkers. www.sciencedirect.com/science/arti...

Temelimab versus placebo in patients with post-COVID condition

More than 400 million individuals are estimated to have been affected by post-COVID condition or long COVID. This condition can lead to significantly …

sciencedirect.com

when people try to give advice to people with MECFS/long covid it almost always sounds like "you can't let your fear of broken legs stop you from jumping off the roof!" unless your advice takes PEM into account, you. are. a. danger.

Starting soon! Register for our free webinar, “Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS,” with the Simmaron Research team. Today, July 14, @ 3:00 pm PT / 6:00 pm ET. https://ow.ly/jsrZ50Zg3CA

🧠 What if #LongCovid is, in part, a disorder of dopamine? Our new commentary explores how disrupted dopamine signaling may help explain fatigue, brain fog, and autonomic dysfunction, and what this could mean for future therapies. Open access link: shorturl.at/vLAfU

Chantzy@chantzy.bsky.social · 4w ago

"Our findings provide compelling evidence that long COVID involves the loss of dopamine-releasing neurons," says Dr. Jeffrey Meyer, senior scientist at the Brain Health Imaging Center, Canada Research Chair medicalxpress.com/news/2026-07...

Interesting preliminary study shows that people with #LongCOVID have actual damage to the vagus nerve fibers that normally control the stomach. When they looked at stomach biopsies, they found far fewer nerve fibers, especially the cholinergic (vagal) ones, compared to HC.

Vagal cholinergic denervation of the gastric mucosa in Long-COVID-19: in vivo evidence of structural autonomic dysfunction

Since the end of 2019, a coronavirus pandemic (SARS-CoV-2), responsible for severe acute respiratory syndrome, has spread worldwide. This pandemic, due to the spread of SARS-CoV-2, is similar to two p...

ijidonline.com

Today @thesicktimes.org: "Stop telling women their Long COVID is menopause," writes London-based journalist Kelly Rose Bradford. thesicktimes.org/2026/07/10/s...

Stop telling women their Long COVID is menopause - The Sick Times

From friends to medics, women are used to having their health issues dismissed, minimized, or blamed on their hormones.

thesicktimes.org

Obviously we need real medical care. “Do less…..wayyyyy less…. less than that” is not medical treatment. But until the research catches up, it’s the most powerful lever I’ve tried.

Brain’s waste-clearing ability impaired in #ME/CFS patients The brain’s waste clearance system is impaired in people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) which can lead to various symptoms including brain fog, Griffith University researchers have discovered 🇦🇺

Brain’s waste-clearing ability impaired in ME/CFS patients

The brain’s waste clearance system is impaired in people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) which can lead to various symptoms including brain fog, Griffith ...

eurekalert.org

📢A proposed federal rule could let the government cancel active #MECFS research mid-study when political priorities change. The public comment window closes July 13. Take action: https://ow.ly/J5EP50ZcpV0 How to submit a public comment: https://ow.ly/Oq6150ZcpUZ Please share! #MEAwarenessHour

Today's the day! We hope to see you at our virtual Pride! ❤️🧡💛💚💙💜🤎🖤 🩵🩷🤍🩷🩵

The Sick Times@thesicktimes.org · last mo.

Celebrate Pride with The Sick Times! Many in-person events aren’t accessible to people with Long COVID and related diseases and disabilities, so join us from home as we will celebrate queer performance art. We’re excited to see you there! ❤️🧡💛💚💙💜🤎🖤 🩵🩷🤍🩷🩵 Register: luma.com/ih0oq3yw?mc_...